MND Australia

The National MND Lived Experience Network ensures the voices, views, needs and aspirations of people impacted by motor neurone disease are heard and placed front and centre of everything we do. Learn more and join the Network at https://lnkd.in/gJ5tzCUc #LivedExperience #MND #motorneuronedisease #ALS

Exciting to see all the innovative MND research happening in Queensland! #NeverGiveUp

We are aware of the Government's plan to find $16 billion of savings over 4 years in the NDIS and we are closely monitoring how this evolves.  MND Australia is continuously engaging with the Government, in conjunction with our members, the State MND organisations, to ensure there is minimal impact on people with MND in the NDIS. We recently submitted a collaborated response to the Dept of Social Services' consultation on the Draft Lists of NDIS Supports, available to view here: https://bit.ly/3AVhwAQ  As a network we are we're seeking greater clarity from the Government on how the increased discretionary authority of the NDIA may affect people with MND, and at the moment it is unclear what will be excluded or included as part of the cost savings. Until there's a cure, there's care. Motor Neurone Disease Association of South Australia (MNDSA) Motor Neurone Disease Association of Victoria (MND Victoria) MND Queensland Motor Neurone Disease NSW (MND NSW) MND Tasmania @MND WA #NDIS #auspol #MND #motorneuronedisease #ALS #advocacy

A selection of recordings from our 3rd Australia and New Zealand MND Research Symposium are now available online. Some of the highlights include our keynote speakers, a clinical panel, two debates and select presentations from the Partnering with PLEx and Treatment, Care & Clinical Trials sessions. Check out our playlist here https://bit.ly/4ebRRSs #mndresearch #symposium #mnd

Today is World Physiotherapists Day! Physiotherapists work as part of a multidisciplinary team to support people with MND. A physiotherapist or physio helps people stay active and mobile and can help people with MND and their carers learn techniques to move from one position to another, for example, moving from a chair to a bed. A physio can also help with techniques to support coughing and breathing. Thank you to all the wonderful physios out there!! Learn more about multidisciplinary care in MND: https://lnkd.in/ghYzxzSj

At tonight's MNDA board meeting we farewelled our board Vice President Jemma Scott. Jemma has served on our board for six years and has made an invaluable contribution, not only through her exceptional corporate governance skills, but also through her personal lived experience, following her mother's passing from MND in 2012. We wish Jemma well in her next endeavours and thank her for her years of service to the MND community.

Your donations towards MND research are currently supporting over 35 researchers throughout Australia to develop new treatments, understand the causes and improve MND care. Learn more about the research we fund: https://lnkd.in/dpPkBWTc

A big THANK YOU goes out to the FPV Collective team -- their Ford Falcon Tribute Cruise raised an impressive $10,600 for MND Australia! #NeverGiveUp 🚘

#SpeechPathologyWeek2024 Speech pathologists are a vital part of a multidisciplinary team supporting people with MND. Speech pathologists help people maintain communication and can advise on communication aids and devices. They also support people with techniques to manage swallowing difficulties. Learn more about managing speech and communication with MND: https://lnkd.in/g6a962kr

Exciting to see the next generation of #MND researchers presenting at our Australian & NZ MND Research Symposium.