EB Clinet

Why is EB Clinet important for health care professionals working with EB patients? How do we support the medical EB community? We asked some of our contacts to share their thoughts on EB Clinet and are immensly proud on the feedback we could gather. See the video and be inspired to become part of this amazing community! #EBClinet #Epidermolysisbullosa #fightEB #strongertogether

📣 EB professionals! 📣 DEBRA UK is asking for your input - Whether you’re a dermatologist, nurse, mental health specialist, dentist, podiatrist, GP, social worker, or one of the many more professionals who work with families affected by EB – please take a few minutes to vote in this vital new global survey! 🩺 This survey will help decide DEBRA UK's top 10 priority questions for EB research, and it will set EB research strategies for years to come. 🔬 So please vote and share! https://lnkd.in/dx2kT2Ge

📣 Shared presentations online! Some speakers from the EB Clinet Conference 2024 agreed to upload their presentation slides on the EB Clinet website. If you've missed the event or want to revisite some information, find the presentations here: https://lnkd.in/dc-86-8y We hope to add some more in the coming days.

We are proud to say that the EB Clinet Conference 2024 was a great success and a blast! Every single delegate made this an amazing event and we were honoured to host 280 participants from 33 countries (from Chile to Japan, from Norway to Australia). The presentations, forums, discussions and coffee chats ensured the sharing of current best practice care examples and also new ideas to improve support for EB patients. We thank all the speakers, chairs and session leaders for their support and willingness to share their expertise. Watch out for more photos to come at the EB Clinet Website (https://lnkd.in/d_YUaSck) and we hope to see you all soon! #Epidermolysisbullosa #EBClinet #DEBRA

Although the summer temperatures are tempting us to head to the lake in the afternoons, the EB Clinet team is tirelessly working on the EB Clinet Conference (17.-18. October 2024, Vienna), spurred on by the generous support from Chiesi USA, Inc. who secured Plantinum Sponsor entiltlements. Want to join us and get an update on the latest clinical developments and care options for Epidermolysis bullosa patients? Then register now: https://lnkd.in/dSmD-aQa

📢 NEW SESSION - We are excited to announce yet another forum alongside the top-class main stage programme at the EB Clinet Conference (17th-18th October, Vienna, Austria). On Friday afternoon, a session titled “Philanthropic Drug Development in EB – learning from the past for the future” will shine a light on success stories, current processes and improvement potential in the drug development landscape for EB. A series of short talks will give insight into different perspectives (patient and non-profit organizations, academia, industry). The following time for discussion should enable a lively exchange on future perspectives. Want to join the discussion? Then register now: https://lnkd.in/dSmD-aQa

Are you looking for clinical trials to refer your patients to? Or have you ever wondered what clinical research projects are underway to find better treatments and support offers for Epidermolysis Bullosa patients? Look no further! The EB Clinet website offers a comprehensive overview. The clinical trial database is managed by EB Research Network and updated twice a year. Head over to our website and get informed. https://lnkd.in/d3kFguWZ

❗ ⏰ ❗ Time is running out! Early bird rates for the EB Clinet Conference 2024 will end on May 31st. ❗ ⏰ ❗ So if you want to join us and get updated on the best care options for Epidermolysis bullosa patients for reducaed rates, then register now: https://lnkd.in/dSmD-aQa Let`s meet in Vienna!

Only 5 more months to go until we meet in Vienna. Today we'd like to thank another partner who`s support helps us to bring a great event to each participant and ensures that the EB Clinet Conference (17.-18. October 2024, Vienna) will be a success. 💭 Constant Therapeutics secured Bronze Sponsor entiltlements, helping us to bring a great event to fruition. Want to join us and get an update on the latest clinical developments and care options for Epidermolysis bullosa patients? Then register now: https://lnkd.in/dSmD-aQa

📣 Make the EB Clinet conference 2024 part of your annual education plan! 📣 We are happy to announce, that our event was accredited 12 CME credits. Please find the official statement from the EUROPEAN ACCREDITATION COUNCIL ON CME below: “The EB Clinet Conference 2024, Vienna, Austria 17/10/2024 - 18/10/2024, has been accredited by the European Accreditation Council for Continuing Medical Education (EACCME®) with 12.0 European CME credits (ECMEC®s). Each medical specialist should claim only those hours of credit that he/she actually spent in the educational activity. Through an agreement between the Union Européenne des Médecins Spécialistes and the American Medical Association, physicians may convert EACCME® credits to an equivalent number of AMA PRA Category 1 CreditsTM. Information on the process to convert EACCME® credit to AMA credit can be found at https://lnkd.in/eefntdS5 . Live educational activities, occurring outside of Canada, recognised by the UEMS-EACCME® for ECMEC®s are deemed to be Accredited Group Learning Activities (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada.”