EB Research Partnership (Australia)

This is #EBAwarenessWeek and my life’s work as a mother of a child with EB. To continue to raise awareness, I will be sharing information on my social media platforms with my networks. The content can be confronting. Please don’t look away. Walk beside me and learn about EB and other rare diseases. EB Research Partnership EB Research Partnership (Australia)

For the final home game of the seasons we teamed up with the GWS GIANTS and some of the biggest legends from around the world to #StandUpforEB and support EB Research Partnership (Australia) 💥👊🧡🦋 Learn more and support at ebresearch.org.au 🎥 Door Knocker Media

A special visit to the Sydney Children's Hospitals Network with the GWS GIANTS 🦋🧡 EB Research Partnership (Australia) is gearing up for a GIANT day in Sydney. Learn more here: https://lnkd.in/e7_c5HET

🚨 TUNE IN! 🚨 EBRPA Ambassador, John Hutchins and Prof. Allison Cowin will discuss life-changing EB research being done at University of South Australia Future Industries Institute TONIGHT on Australian Broadcasting Corporation (ABC) Adelaide News at 7pm (ACST) or on ABC News SA iView afterwards. 🦋💥 We are incredibly proud to support heroes like John Hutchins and brilliant researchers like Allison Cowin. Huge thank you to Matthew Smith from ABC Adelaide  for helping share our story. 

EBRPA Ambassador, John Hutchins, toured University of South Australia's Mawson Lakes campus this week and discussed research being undertaken by scientist Allison Cowin to develop an antibody to treat the rare fragile skin disease. EBRP is proud to support heroes like John and brilliant researchers like Allison. You can read more about this inspirational day on ABC News here: https://lnkd.in/e3CC5hBc

Behind the scenes as we gear up for a BIG BIG day with the GWS GIANTS . 💥🦋👊🧡 We can all make GIANT impact in the fight against EB. Learn more, get tickets and support. http://bit.ly/EBRP_GIANTS

🚨🚨 ANNOUNCEMENT 🚨🚨 EB Research Partnership Australia and the GWS GIANTS are coming together to raise awareness and funds for life-saving research at the GWS GIANTS last home game of the season against the Fremantle Dockers. 🦋💥👊  We're thrilled to invite EB families and supporters to join us on 17 August for a day of football, family and fun!! Together, we can make a difference in the fight against EB. 🧡 Join us in supporting this important cause and create lasting memories. Secure your spot here: https://bit.ly/EBRP_GIANTS

Thank you to FSC Marine & Civil Maintenance (MCM) and GWS GIANTS for your support of EB research! 🦋

We’re proud to welcome John Hutchins as our newest EBRP Australia ambassador. 👊🦋💥 John has lived with EB for over 19 years and is motivated to help raise awareness of EB and our mission. John is an absolute superhero and we’re lucky to have him join us. Last year John’s story attracted nationwide front page media coverage. Thank you, John! Read more here: https://lnkd.in/euU2SZRC

Still on a high from partnering with some of the Melbourne Victory Football Club to take the #PlungeForEB in Australia! 🥶♥️ This amazing community helped the Plunge for Elodie raise over $800K+ AUD globally. 💥🙏 There were so many great memories. Thank you to our friends at Football Victoria and The Pearl Jam Experience, and of course, thank you to Bruno Fornaroli, Alex Chidiac , Elise Kelond - Knight, Tori Hansen, Jess Nash, Paige Zois, Kayla Morrison, Jamilla Rankin, Rosie Curtis and Ava Briedis for taking the #PlungeforEB!!! Special shout out to Gary Bradshaw for the awesome photos and George’s Coffee for the fuel! ☕🤝🥳 Learn more and support us here: ebresearch.org.au 📸 Gary Bradshaw Photography