EFCNI - European Foundation for the Care of Newborn Infants

Every family deserves access to reliable information, support and the tools to give their baby the best possible start in life. However, finding essential information in a family's native language can often be challenging, especially during critical moments like navigating the NICU. That’s why we are proud to introduce Neopedia – a global initiative created in collaboration with parent organisations and healthcare professionals around the world. Neopedia will provide trusted, multilingual resources for families of preterm and sick babies, so no one feels lost on this journey. 🌍 At launch, Neopedia will offer information in English, French, German, Italian and Spanish. More languages to come! On Neopedia, families can access: ✅ Expert-proven, easy-to-understand information ✅ Multilingual support ✅ Advice and insights from a global parent community ✅ Links to national resources for ongoing support This platform is designed to empower parents with the knowledge they need while fostering a global sense of community and reassurance during and after their NICU experience. We invite you to join us in this mission and help spread the word to those who could benefit. Sign up today to stay informed about the launch in Spring 2025 👉 bit.ly/neopedia Our heartfelt thanks to all the amazing parents on the Neopedia Core Expert Group for helping bring this project to life 💜 APREM Bliss Canadian Premature Babies Foundation Bundesverband "Das frühgeborene Kind" e.V. El Bebek Gül Bebek Ilitominon JOIN Miracle Babies Foundation NICU Parent Network ONG Prematuridade.com SomPrematurs SOS Préma Vivere ETS Coordinamento Nazionale delle Associazioni per la Neonatologia XXS - Associação Portuguesa de Apoio ao Bebé Prematuro #Neopedia #NewbornHealth #ParentSupport #NICU

🍂🦠Autumn is in full swing, and another Respiratory Syncytial Virus (RSV) season is just around the corner again. #RSV is the leading cause of bronchiolitis and one of the primary drivers of infant hospitalisations. 👪An RSV infection affects not only the child itself but the entire family, as demonstrated in our #ResQFamily study, which examined the impact of RSV hospitalisations on the health-related quality of life (HRQoL) of families in France, Germany, Italy, and Sweden. 💭Did you know that many parents reported feelings of guilt for not preventing the infection as well as emotional distress due to separation from other family members during the hospital stay? Beyond these emotional challenges, the illness also caused professional disruptions: On average, employed parents missed around 29 hours of work due to their child’s hospitalisation. 📕Our 𝐑𝐞𝐬𝐐 𝐅𝐚𝐦𝐢𝐥𝐲 𝐓𝐡𝐨𝐮𝐠𝐡𝐭 𝐋𝐞𝐚𝐝𝐞𝐫𝐬𝐡𝐢𝐩 𝐀𝐫𝐭𝐢𝐜𝐥𝐞, written by RSV expert 𝐏𝐫𝐨𝐟 𝐂𝐚𝐭𝐡𝐞𝐫𝐢𝐧𝐞 𝐖𝐞𝐢𝐥-𝐎𝐥𝐢𝐯𝐢𝐞𝐫 & EFCNI Head of Scientific Affairs and Research and ResQ Family project manager 𝐃𝐫 𝐂𝐡𝐫𝐢𝐬𝐭𝐢𝐧𝐚 𝐓𝐢𝐬𝐜𝐡𝐞𝐫, highlights why it is important to address the full RSV burden on families so that new #RSVPrevention strategies can shape public health in Europe in the future. 👉Thought Leadership Article: https://lnkd.in/dPRD-VH8 💡More campaign material to raise awarenes for RSV: https://lnkd.in/dgcBZKHn 🤝🔉Looking ahead, it is now essential to ensure that all infants receive timely and uninterrupted access to RSV prevention measures through well-crafted policy recommendations, education for healthcare professionals, and increased #RSVAwareness among parents. #EveryBreathCounts #ResearchProject #Advocacy

🌟 A heartfelt 𝗧𝗛𝗔𝗡𝗞 𝗬𝗢𝗨 to everyone who joined our “𝗦𝗽𝗲𝗮𝗸 𝗼𝘂𝘁 𝘀𝗲𝘀𝘀𝗶𝗼𝗻” 𝗼𝗻 𝗥𝗦𝗩 (Respiratory Syncytial Virus) last week! 💖 Your participation, questions, and comments made the event truly special. Together, we raised awareness and shared valuable insights on protecting our little ones from RSV. 🙏 𝗧𝗛𝗔𝗡𝗞 𝗬𝗢𝗨 also to our wonderful speakers Dina Hediger of “Frühchen Schweiz”, 𝗔𝘀𝘀𝗶𝘀𝘁 𝗣𝗿𝗼𝗳 𝗟𝗶𝗻𝗱𝘀𝗮𝘆 𝗕𝗿𝗼𝗮𝗱𝗯𝗲𝗻𝘁, and 𝗗𝗿 𝗕𝗮𝗿𝗯𝗮𝗿𝗮 𝗣𝗹𝗮𝗴𝗴! Missed the live session or want to revisit the discussion? The full video is now available on our project website. 📺👇 👉 https://lnkd.in/dtNGaeH4 The “Speak out session” is organised under the umbrella of the European Standards of Care for Newborn Health (ESCNH). #RSVAwareness #NeonatalCare #NewbornHealth #ESCNH

🎥 𝐈𝐧𝐭𝐫𝐨𝐝𝐮𝐜𝐢𝐧𝐠 𝐨𝐮𝐫 𝐧𝐞𝐰 𝐯𝐢𝐝𝐞𝐨 𝐨𝐧 𝐬𝐭𝐚𝐧𝐝𝐚𝐫𝐝𝐬 𝐟𝐨𝐫 ”𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐬𝐚𝐟𝐞𝐭𝐲 & 𝐡𝐲𝐠𝐢𝐞𝐧𝐞 𝐩𝐫𝐚𝐜𝐭𝐢𝐜𝐞” 𝐢𝐧 𝐧𝐞𝐨𝐧𝐚𝐭𝐚𝐥 𝐜𝐚𝐫𝐞 Did you know that patient safety not only improves neonatal outcomes, but also reduces stress and turnover for healthcare teams? It can even reduce long-term healthcare costs. 🏥 That‘s why implementing the European Standards of Care for Newborn Health (ESCNH) 𝐟𝐨𝐫 „𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐬𝐚𝐟𝐞𝐭𝐲 & 𝐡𝐲𝐠𝐢𝐞𝐧𝐞 𝐩𝐫𝐚𝐜𝐭𝐢𝐜𝐞“ 𝐢𝐧 𝐧𝐞𝐨𝐧𝐚𝐭𝐚𝐥 𝐜𝐚𝐫𝐞 benefits us all! 🌟 In our latest video, Associate Professor Marije Hogeveen and DDr Eva Schwindt, Chair and Vice Chair of the ESCNH Topic Expert Group for “Patient safety & hygiene practice”, explain what it takes to put these standards into practice. Key points include: 🛡️ 𝐂𝐨𝐦𝐦𝐮𝐧𝐢𝐜𝐚𝐭𝐢𝐨𝐧: Raising awareness of the #ESCNH among healthcare teams, hospitals, and parents 🛡️ 𝐄𝐝𝐮𝐜𝐚𝐭𝐢𝐨𝐧: Developing training plans for healthcare professionals and parents 🛡️ 𝐏𝐫𝐚𝐜𝐭𝐢𝐜𝐚𝐥 𝐬𝐮𝐩𝐩𝐨𝐫𝐭: Providing tools such as a "tips and tricks" guide for everyday implementation 🛡️ 𝐀𝐝𝐯𝐨𝐜𝐚𝐜𝐲: Promoting safety measures, such as regular training for staff The ESCNH unite over 220 experts and parent representatives from more than 30 countries to improve the care of preterm and ill newborns from hospital to school age. 🌍 ✨Let's prioritise patient safety and hygiene practice to protect newborns and healthcare professionals. 🎬 𝐖𝐚𝐭𝐜𝐡 𝐭𝐡𝐞 𝐯𝐢𝐝𝐞𝐨 to see what’s needed to implement these vital standards. 👉 Find out more: https://lnkd.in/dVvakjN4 #NewbornHealth #ForTheBestStartInLife #BetterStandardsBetterOutcomes #act4babies #PatientSafety

😊Our #ResQFamily project is in the final stages and we came together again for one last time with our expert group for an update and summary of the project. Together, we discussed the key findings of the study, reviewed our campaign materials and agreed to continue raising awareness in the future for the comprehensive impact of #RSV on affected families with a united call to action: severe RSV infections must be prevented from the outset by raising awareness for the disease and advancing prevention measures.    🦠With another RSV season just around the corner, it's important to keep the discussion going about our study findings and their relevance for improving future care for affected families.    📄Take a look at our Communication Toolkit, available in all project languages, and download the campaign material for free: https://lnkd.in/dgcBZKHn     👉 Want to learn more about ResQ Family? Visit our project page: https://lnkd.in/e6cJujRk     🙏We would like to thank all experts for their valuable contributions and support throughout the project. Besides, a big thank you to all affected families who participated in the survey and thus laid the foundation for sharing these important insights with the world.  🤝Let’s continue working together towards protecting the health of the most vulnerable and their families!    #RespiratorySyncytialVirus #QoL #QualityOfLife #RSVAwareness #RSVPrevention #EveryBreathCounts #Research  💜Thank you for yesterday's participation:   Katarina Eglin (Bundesverband "Das frühgeborene Kind" e.V.), Brigitte Essers, Audrey R. (SOS Préma), Prof Ulrike Ravens-Sieberer, Dr Philippe Beutels, Prof Catherine Weil-Olivier, Christian Apfelbacher, Prof Luc Zimmermann, Sven Arne Silfverdal ©EFCNI

RSV (Respiratory Syncytial Virus) can be a common cold for adults but can be life-threatening for infants. Hear powerful stories from parents and get expert advice on recognising and preventing RSV in infants. Our speakers: 🌟 Dina Hediger: Mum of preterm twins affected by RSV and founder of our partner parent organisation “Frühchen Schweiz” 🌟 Assist Prof Lindsay Broadbent: Virologist and science communicator 🌟 Dr Barbara Plagg: Researcher and mum of a full-term baby hospitalised due to RSV 📺 Join us live on all our social media channels! The “Speak out session” is organised under the umbrella of the European Standards of Care for Newborn Health (ESCNH).

‼𝐍𝐨𝐰 𝐀𝐯𝐚𝐢𝐥𝐚𝐛𝐥𝐞: 𝐑𝐞𝐬𝐐 𝐅𝐚𝐦𝐢𝐥𝐲 𝐏𝐫𝐞𝐬𝐬 𝐑𝐞𝐥𝐞𝐚𝐬𝐞‼  🫁23 October marks #LungHealthDay2024, which focuses on promoting lung and respiratory health. This day is a good opportunity to raise awareness about the Respiratory Syncytial Virus (RSV), which is one of the leading causes of hospitalisations among infants and children. While most RSV cases are mild, it’s impossible to predict which infants could get seriously ill and end up in hospital. This is because the course of the disease is unpredictable. Moreover, RSV-related hospitalisations can be associated with a significant burden on the entire family, leading to considerable impacts of the health-related quality of life. 🔊On this awareness day, we are more than excited to announce our latest press release, highlighting the significant impact of #RSV on families of hospitalised children, based on findings from the EFCNI #ResQFamily study. 👪Among many other things, the study reveals that hospitalisations of children due to RSV severely affect the emotional well-being of families, with many parents experiencing anxiety and feelings of guilt. Find the press release here: https://lnkd.in/gsEFe5eH 🤝💙Let’s work together for the lungs of those most vulnerable! Increased awareness of RSV prevention measures, such as the latest STIKO recommendation in Germany for passive immunisation of children under two years of age, are crucial steps in preventing long-term complications. #RSVAwareness #EveryBreathCounts #RSVPrevention #PreventionIsKey © Shutterstock

💜 𝐓𝐡𝐞 𝐤𝐞𝐲 𝐫𝐨𝐥𝐞 𝐨𝐟 𝐡𝐞𝐚𝐥𝐭𝐡 𝐞𝐝𝐮𝐜𝐚𝐭𝐢𝐨𝐧 𝐢𝐧 𝐞𝐦𝐩𝐨𝐰𝐞𝐫𝐢𝐧𝐠 𝐟𝐚𝐦𝐢𝐥𝐢𝐞𝐬 🗝️ In light of 𝐍𝐚𝐭𝐢𝐨𝐧𝐚𝐥 𝐇𝐞𝐚𝐥𝐭𝐡 𝐄𝐝𝐮𝐜𝐚𝐭𝐢𝐨𝐧 𝐖𝐞𝐞𝐤 in the United States, it is crucial to acknowledge the fundamental role of health literacy in advancing health equity. For parents of infants born preterm, a thorough understanding of neonatal care is essential to manage the complexities of their child's health journey. Acquiring knowledge about the unique needs of preterm babies transforms daunting experiences into manageable ones, facilitating informed decision-making and giving families confidence. EFCNI is committed to providing families with essential resources and guidance that enhance their understanding and promote empowerment throughout their experience. 👶🏽 Advocacy for health literacy as a fundamental component of family support is critical to ensuring that every family has access to the knowledge they need to thrive. 💪 ➡️ Access resources on pregnancy and preterm birth here: https://lnkd.in/dRekFTq5 #NationalHealthEducationWeek #HealthLiteracy #PretermBabies #BornTooSoon #EFCNI

🚨 Join us tomorrow, 𝟑 𝐎𝐜𝐭𝐨𝐛𝐞𝐫 𝐚𝐭 𝟒 𝐩𝐦 𝐂𝐄𝐓, for an impactful “𝐒𝐩𝐞𝐚𝐤 𝐨𝐮𝐭 𝐬𝐞𝐬𝐬𝐢𝐨𝐧” 𝐨𝐧 𝐑𝐒𝐕 (Respiratory Syncytial Virus)! Hear from 🎤 Dina Hediger, a mother of preterm twins affected by RSV and founder of our partner parent organisation "Frühchen Schweiz"; 🎤 𝐀𝐬𝐬𝐢𝐬𝐭 𝐏𝐫𝐨𝐟 𝐃𝐫 𝐋𝐢𝐧𝐝𝐬𝐚𝐲 𝐁𝐫𝐨𝐚𝐝𝐛𝐞𝐧𝐭, a virologist and science communicator; and 🎤 𝐃𝐫 𝐁𝐚𝐫𝐛𝐚𝐫𝐚 𝐏𝐥𝐚𝐠𝐠, a researcher and mother of a full-term infant hospitalised due to RSV. This session will provide invaluable insights into the symptoms, prevention, and broader impact of RSV on infants. 📅 Don’t miss this opportunity to engage with experts and learn how we can enhance neonatal care.𝐓𝐮𝐧𝐞 𝐢𝐧 𝐥𝐢𝐯𝐞 on all our social media channels. The “Speak out session” is organised under the umbrella of the European Standards of Care for Newborn Health (ESCNH). #RSVAwareness #NeonatalCare #NewbornHealth #ESCNH

🫶It was a pleasure to attend the #EAPS2024 in beautiful #Vienna! 4 days of networking & exchanging knowledge with leading researchers from around the world in the field of #paediatrics are behind us and we'll take home lots of inspiration & food for thought. 🤓 ✨𝕆𝕦𝕣 𝕙𝕚𝕘𝕙𝕝𝕚𝕘𝕙𝕥𝕤: Meeting our partners on-site is always a pleasure! 😊Besides, EFCNI’s Silke Mader and Prof. Luc Zimmermann chaired a scientific session on #preterm infant care with impressive presentations of Dr Agnes Linner in the field of #SkinToSkin care and #KMC, as well as Dr Lukas Mileder on the topic of cord management and #thermoregulation. Furthermore, Prof. Zimmermann presented in the #EAPS poster session perspectives of #HCPs & parents regarding the current state of eleven core topics in #PretermCare and revealed that NICU design, follow-up care and IFCDC are urgent areas that need improvement in the future through enhanced collaboration. 🙏We are already looking forward to the next EAPS Congress and would like to thank everyone involved for the fantastic programme on site. Goodbye Vienna! #ThankYou #CongressSeason #Paediatrics #Neonatology