Crohn's Colitis Cure

A groundbreaking #surgery in Melbourne is offering new hope for those living with #Crohn’s disease. Anthony Becker, the first patient to test a new #bionicdevice that targets the vagus nerve, has the potential to live a life free from #medications. This #revolutionary #treatment could transform the way we manage Crohn’s and other chronic conditions. At CCCure, our mission is to #improvecare now and be instrumental in finding a #cure. #Innovations like this bring us closer to a future where those with Crohn’s can live without the need for lifelong drugs. Read more here: https://lnkd.in/gFeVxwZg #CrohnsDisease #HealthcareInnovation #DigitalHealth #IBD #PatientCare #CrohnsColitisCure #IBDAwareness #HealthTech #ChronicIllness #BionicDevice #MedicalBreakthrough #IntegratedCare #IBDResearch

What an important endeavour by Crohn's & Colitis Australia, and one that aligns closely with our mission to improve care and be instrumental in finding a cure for IBD. Get involved and make your voice heard by clicking the link in the post below. Together, we can advocate for the changes needed to improve the lives of those living with IBD across Australia.

THIS TIME LAST WEEK, we held our annual Crohn's Colitis Cure Face-to-Face meeting in Barangaroo, New South Wales. We were joined by various stakeholders, #clinical users & researchers for a day-long discussion about our Crohn's Colitis Care (CCCare) #platform and the #data stored within our linked #clinicalqualityregistry. The meeting focused on related #research (published, current, and upcoming), recent and future #software enhancements, and crucial #advocacy issues. Our primary goal was clear: to IMPROVE PATIENT CARE NOW and be INSTRUMENTAL IN FINDING A CURE—a mission that drives everything we do at Crohn's Colitis Cure. Aren't we a good looking bunch?

Jesse Grupper’s story of overcoming #ulcerativecolitis to compete in the #ParisOlympics is truly inspiring. Diagnosed at 16, Jesse faced severe #healthchallenges but continued to pursue his passion for climbing, winning the gold at the 2023 Pan American Games. At CCCure, our mission is to improve care now and be instrumental in finding a cure for IBD. We are dedicated to supporting individuals like Jesse, ensuring they receive the best possible #care and can continue to pursue their dreams despite #chronicillness. Read more about Jesse's story here: https://lnkd.in/gddG747y #IBD #HealthcareInnovation #DigitalHealth #PatientCare #CCCare #CrohnsColitisCure #IBDAwareness #HealthcareIntegration #PatientAdvocacy #HealthTech #ChronicIllness #IntegratedCare #HealthCommunication #IBDResearch

Recent findings highlight a critical gap in communication between GPs and specialists treating young people with IBD (https://lnkd.in/gQ9yNJYC). At CCCure, our mission is to improve care now and find a cure. CCCare, our cloud-based IBD-specific electronic medical record, automatically generates structured letters to GPs, detailing all clinically relevant information and a personalised management plan. These letters can be sent directly to GPs through the platform, ensuring they are never kept in the dark. Imagine... a platform that removes data silos, reduces administrative burdens, and ensures seamless communication across all care settings! Learn more about how CCCare is making a difference here: https://lnkd.in/gAubSFY8 #IBD #HealthcareInnovation #DigitalHealth #PatientCare #CCCare #CrohnsColitisCure #IBDAwareness #HealthcareIntegration #PatientAdvocacy #MedicalTechnology #ChronicIllness #HealthTech #PatientEmpowerment #IntegratedCare #MedicalInnovation #HealthcareImprovement #PatientSupport #CollaborativeCare #HealthData #PatientFirst #TransformingHealthcare #HealthEquity #ClinicalCare #HealthCommunication #IBDResearch #HealthcareTransformation

Lucy Harman, a 22-year-old from Southampton, courageously shares her journey with #InflammatoryBowelDisease (#IBD) to #raiseawareness and encourage others to seek #medical help. Lucy experienced severe symptoms, including constant #pain and frequent #bathroomvisits, which she kept secret until it nearly cost her life. Her story highlights the importance of #breakingdowntaboos around discussing #digestivehealth. Lucy now uses social media to educate and support others with IBD, emphasising that no one should #sufferinsilence. Her message is simple: if something feels wrong, seek medical advice. Read the full article here: https://lnkd.in/gnnJ4yZt At Crohn's Colitis Cure, we are committed to improving care for people with IBD now and working towards a cure. Lucy's story is a powerful reminder of why raising awareness and promoting early diagnosis is so crucial. #IBD #CrohnsDisease #HealthAwareness #BreakTheTaboo #SeekHelp #PatientAdvocacy #CCCure #InflammatoryBowelDisease #Healthcare #Awareness #Support #MedicalHelp #ChronicIllness #InvisibleIllness #GutHealth #PatientStories #HealthJourney #DigestiveHealth #IBDAwareness #MedicalAdvocacy #SupportIBD #LivingWithIBD #HealthMatters #AwarenessMatters #HealthcareAdvocate #PatientEmpowerment #Wellness #HealthcareCommunity #AutoimmuneDisease #HealthInspiration #FightIBD #CrohnsAwareness #IBDCommunity #HealthEducation

Children, like 11-year-old Arthur, are helping University of Cambridge scientists grow 'mini-guts' in the lab to better understand #crohnsdisease. This groundbreaking research aims to personalise treatments for #Crohn’s patients. By studying #DNA changes in #gut #cells, researchers hope to tailor treatments to individual needs, a crucial step towards #personalisedcare. This study highlights the importance of #innovative #research in transforming patient care. At Crohn’s Colitis Cure, we are committed to supporting such pioneering research to improve the lives of those with IBD. Together, we can make strides in understanding and treating this challenging condition. Learn more about Arthur's story and the 'mini-guts' study here: https://lnkd.in/gh2KQrUy and here https://lnkd.in/gTEAPuw5. #CrohnsResearch #MiniGuts #PersonalisedMedicine #IBD #ChildrensHealth #InnovationInHealthcare #TransformingCare #CrohnsColitisCure #ResearchForCure #CambridgeUniversity #MedicalResearch #PatientCentric #HealthCareInnovation #IBDResearch #GutHealth #CrohnsAwareness #IBDCare #FutureOfMedicine #PatientCare #ChronicIllness #MedicalBreakthroughs #HealthResearch #GIResearch #PaediatricIBD #HealthInnovation #CrohnsSupport #InflammatoryBowelDisease #HealingIBD #ResearchMatters #GIHealth #MedicalScience #PatientEmpowerment #HealthcareHeroes

Today, CCCure is attending the "Transforming Australia’s Digital Health Infrastructure" information session in Canberra, ACT, hosted by the Australian Digital Health Agency (https://lnkd.in/gQMNE9qW). We're here to #advocate for a vital change in our #healthcare system. "People should not have to retell their health story. Their key information should follow them and, should they wish, be available to the whole care team across primary care, allied care, hospital care, and aged care." This #digitaltransformation will drive information #sharing and #realtime #dataexchange, ensuring that health information is accessible when and where it's needed. It aims to reduce #duplication and waste, easing workforce and budget pressures, and increasing #safety, #quality, and #productivity. We're thrilled to be part of this movement towards a person-centred, #connectedhealthcare system! #DigitalHealth #HealthcareTransformation #PatientCentricCare #HealthEquity #ChronicDiseaseManagement #PrimaryCare #AlliedCare #HospitalCare #AgedCare #HealthInnovation #HealthInformatics #PatientEmpowerment #IBD #CCCure

Nicole and Lynn Rawkins both live with #crohnsdisease, and have faced challenges in securing accessible toilet facilities at the #kubixfestival. Their experience highlights the ongoing struggle for fair treatment and adequate accommodations for those with #invisibleillnesses. At Crohn's Colitis Cure, our mission is to #improvecare for people with Inflammatory Bowel Disease (#IBD) and work tirelessly towards finding a #cure. Stories like Nicole and Lynn's fuel our determination to advocate for better #accessibility and #support systems. Together, we can make a difference and drive change to ensure that no one with IBD feels left behind or discriminated against. Read the full story here: https://lnkd.in/g2siyuyj #IBDCare #CrohnsDisease #AccessibilityMatters #InvisibleIllness #Advocacy #SupportIBD #HealthcareEquality #EndIBD #CommunitySupport #TogetherForACure #CrohnsColitisCure #IBDAwareness #IBDWarriors #LivingWithIBD #IBDSupport #InclusiveEvents #HealthAdvocacy #IBDAwarenessMonth #ChronicIllnessAwareness #IBDCommunity #IBDVisibility #InvisibleDisabilities #EmpowerIBD #SupportAndCare #BreakTheStigma #HealthEquity #IBDLife #AdvocateForIBD #IBDAction #StandWithIBD #IBDMatters #IBDJourney #IBDAdvocates

April Tassell’s journey with Crohn's disease is a powerful reminder of the challenges faced by many around the globe. Misdiagnosed at first, she was finally diagnosed at age seven, much younger than the average. Her story highlights the urgent need for greater awareness, better treatment options, and more research. At Crohn's Colitis Cure, we are committed to improving care for individuals with IBD and driving research toward finding a cure. Read more about April’s inspiring story and join us in supporting those affected by IBD: https://lnkd.in/gf6egSTT #IBD #CrohnsDisease #UlcerativeColitis #GutHealth #AutoimmuneDisease #Research #Healthcare #AustralianResearch #IBDAwareness #SupportIBD #CrohnsColitisCure #InvisibleIllness #ChronicIllness #HealthAdvocacy