Resolve Global Health

A newborn in Australia was diagnosed with a rare genetic disease in just 48 hours - a process that once took years! Thanks to whole-genome sequencing, doctors were able to intervene before symptoms worsened, saving a life. This is the reality for a growing number of high-income countries, where genomic technology is becoming a first-line diagnostic tool. But across Africa, scientists like ThankGod Ebenezer are still working to build local sequencing capacity—so patients don’t have to rely on expensive, overseas labs. 🌍 Globally, the challenge remains: who gets access, and who gets left behind? 📖 Read our latest article by Paul Adepoju to know more: https://lnkd.in/dqsfh_uz #Genomics #PrecisionMedicine #RareDiseases #GlobalHealth

Yesterday, we brought together global rare disease leaders and advocates for a roundtable on investing in rare diseases in LMICs. The discussion underscored the urgency of scaling investment, advancing policy commitments, and fostering cross-sector collaboration to strengthen rare disease care—especially in LMICs, where access remains a challenge. A heartfelt thank you to Alexandra Heumber Perry, CEO of RARE DISEASES INTERNATIONAL, for expertly moderating the conversation and to Amgen and Sean Lybrand for their continued support in driving meaningful discussions on pressing global health issues. 📥Explore the key takeaways from the discussion and dive into our latest special report, Rethinking Rare Diseases: https://lnkd.in/dc4VrKyZ #RareDiseases #GlobalHealth Trudy Nyakambangwe Christine Mutena Prasanna Shirol Angela Tufvesson Junu Shrestha Christhyl Ceriche (She/Her/Ella) Alexandra Lianes

🧬 For many people living with rare diseases in Zimbabwe, diagnosis is a lifelong struggle. With no national rare disease strategy, limited access to genomic testing, and scarce government support, millions remain undiagnosed and untreated. As founder of Rare Disorders Zimbabwe, Trudy Nyakambangwe is working to change this—advocating for: ✅ A national rare disease registry ✅ Universal access to genomic testing ✅ Greater policy support for rare disease patients 📢 Early diagnosis saves lives. Without investment in genomics, Africa will continue to lag behind in rare disease care. 📖 Read Trudy's full op-ed: https://lnkd.in/gWgcFPk9 #RareDiseaseAdvocacy #Genomics #HealthEquity #AfricaHealth

✨ 𝗖𝗲𝗹𝗲𝗯𝗿𝗮𝘁𝗶𝗻𝗴 𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗪𝗼𝗺𝗲𝗻’𝘀 𝗗𝗮𝘆 Today, we mark International Women’s Day under this year’s UN theme: For ALL Women and Girls: Rights. Equality. Empowerment. While progress has been made—from more women in leadership to ground breaking research and digital innovations in healthcare—there’s still a long road to global gender equity. Closing the gap requires urgent, sustained action. 💡 𝗘𝘅𝗽𝗹𝗼𝗿𝗲 𝗼𝘂𝗿 𝘁𝗼𝗽 𝗿𝗲𝗮𝗱𝘀 𝗳𝗼𝗿 𝗜𝗪𝗗 𝘁𝗵𝗶𝘀 𝘆𝗲𝗮𝗿: 🔹 𝘔𝘦𝘥𝘪𝘤𝘢𝘭 𝘨𝘢𝘴𝘭𝘪𝘨𝘩𝘵𝘪𝘯𝘨 𝘵𝘢𝘬𝘦𝘴 𝘢 𝘵𝘰𝘭𝘭 𝘰𝘯 𝘸𝘰𝘮𝘦𝘯’𝘴 𝘩𝘦𝘢𝘭𝘵𝘩 https://lnkd.in/emV25zRs 🔹 𝘙𝘦𝘤𝘰𝘨𝘯𝘪𝘴𝘪𝘯𝘨 𝘨𝘦𝘯𝘥𝘦𝘳 𝘥𝘪𝘴𝘱𝘢𝘳𝘪𝘵𝘪𝘦𝘴 𝘪𝘯 𝘢𝘤𝘤𝘦𝘴𝘴𝘪𝘯𝘨 𝘩𝘦𝘢𝘭𝘵𝘩𝘤𝘢𝘳𝘦 https://lnkd.in/eCY-286n  🔹 𝘊𝘢𝘯 𝘧𝘦𝘮𝘵𝘦𝘤𝘩 𝘦𝘳𝘢𝘴𝘦 𝘨𝘦𝘯𝘥𝘦𝘳 𝘣𝘪𝘢𝘴 𝘪𝘯 𝘮𝘦𝘥𝘪𝘤𝘢𝘭 𝘤𝘢𝘳𝘦? https://lnkd.in/eh5_f-BG 🔹 𝘕𝘰𝘳𝘮𝘢𝘭𝘪𝘴𝘪𝘯𝘨 𝘵𝘩𝘦 𝘤𝘭𝘪𝘵𝘰𝘳𝘪𝘴 𝘢𝘯𝘥 𝘪𝘵𝘴 𝘳𝘰𝘭𝘦 𝘪𝘯 𝘸𝘰𝘮𝘦𝘯’𝘴 𝘴𝘦𝘹𝘶𝘢𝘭𝘪𝘵𝘺 https://lnkd.in/gZSsnUG7 #InternationalWomensDay #AccelerateAction #WomensRights #GenderEquity

🌍 Over 300 million people worldwide live with a rare disease. Yet, in healthcare policy, they remain an afterthought. That needs to change. For decades, people living with rare diseases (PLWRD), alongside researchers and advocates, have fought for recognition, diagnosis, and access to treatment. Now, the World Health Assembly (WHA) Resolution is calling for a global framework to make rare diseases a health priority. 🚨 The reality: 🔹 95% of rare diseases have no approved treatment 🔹 Diagnosis takes an average of 4+ years, even in wealthy countries 🔹 The financial and emotional burden is devastating for families Alexandra Heumber Perry, CEO of RARE DISEASES INTERNATIONAL, is leading the charge. With support from Egypt, Spain, France, Brazil, and more, this resolution demands that the World Health Organization create a Global Action Plan on Rare Diseases—a roadmap with clear targets and accountability to drive real change. 💡 The message is clear: Universal Health Coverage must include people with rare diseases. Now is the time to shift the paradigm. 📖 Read the full article by Alexandra Heumber Perry: https://lnkd.in/eRqSjkt4 #RareDiseases #HealthForAll #GlobalHealth #UniversalHealthCoverage #PolicyChange

The window to achieve Universal Health Coverage (UHC) by 2030 is narrowing, and urgent action is needed. At the 2025 Africa Health Agenda International Conference (AHAIC), we’re joining Amgen at their session: 📢 From Crisis to Coverage: Achieving UHC by 2030 📅 Today, March 3 | ⏰ 11:30 CAT In addition to insightful discussions during the session, we'll also be sharing our UHC special report, ‘The Path to Universal Health Coverage’ which explores successes and barriers to achieving a healthier future for all. If you're attending AHAIC in Kigali, visit us in room AD11 for a free copy of our special report and to engage in this crucial conversation. You can also join the session virtually: https://lnkd.in/dRGsznVR

🚨 New Report Launch: Rethinking Rare Diseases – The Road to Recognition For the over 300 million people living with rare diseases, navigating healthcare systems often means long waits for answers, unmet needs, and limited and often expensive treatment options. Launching today on Rare Disease Day, our latest special report, supported by Amgen, explores how technology, advocacy, and policy shifts are shaping rare disease care. With the WHO Rare Disease Resolution advancing to a vote at the World Health Assembly (WHA) in 2025, this is a crucial moment to push for lasting progress in rare disease recognition, funding, and access to care. Read the report here: https://lnkd.in/dc4VrKyZ

This week, we’re spotlighting three must-read stories on how technology is reshaping healthcare - and the challenges we still need to overcome. From AI transforming diagnoses, to blockchain’s surprising role in global health funding, to femtech tackling medical bias, these are the bold ideas pushing healthcare into the future. 1️⃣ The brave new era of medical expertise fortified by machine learning. 🔗 https://bit.ly/41eVmUT 2️⃣ Can blockchain unlock better funding for NCDs? 🔗 https://bit.ly/4aZkOkk 3️⃣ Can femtech erase gender bias in medical care? 🔗 https://bit.ly/4k0VSx5 Read, share, and let’s talk about the future of healthcare, because innovation only works when it reaches those who need it most. Link in bio for our website, and happy reading! #ResolveRecommends #HealthTech #AIinHealthcare #BlockchainForGood #Femtech

This #WorldCancerDay, we're spotlighting three powerful reads that expose the cracks in cancer care, and what needs to change. From deadly misdiagnoses, to lack fo diagnosis, to why some countries still don't have a real plan for cancer, these are the stories we can't afford to ignore. 1️⃣ Closing the Leukaemia care gap for Latino children. 🔗 https://lnkd.in/eDyJQ4Jg 2️⃣ Why skin cancer remains under-diagnosed for people of colour. 🔗 https://lnkd.in/dRUGwrke 3️⃣ A goal without a plan is just a wish - the importance of national cancer care plans. 🔗 https://lnkd.in/e38UZHQV Read, share, and let's push for better care - because cancer doesn't wait, and neither should we. #CloseTheCareGap

In a world where C-section rates are climbing - sometimes even exceeding 80% in some regions - many women are being subjected to unnecessary medical interventions. This not only escalates risks but also raises healthcare costs. The World Health Organization (WHO) reports that midwives, trained to the highest global standards, could meet up to 90% of essential health needs across sexual, reproductive, and maternal care. Midwifery care reduces C-sections by 52%, improves outcomes for both mothers and babies, and enhances overall satisfaction. Countries like Uganda are already showing impressive results with midwifery-led models of care. With evidence backing this approach, it’s time to integrate midwifery into the education and health systems worldwide. Read Lisa Nainggolan's full article on why midwifery is essential to the future of global healthcare here: https://lnkd.in/e67JPPyK #Midwifery #HealthSystems #UHC #MaternalHealth #GlobalHealth