European Liver Patients' Association - ELPA

BREAKING NEWS! We are honored that Roberta Metsola President of the European Parliament, 🇪🇺 🏛️✨ has granted the European Parliament’s #patronage to #EuropeanLiverScreeningWeek! 🏛️ 🇪🇺 Take a moment for yourself—get your liver screened for #FREE and learn how you can protect your health! Join us in the heart of Brussels! 🗓️ Date: September 30 – October 4, 2024 📍 Location: Esplanade of the European Parliament, Brussels ⏰ Time: 9:30 AM to 5:30 PM daily With the support of President Metsola** and the European Parliament, we’re on a mission to promote #liver health and offer life-saving screenings. Don’t miss out—be part of a healthier future! 👩⚕️👨⚕️ #EuropeanLiverScreeningWeek October #LiverCancerAwarenessMonth #RobertaMetsola #EuropeanParliament #LiverHealth #FreeScreening #LiverAwareness #HealthForAll #TakeCareOfYourLiver #EUCancerPlan #LiverCancer #MASH #MASLD #NCDs #obesity #hepatitis #Alcohol #RareLiverDiseases European Commission EU Health and Food Safety European Health and Digital Executive Agency (HaDEA) WHO Regional Office for Europe World Health Organization EASL the home of Hepatology International Liver Cancer Association (ILCA) UEG - United European Gastroenterology Union for International Cancer Control (UICC) European Centre for Disease Prevention and Control (ECDC) European Society of Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN) European Cancer Organisation Cancer Patients Europe - CPE PFMD .org Digestive Cancers Europe European Association for the Study of Obesity (EASO) IARC - International Agency for Research on Cancer / World Health Organization International Diabetes Federation Europe International Diabetes Federation Aleksander Krag Debbie Shawcross Ben Hainsworth Manuel Romero Gomez Shaibu Issa Nicholas Brooke Marco Greco Marko Korenjak Antonella Cardone Veronika Všetíčková Beatrice Credi MSc Milan Mishkovikj, M.A. Fédération SOS Hépatites & Maladies du foie Anastassiya Semeiskaya European Centre for Disease Prevention and Control (ECDC) Maya Matthews Katie Owens Robb Butler ESMO - European Society for Medical Oncology

5 minutes of fame- I try to explain why the HTA regulation is groundbreaking and how it is a good example of how we can act together at the European Union level for the benefit of patients, health systems and industry. Thanks as ever to my hardworking team who make this all possible and the close team work with the HTA coordination group and sub groups. Too many people to mention but you know who you are!

In previous posts, we’ve mentioned the COOLINGBIS system, but today we want to give you an in-depth look at what it is and why it’s a crucial component in our fight against liver cancer. COOLINGBIS, developed by Vecmedical, is a radiofrequency-assisted device designed to achieve additional coagulation at the tumor margins during partial or total resection of organs like the liver, kidneys, pancreas, and spleen. This means that during tumor removal surgery, the system enables an extra layer of safety around the tumor margins. This precision helps reduce the risk of local cancer recurrence, offering patients a better chance of recovery and fewer postoperative complications. Additionally, COOLINGBIS features an innovative internal cooling system that prevents tissue from sticking to the electrode, making the procedure even safer. This system combines advanced technology with a minimally invasive approach, resulting in faster recovery and less impact on patients’ quality of life. COOLINGBIS is the central focus of the #Liveration clinical trial. Through this cutting-edge tool, we aim to transform liver cancer treatment and improve the quality of life for those battling this disease. 🔗 For more details, visit the COOLINGBIS page: https://lnkd.in/dKWCSdXx More info: www.liveration.eu Alexandra Dima  European Health and Digital Executive Agency (HaDEA) EU Health and Food Safety WHO Regional Office for Europe EASL the home of Hepatology UEG - United European Gastroenterology ESMO - European Society for Medical Oncology International Liver Cancer Association (ILCA) IARC - International Agency for Research on Cancer / World Health Organization  Dimitris Mavridis Angel Alonso Emilio González-González Patricia Sánchez-Velázquez Carlos Fuste Fernando Burdio David Alcantara, PhD Benedetto Ielpo Carola Orrego Villagrán Miriam Rol García, Ph.D. European Liver Patients' Association - ELPA Carina Dantas Natália Machado #liverationEU #vecmedical #coolingbis #vecmedical #livercancer #health #cancermission

🌍 Global PSC Awareness Day, we stand with patients, caregivers, and advocates worldwide who are affected by Primary Sclerosing Cholangitis (PSC). This rare liver disease challenges individuals and families, demanding resilience, awareness, and better support. 💪 🧡 As Barbara Conflitti from AIRCs ODV - Italy reminds us, caregiving often falls on women, highlighting significant inequalities in access to opportunities and the workforce. We need to recognize and support all caregivers who give their time, energy, and resources to loved ones battling rare diseases. Let’s raise our voices and bring visibility to PSC and the broader issues facing the liver health community. Every share counts toward increased understanding, research, and hope. 🌟 #PSCday #LiverHealth #RareLiverDiseases #GlobalPSCAwarenessDay #TogetherWeAreStronger #PSCday #LiverHealth #RareDiseaseAwareness #RareLiverDiseases #LiverDiseaseAwareness PSC PARTNERS SEEKING A CURE PSC PARTNERS SEEKING A CURE CANADA PSC Support #Hetzliver #Munuaisjamaksaliitto FNETH AELALD Déficit LAL LAL Deficiency EURORDIS-Rare Diseases Europe Tarja Teitto-Tuckett #SindeeWeinbaum Rare Disease Day EURORDIS-Rare Diseases Europe #@AIRCS

It’s inspiring to see ELPA Vice-President Ivana Dragojevic and Dr. Helena Glasova, a member of the ELPA Scientific Committee, taking decisive steps toward eliminating viral hepatitis and liver cancer across Central Europe. The VHPB Regional Meeting highlights a collaborative, cross-national approach, bringing together patient organizations, health experts, and policymakers to develop impactful strategies based on real-world case studies. By focusing on public health policies and empowering patient voices, this initiative not only raises awareness but also drives meaningful reforms. Their commitment exemplifies the transformative power of unity in healthcare and public policy, shaping a future where hepatitis and liver cancer are no longer public health threats. Let’s continue to support these champions during Liver Cancer Awareness Month and beyond! #LiverHealth #HepatitisFreeFuture #October #LiverCancerAwarenessMonth European Liver Patients' Association - ELPA European Foundation for the Study of Chronic Liver Failure (EF CLIF) EU Health and Food Safety European Health and Digital Executive Agency (HaDEA) WHO Regional Office for Europe UEG - United European Gastroenterology EASL the home of Hepatology International Liver Cancer Association (ILCA) ESMO - European Society for Medical Oncology Manuel Romero Gomez Marko Korenjak Meri Trajkovska Marco Greco Rui Tato Marinho (MD, PhD) Aleksander Krag Debbie Shawcross Michael Betel Jeff McIntyre Nicholas Brooke Shaibu Issa BWAMBALE ARAFAT Beatrice Credi Anastassiya Semeiskaya Veronika Všetíčková Fatty Liver Alliance Global Liver Institute PFMD .org Robb Butler Natasha Azzopardi Muscat ESOT - European Society for Organ Transplantation European Association for the Study of Obesity (EASO) ECPObesity European Commission European Parliament European Patients' Forum Milana Trucl Valentina Strammiello Milka Sokolović European Public Health Alliance (EPHA)

PSC Awareness Day would not be possible without the extraordinary efforts of advocates around the world partnering together to provide hope for a better future for those living with PSC. Follow our partners to learn more about PSC, their remarkable efforts, and how you can get involved! PSC PARTNERS SEEKING A CURE PSC PARTNERS SEEKING A CURE CANADA PSC Support European Liver Patients' Association - ELPA

"🌍 Exciting times ahead! Our President, Marko Korenjak and the ELPA team , is gearing up for crucial policy work in Brussels, championing the fight for #liverpatients across Europe. 🇪🇺💪 His commitment to shaping a healthier future for all is unwavering, and this next step will bring us closer to impactful changes. Stay tuned as Marko advocates for policies that make a difference for millions! #ELPA #LiverHealth #PolicyAdvocacy #FutureOfHealth #Brussels" October #LiverCancerAwarenessMonth European Liver Patients' Association - ELPA European Foundation for the Study of Chronic Liver Failure (EF CLIF) EU Health and Food Safety European Health and Digital Executive Agency (HaDEA) WHO Regional Office for Europe UEG - United European Gastroenterology EASL the home of Hepatology International Liver Cancer Association (ILCA) ESMO - European Society for Medical Oncology Manuel Romero Gomez Marko Korenjak Meri Trajkovska Marco Greco Rui Tato Marinho (MD, PhD) Aleksander Krag Debbie Shawcross Michael Betel Jeff McIntyre Nicholas Brooke Shaibu Issa BWAMBALE ARAFAT Beatrice Credi Anastassiya Semeiskaya Veronika Všetíčková Fatty Liver Alliance Global Liver Institute PFMD .org Robb Butler Natasha Azzopardi Muscat ESOT - European Society for Organ Transplantation European Association for the Study of Obesity (EASO) ECPObesity European Commission European Parliament European Patients' Forum Milana Trucl Valentina Strammiello Milka Sokolović European Public Health Alliance (EPHA)

Today is Global #PSC Awareness Day! We stand with all of the PSC organizations around the world working to find treatments and a cure for this rare liver disease while providing education and support to the PSC community. Together, we truly are stronger! #PSCaware #PSCAwarenessDay

Today, we launch our patient engagement initiative: An active encouragement for Gilde Healthcare’s portfolio companies to engage with the patient community at the earliest stages of development. Please refer to the document below for further information. Together with our world-leading Impact Council consisting of Guido Rasi Carole Longson Brian O'Rourke Christina Rångemark Åkerman Kim Caldwell Kush Desai Dan Ollendorf David Haerry Michael R. Jaff, we are here to support our companies in this endeavour. #Systemchange #Impact #Patientengagement #Bettercareatlowercost Ariane Daney de Marcillac Arthur Franken Christopher Allen Edward Hanlon Edwin de Graaf Geoff Pardo Henry Zubaida Iskander Shadid Janke Dittmer Joep Muijrers Karthik Bolisetty Marion Pouillard Pieter van der Meer Pommeline Korstanje Richard Wilmot Sonia Hallen Stefan Luzi, PhD Susana Amorim Lopes Tristan Maguet Zosia van Eesteren Besmire Ahmati Dirkjan B. Jan Willem Bakker Ludo Suykerbuyk Dr. Stephanie Mooij Katharina Mono Renee van der Ven

🙌 Además, tenemos el placer de celebrar, conjuntamente, este Día Mundial de la Colangitis Esclerosante Primaria junto a European Liver Patients' Association - ELPA 🤝 📜 Bajo el lema 'Desde España, juntos somos más fuertes' 💪 #CEP #Elpa #PSC