Lumiio Inc.

ATTN: New Alberta-based Business graduates! We are looking for a Business Development Associate to join our remote and dedicated team. Qualified applicants must be: 🟡 Currently based in Alberta and legally allowed to work in Canada 🟡 Must have graduated from a business-related program from an Alberta-based post-secondary either on or after April 1, 2022 Learn more and apply at this link: https://lnkd.in/gF7JnFfb #hiring #businessassociate

📍 Today monuments across Canada are lighting up red to raise awareness for PANS PANDAS! An initiative created by the Inflamed Brain Alliance 🔴 These rare pediatric diseases are marked by a link between the presence of infection and the onset of severe neurological symptoms listed below. Both conditions require the combined efforts of health professionals in both medical and mental health care. Raising awareness is important for patients and their families to find community, and help inspire action to improve diagnosis and treatment protocols. Learn more about the Canada-wide initiative ⤵ #Red4Pans #PANSresearch #PANDASresearch

The launch of FSHD Society ’s BetterLife FSHD digital health platform signifies an important development for people living with the disease across the United States. We were honoured to have partnered with them on developing a fully customized, highly secure and robust platform for the FSHD community. Learn more about the registry’s development: https://zurl.co/MJ4L #CureFSHD #FSHDresearch #BetterLife #DigitalHealth #RealWorldData

We are hiring! Supported by Genome Alberta, if you or someone you know is a recent business graduate from an Alberta post-secondary institution (as of April 1, 2022) then click the link below to learn more and apply 👇 #hiring #digitalhealthjobs #remotework

We take a patient-centred approach to all of the work we do at Lumiio, which means designing digital health programs that are optimized and empowering for patients. This is particularly important when working in rare disease spaces, where patients and their families often need to become their own disease experts. Digital health tools and platforms can help foster global communities for people living with rare diseases, offering support, information, and opportunities to help further research. Our CEO Blaine Penny spoke with the Health Innovation Hub about health innovation in Alberta, and the exciting future of digital health tools. Read the article: https://zurl.co/1epO

This week is World Mitochondrial Disease Week, hosted by MitoCanada to raise awareness, educate and advocate for those living with mitochondrial disease . The organization was co-founded by Blaine Penny along with other families who were also caring for someone with rare a mitochondrial disease. As a part of their Faces of Mito awareness campaign, Blaine provided an updated story on his son Evan and his family's journey in caring for him with his rare mitochondrial disease. Read the story here: https://zurl.co/SFez Lumiio has since worked with MitoCanada to build the patient contact registry, which you can learn more about and access here: https://zurl.co/tZ0D #WorldMitochondrialDiseaseWeek

Today we honour international Myotonic Dystrophy (MD) Awareness Day, a rare neuromuscular disease characterized by progressive weakening in musculoskeletal systems and organs. Due to its rarity, it often takes years for patients to get properly diagnosed. There is also no sure for MD, with medical interventions addressing symptom reduction without the capacity to halt disease progression. This is why medical innovation and research priorities are so important to rare disease communities like MD. New insights can lead to new treatments and opportunities to improve patient outcomes! Monuments around the world will be lit up green in honour of this day 🟢 #MyotonicDystrophy #rarediseaseresearch

September is Thyroid Cancer Awareness Month, one of the most common cancers in the United States. Research initiatives are targeting both treatment and development and early detection, leading to certain cancers being highly treatable and preventable. Digital innovations are leading the pack in development early-detection tools and collecting patient insights and data. Learn more here: https://zurl.co/yLq6 #ThyroidCancerAwarenessMonth

Today is World Duchenne Day, dedicated to raising awareness for the 250,000 patients around the world living with Duchenne Muscular Dystrophy and their families. Like many rare diseases, medical innovation is crucial to improving quality of life for patient communities and discovering new treatments. Regional recruitment for clinical trials, however, can be difficult. This is where digital tools can help! Do you know someone in Canada living with DMD? Check out this clinical trial finder tool, developed in partnership with Defeat Duchenne Canada: https://zurl.co/56jO #WDAD2024 #DMD #rarediseaseresearch

September is Arthritis Awareness Month, raising awareness for the 4.6 million Canadians impacted. Arthritis covers a broad spectrum of diseases and symptoms, affecting patients differently. Research initiatives are important to understand early indicators of disease, improve diagnosis, and target effective treatments. These are the goals for the Mobility for Life Project at the McCaig Institute for Bone and Joint Health at the University of Calgary! All Albertans are encouraged to register and track their bone and joint health to help produce insights for further studies. Find out more here: https://zurl.co/lDwY #ArthritisAwarenessMonth #MobilityForLife #BoneandJointHealth