Mito Foundation

A heartfelt thank you to our sponsors for the 2024 Mito Community Summit! 🙌 Your generous support makes this event possible. 💚 ✨ Pretzel Therapeutics ✨ Stealth BioTherapeutics ✨ Tisento Therapeutics The Mito Community Summit is an opportunity for the mito community to connect, learn, and collaborate. This year, we’re placing a strong focus on emerging therapies for mitochondrial disease, highlighting the rapid progress being made in clinical trials and therapeutic development. We’re excited to see the therapeutics industry come together with clinicians, researchers, and the mito community to support this vital event. The Australian Government has also shown their support by awarding grants for community members to travel to the summit. Together, we are changing the future for everyone impacted by mito. Learn more or register for the summit here: https://lnkd.in/gFTRwhq5 [Image description: Green graphic with a white box with 3 logos. Text reads ‘Thank you to our sponsors for the 2024 Mito Community Summit!’. Below are the logos for Pretzel Therapeutics, Stealth BioTherapeutics, and Tisento Therapeutics.]

✨ Exciting grant opportunity for rare disease research! ✨ The National Health and Medical Research Council (NHMRC) is offering funding to support clinical trials for rare diseases, rare cancers, and unmet medical needs. Grant opportunity: Medical Research Future Fund – Clinical Trials Activity (Stream 2) https://lnkd.in/g9VYCSWh Key dates: ▪️ Minimum Data due: 5 March 2025 ▪️ Applications close: 2 April 2025 If you're working on primary mitochondrial disease (mito) clinical trials, contact us early to explore collaboration opportunities. Our team has extensive mito expertise and connections with the mito community and a wide network of mito health professionals. Maximise your research impact! Email grants@mito.org.au to discuss your ideas.

👀 Curious about how our new research project works? The Mito Stories Project collects and shares stories from the mito community to drive change that improves the lives of people living with mitochondrial disease (mito) in Australia. We're already using insights and case studies from mito community members in our work to influence the changes being made to the National Disability Insurance Scheme (NDIS). This includes our recent submission on the new list of NDIS Supports. You can read all our recent submissions at: https://lnkd.in/gPcUS8tV Watch our Policy and Advocacy Manager, Clare Stuart, explain the process. 💚 Learn more about the project here: https://lnkd.in/ghEgYQ2v

New Easy Read resource! This resource is for people who have received a mitochondrial disease (mito) diagnosis. It explains mito, potential symptoms, and how to get support. Please help us circulate this Easy Read resource by sharing it with your networks. https://bit.ly/47Y3XNg [Image description: Person holding a piece of paper with a picture of mitochondria on it. The text reads 'Things to do when you find out you have mito. Easy Read.']

Meet Dr Doug Lingard AM Dr Doug Lingard is a distinguished radiologist and nuclear physician, and the co-founder of Australia's largest diagnostic imaging practice. However, when his daughter Rose was diagnosed with mitochondrial disease (mito), neither he nor his medical colleagues had heard of the condition. Determined to alleviate the suffering caused by mito and to search for a cure, Doug, alongside his wife Margie, co-founded the Mito Foundation in 2009. Today, Doug continues to steer the Mito Foundation as Chairman, while also serving on the Nominations Committee and the Scientific and Medical Advisory Panel. https://lnkd.in/gTBGnB98 [Image description: Margie and Doug Lingard smiling together outside.] #MitochondrialDisease

In this great article in RARE Revolution Magazine, Professor David Thorburn talks about mitochondrial donation. Mitochondrial donation is an IVF-based technique. It offers real hope for families with certain forms of mito to have healthy children of their own. Read it on page 10: https://bitly.cx/xo6E "Prior to 2010 I thought this was science fiction that would never happen in my working career because of the conceptual, ethical and scientific issues around it. What was once considered science fiction has now become a reality, thanks to the tireless efforts of researchers, clinicians, and advocates who have transformed this once unimaginable technology into a viable reproductive option for families." — Professor Thorburn Professor Thorburn is part of the mitoHOPE team. mitoHOPE is the pilot program for mitochondrial donation in Australia. He is also co-Group Leader of Brain and Mitochondrial Research at the Murdoch Children's Research Institute and an Honorary Professorial Fellow in the Department of Paediatrics at the University of Melbourne. We're grateful to have Professor Thorburn on our Board of Directors and Scientific and Medical Advisory Panel.

Live-stream tickets are now available for the 2024 Mito Community Summit!  These tickets are free.  This year we are pleased to be able to live-stream both days, Saturday 30 November and Sunday 1 December. Live-stream tickets will allow registrants to attend sessions online via Zoom virtual meeting.  Register now: https://lnkd.in/gP59NaQC Only certain sessions from the full Mito Community Summit 2024 program can be live-streamed. View the live-stream program here: https://bit.ly/4eHg1oL [Image description: Picture of someone smiling at a laptop. Text reads ‘Mito Community Summit. Live-stream tickets are now available! Saturday and Sunday, 30 Nov – 1 Dec 2024. Online via Zoom’ with the Mito Foundation logo.]

Mito Foundation is privileged to be one of the beneficiaries of today's Markets Day for Charity! Our CEO Sean Murray shared some insights into our work and the profound impact the support of the Markets Day for Charity can have for the Australian mito community. Our thanks to the team at the ASX Refinitiv Charity Foundation, especially Gerard Doyle, Barbara Colvin and Dan Chesterman, and the teams at ASX Refinitiv Charity Foundation and nabtrade, as well as everyone involved in supporting this fantastic event!

Mito Foundation is one of the lucky beneficiaries of this year's Markets Day for Charity taking place on Tuesday 15 October. We're thrilled to be a beneficiary and I'm looking forward to the opportunity to share some insights into how this support can transform outcomes for members of the Australian mitochondrial disease community. A massive thank you to the ASX Refinitiv Charity Foundation, and all the orgainsations and individuals supporting this fantastic event!

Meet Ross Stocker! Ross is a PhD candidate and mitoHOPE research embryologist. He is researching techniques to improve mitochondrial donation. Mitochondrial donation is an IVF-based technique. It offers real hope for families with certain forms of mitochondrial disease (mito) to have healthy children of their own. mitoHOPE is the pilot program for mitochondrial donation in Australia. We are supporting Ross' work through a PhD Top-up Scholarship. This grant type supports emerging scientists to conduct mito research. 🔬 "My research will hopefully help mitochondrial donation in Australia become more effective and more reliable...Doing this will provide the mito community with the opportunity to have the healthiest, happiest children possible." — Ross Stocker Read our interview with Ross Stocker to find out more about his work and its benefit to the mito community. https://lnkd.in/gmmZyTBy [Image description: Ross Stocker looking through a microscope in a lab while performing a pronuclear transfer. Text reads 'Ross Stocker Researcher spotlight' with the Mito Foundation logo.]