The Children's Tumour Foundation

Essential Energy have been a valued partner for the Children’s Tumour Foundation for many years, enabling and matching employee donations through their workplace giving program and through sponsorship of events and activities. Today, our Head of Marketing and Fundraising Renee Anschau joined the Corporate Sustainability Team at their Port Macquarie headquarters for their annual SafeTea event. This was a great opportunity to share more about the work we do and how their funding has supported the NF community, including one of their own employees. Thank you to Clare Loney for inviting us to be part of this day and allowing us to engage more employees to be part of the giving program for the CTF. #conquernf #nfawareness #workplacegiving #matchedgiving

103 happy campers descended upon The Grampians last weekend for the Victoria NF Camp, our biggest camp to date! ⛺ Kids and adults alike enjoyed a chance to get away, have some fun, connect with others and test their skills on activities from abseiling, and canoeing to the giant swing and flying fox. A week on, and our hearts are still overflowing with gratitude for everyone who spent their weekend with us. And for our supporters who make these special weekends happen! Thank you to our incredible hosts Roses Gap Recreation Centre

Today is World Mental Health Day, an important reminder of the role mental well-being plays in all our lives. Living with, or caring for a loved one with NF can be a challenging and life-changing experience. NF doesn’t just cause tumours; it can lead to anxiety, depression, and social isolation, particularly for those dealing with chronic pain, surgeries, or visible signs of the condition. Today we are proud to launch a new video which shares stories of resilience, community, and hope. A reminder of what we are fighting for, because NF is for life. We are so thankful to our partners at Elevencom for producing this video pro-bono and for their ongoing support of the Children's Tumour Foundation. Together we can #conquernf #mentalhealth #beyondthediagnosis #NF #neurofibromatosis

The government has announced that it will implement a total ban on the use of adverse genetic test results in life insurance. 👏 This announcement comes after extensive consultation undertaken to address concerns that Australians were being discouraged from undertaking genetic testing out of fear that it could affect their ability to obtain life insurance. This reform is is a positive step forward in preventing genetic discrimination and removes barriers to accessing genetic testing, which has the potential to improve health outcomes.

🏃♂️🏃♀️ Get Ready to Rally Your Team for Conquer NF in Colour! 🎨 Looking to energise your team, strengthen bonds, and make a huge impact for the 13,000 Australians living with neurofibromatosis (NF)? Now’s your chance! Join us in Melbourne (17 Nov), Sydney (24 Nov), or Brisbane (1 Dec) for Conquer NF in Colour — a vibrant day filled with purpose, colour, and excitement! Hear it straight from last year's participants at TCN - The Card Network "Participating in the Colour Run not only brought us closer as a team but gave us a chance to support an amazing cause. We shared laughs, created lasting memories, and united for the Children’s Tumour Foundation." ✨ Whether you're getting colourful for kids facing life-altering surgeries, families coping with constant medical uncertainty, or the crucial research that brings hope, your team’s involvement will make a real difference. Form a team today, set your fundraising goal, and join the movement to Conquer NF! Group rates available – Early bird registration ends THIS SUNDAY! Register now: https://lnkd.in/gQ98hBh5 💙💚 Together, we can make a lasting impact! #ConquerNFinColour #CorporateTeams #MakeADifference #TeamBuilding #CTFAustralia Nick Sims Tash Di Pietro Georgia Hosking

1 in 7 women will develop breast cancer in their lifetime, but this risk increases for women with Neurofibromatosis Type 1 (NF1). NF1-associated breast cancers typically arise at a younger age and have the highest incidence in women under 40. Women with NF1 less than 50 years of age have an up to five-fold increased risk of developing breast cancer than the general population. Although overall survival rates have increased, there is still progress to be made in supporting those at higher risk, with the support, care and treatments they need. #breastcancerawarenessmonth

Last night, our Head of Support Services, Ruth Lindsay, presented our Health and Social Impact Assessment in NF in Australia at the 2024 Genetic Alliance Forum at NSW Parliament House. The forum spotlights patient-led innovation and celebrates the contributions of those working tirelessly to advance research and create change. The theme of the event was Innovating for Equity - Advancing Care Through Collaboration. 🤝 You can read the report here: bit.ly/NFimpact

THANK YOU 👏 On World Gratitude Day, we simply wanted to express our deepest thanks for your ongoing support of the Children's Tumour Foundation. From following the cause and advocating alongside us to sponsoring key events and partnering for impact, your support directly powers our services, enhancing our ability to educate, connect, and guide. Together, we are pushing boundaries and driving change for everyone with NF in Australia. 💙 💚

Community Advisory Panel Chair, Rebecca Spry knows first hand the complexities of NF, and need for support services. Hailing from Hobart, Tasmania, Rebecca (Bec), has neurofibromatosis type 1 and has known about her diagnosis all her life.   Bec attended the University of Tasmania and thanks to the UTas Disability Advisor and the support provided for students with disability, Bec graduated with a Bachelor of Commerce, Bachelor of Information Systems in 2004. Bec has a keen interest in disability sport, and competed as an athlete with disability in both swimming and rowing. Learn more about the amazing work of our Community Advisory Panel at bit.ly/CTFCAP

Meet NF Hero Evie, who is conquering her NF! 🤸♀️ Diagnosed with neurofibromatosis type 1 (NF1) at the age of 4, Evie has overcome brain surgery and delayed motor skills development, but nothing stops her from taking on a challenge! Evie is part of a supportive oztag team and just started GymAbility gymnastics, coming 1st in her very first competition! She's run multiple fundraisers and recently attended an NF camp, tackling archery and the high ropes course. "I know that having NF makes me different from my friends, but I know I can do what they can do if I try hard." #conquernf