Crohn's Colitis Cure

Exciting News! We were recently featured in The Sunday Mail on October 6, 2024, highlighting our groundbreaking efforts to streamline care for people with Inflammatory Bowel Disease (IBD). With IBD expected to affect over 300,000 Australians by 2030, we’re working on a world-first app that will revolutionise treatment and improve communication between patients and their healthcare teams. Pilot testing begins next year! Check out the article below and stay tuned for more updates on our work to support the IBD community. #IBDcare #CrohnsColitisCure #HealthInnovation

Byron Waller, 14, is about to fly a Cessna around Australia to raise money for the Queensland Children's Hospital's teen ward and raise awareness for Crohn's disease! Diagnosed with Crohn’s himself, Byron wants to show that illness doesn’t have to stop you from doing great things. He'll visit 30 towns in 10 days, spreading his message of hope and resilience. Read more: https://lnkd.in/gYtXdbxU #FlyForACause #ByronTakesFlight #CrohnsAwareness

CCCure have been awarded funding from The Helmsley Charitable Trust to #codesign and develop a new #ConsumerApp linked to the #CCCare platform. This app will #empower people with #IBD by integrating patient-reported data with clinical information, helping them better manage their health. We're now in the Consultation Phase and need your help! We've launched a Steering Survey to gather patient insights, which will guide the app's design. Please share the survey link below with your networks to help us reach as many people with IBD patient as possible! 👉 Take the survey: https://lnkd.in/eBEbdkK5 For more information, send us a direct message on LinkedIn or email info@c-c-cure.org. #IBD #CCCure #HealthcareInnovation #PatientCare #IBDApp #ConsumerApp

Flashback to AGW 2024! Here’s a snapshot of Dr. Dominique Nano presenting his talk, "The psycho-social impact of fistulising perianal Crohn's disease in Australasia," at AGW on September 16th. His research found that people with current fistulising Crohn’s disease (fCD) experience higher rates of opioid use, more time off work, and higher K10 and DASS-21 scores compared to those without fCD. This emphasises the significant psycho-social impact of fCD on quality of life, highlighting the need for holistic, proactive management. Read the full abstract here: https://lnkd.in/gvxqQH77. #AGW2024 #CrohnsDisease #PsychoSocialImpact #IBDResearch #HolisticCare

Living with Inflammatory Bowel Disease (IBD) can feel isolating and misunderstood, but these five influencers are using social media to break the stigma and build supportive communities for those facing the daily challenges of Crohn’s disease and ulcerative colitis. From sharing deeply personal stories about their medical journeys to normalising the physical changes that come with treatment, these inspiring individuals are showing that IBD doesn’t have to hold anyone back. 💬 Want to hear about how these advocates are reshaping the conversation on IBD? Visit https://lnkd.in/gRCsswEn 💬 📲 Let’s keep the conversation going - share your thought with us below! #IBDAwareness #FightTheStigma #CrohnsDisease #UlcerativeColitis #IBDWarrior #ChronicIllness #IBDCommunity #MentalHealthMatters #AdvocateForIBD #BodyAcceptance

We’re excited to share that Crohn's Colitis Cure was recently featured in a segment on ABC Wide Bay Radio! 🎙️ Dr. Gareth Walker, a gastroenterologist and valued research collaborator with our charity, took the time to discuss what Inflammatory Bowel Disease (IBD) is and how it impacts the lives of those affected. At the 9-minute and 50-second mark, you can also hear from Emily, who bravely shares her personal experience of living with IBD in Bundaberg and how it shapes her daily life. But that’s not all! There’s another segment at 1 hour, 58 minutes, and 15 seconds about the exciting development of our CCCare IBD App, which will soon be co-designed with people with IBD from all over the world! For any people with IBD wanting to get involved in the co-design and consultation phase, please email info@c-c-cure.org—your input will help shape the future of IBD care. Check out the radio segment here (https://lnkd.in/gqahzbaa) and join the conversation! #IBD #CrohnsDisease #UlcerativeColitis #RegionalHealth #IBDAwareness #CCCure #CCCare #CoDesign #PatientsFirst #ResearchAndCare

Last Sunday, the incredible Liverpool Hospital IBD Team, including our very own board director, Professor Susan Connor, took part in the Colour Frenzy Obstacle 🌈 🏃♀️💨 It was an amazing opportunity to spread awareness and support people living with this chronic condition – something we are incredibly passionate about. Check out Susie wearing her CCCure shirt, which now looks a lot more colourful! 🎉 This fundraiser was part of Crohn’s & Colitis Australia’s Live Fearless Challenge, and we're so proud to be involved! Together, we’re making a difference – one colour at a time! 🌟 #ColourFrenzy #LiveFearless #IBDAwareness #CrohnsColitisCure #IBDCommunity #Support

“IBD manifests with symptoms including blood in the stool, diarrhoea and an urgency to go to the toilet. Incontinence and a loss of control of your bowels, particularly in a public place, can have a devastating impact,’’ Professor Connor said. Crohn’s Colitis Care (CCCare) is a ground-breaking cloud-based platform that integrates patient and clinical data in real time to manage inflammatory bowel disease (IBD). Developed by Professor Susan Connor and the Crohn’s Colitis Cure charity, it supports over 15,000 patients and 300 clinicians, enhancing care and driving research. Find out more: https://bit.ly/4dKSSkV You can see more of this work at the 2024 Health Beyond Research & Innovation Showcase on 25 and 26 September. Join health experts, partners, and the community to explore how we’re “Harnessing Diversity” in the future of healthcare. Find event details and register at https://lnkd.in/gJQfyc8 South Western Sydney Local Health District Ingham Institute for Applied Medical Research #HealthBeyondResearchandInnovationShowcase #DiversityInHealthcare #Innovation

🎉 We’ve Hit 600 Followers! 🎉 A huge thank you to each and every one of you for being part of the Crohn's Colitis Cure community! 🙌 Together, we’re raising awareness, driving change, and working towards better care for people living with Crohn’s disease and ulcerative colitis. Your support means the world to us and helps us get one step closer to a cure. 💙 Let’s keep the momentum going – share our mission, spread the word, and stay tuned for exciting updates! #600Strong #ThankYou #CrohnsColitisCure #IBDAwareness #TogetherForACure

🌟 Join Us for an Unforgettable Adventure! 🌟 Trek Tasmania’s stunning Bay of Fires with us and support Crohn’s Colitis Cure in the fight to end Crohn's disease and ulcerative colitis! Over 4 days, we’ll cover 46km of breathtaking landscapes – think vivid orange boulders, white sandy beaches, and lush rainforests. Explore the iconic pink granite lighthouse at Eddystone Point and uncover hidden relics of mining history along the way. Not only will you experience nature at its finest, but you'll also be helping us improve care for those living with IBD. Ready to make a difference? Click the link below to join the waitlist and be part of this life-changing adventure! 🔗 https://lnkd.in/gYB8tH2S #BayOfFiresTrek #IBDAwareness #SupportIBDResearch #Fundraiser #CrohnsColitisCure #AdventureForACause