HRA PHARMA RARE DISEASES

It's #WorldFoodDay and today we reflect on the vital role that nutritious, safe, and available food plays in shaping healthier, stronger communities. This year’s theme, “Right to Food for a Better Life and a Better Future,” reminds us that food is not just a need – it’s a fundamental human right. For individuals living with rare conditions like Cushing’s syndrome and adrenocortical carcinoma, diet plays an essential role in managing symptoms and overall health. Let’s come together to raise awareness, support research, and ensure that everyone, including those with rare diseases, has access to the right nutrition for a healthier future. We’re pleased to share that we are now part of ESTEVE. For more information, follow us on the profile below ESTEVE. #RightToFood #BetterFuture #AdrenocorticalCarcinoma #CushingsSyndrome #HRAPharmaRareDiseases #ESTEVE #WereNowESTEVE

This year, the French Society of Endocrinology celebrates its 40th annual Congress #SFE24, which kicks off today (16–18 October)! With a dynamic programme that covers both clinical aspects of endocrinology, including diabetes and metabolism, and fundamental research, we have an exciting few days in store. We would like to invite you to our two sponsored symposia! We look forward to connecting with experts in the field and hope you can join us. Cette année, la Société Française d'Endocrinologie #SFE24 célébre La 40ème édition de son congrès annuel, qui démarre aujourd'hui (16-18 octobre)! Avec un programme dynamique qui couvre à la fois les aspects cliniques de l'endocrinologie, comprenant le diabète et le métabolisme, et la recherche fondamentale nous avons quelques jours passionnants en perspective. Nous vous invitons à deux symposiums sponsorisés à ne pas manquer ! Nous sommes impatients de rencontrer des experts dans ce domaine et espérons que vous pourrez vous joindre à nous. We’re pleased to share that we are now part of ESTEVE. For more information, follow us on the profile below ESTEVE. #CushingsSyndrome #AdrenocoticalCarcinoma #HRAPharmaRareDiseases #ESTEVE #WereNowESTEVE

In the third video of our Pituitary Awareness Month series, we delve into the fundamental question: “What is Cushing’s Syndrome?” This week, Prof. Iacopo Chiodini breaks down the complexities of #CushingsSyndrome, and why it’s so closely tied to pituitary health. Cushing’s syndrome is often caused by pituitary tumours, which disrupt hormone balance and lead to chronic excess cortisol production. Watch the video here https://lnkd.in/ejBWzCmK to learn more and stay tuned for our final post in this series! We’re pleased to share that we are now part of ESTEVE. For more information, follow us on the profile below ESTEVE. #RareDiseases #CushingsCommunity #HRAPharmaRareDiseases #ESTEVE #WereNowESTEVE

The Joint Irish-UK Endocrine Meeting 2024 kicks off in Belfast today! We're starting strong with an opening keynote followed by an exciting session, "Approaching Artificial Intelligence with Intelligence," exploring AI's role in endocrinology. Don’t forget to join our interactive sponsored symposium over lunch 12:35–13:35, in Meeting Room 2, where Dr Steven Hunter will be chairing a session on clinical case studies of Cushing’s syndrome. We’re eager to connect and exchange insights with you throughout the event and you can find us at booth #6. Don’t miss the opportunity to explore the latest developments in the field. See you there! We’re pleased to share that we are now part of ESTEVE. For more information, follow us on the profile below ESTEVE. #IrishUKEndocrineMeeting2024 #CushingsSyndrome #HRAPharmaRareDiseases #ESTEVE #WereNowESTEVE

¡Nos complace anunciar la Puesta al Día sobre enfermedades raras en endocrinología, patrocinada por HRA Pharma Rare Diseases (is now part of Esteve), durante el 65 Congreso Nacional de la Sociedad Española de Endocrinología y Nutrición (SEEN2024), un encuentro presencial en Oviedo! Si Usted es un profesional sanitario inscrito al congreso, le invitamos a participar en la puesta al día titulada «Manejo efectivo del carcinoma adrenocortical». Fecha: jueves, 17 de octubre de 2024 Hora: 19:00-19:30 Lugar: Palacio de Exposiciones y Congresos de Oviedo, Sala 1. Moderadoras: - Dra. Nuria Valdés | Endocrinóloga - Dra. Paula Jiménez Fonseca | Oncóloga médica Ponente: - Dr. Javier Aller | Endocrinólogo Este espacio ofrecerá una visión práctica multidisciplinar sobre en el manejo del carcinoma adrenocortical para los profesionales que tratan pacientes afectados por este tipo de tumor. ¡Nos vemos en Oviedo para seguir avanzando juntos en el manejo de enfermedades raras! We are pleased to announce the Update on Rare Diseases in Endocrinology, sponsored by HRA Pharma Rare Diseases (is now part of Esteve), during the 65th National Congress of the Spanish Society of Endocrinology and Nutrition (SEEN2024), a face-to-face meeting in Oviedo! If you are a healthcare professional registered for the congress, we invite you to participate in the update entitled ‘Effective management of adrenocortical carcinoma. Date: Thursday, 17th October 2024 Time: 19:00-19:30 Venue: Palacio de Exposiciones y Congresos de Oviedo, Room 1. Moderators: - Dr. Nuria Valdés | Endocrinologist - Dr. Paula Jiménez Fonseca | Medical oncologist Speaker: - Dr. Javier Aller | Endocrinologist This space will offer a practical and multidisciplinary view on the management of adrenocortical carcinoma for physicians who treat patients affected by this type of tumour. See you in Oviedo to continue advancing together in the management of rare diseases! #HRApharmaRareDiseases #Esteve #Devotedtotherare #SEEN2024 #CarcinomaAdrenocortical #Endocrinología #Oncología #WereNowESTEVE

¡Participe en el simposio satélite sobre enfermedades raras en endocrinología, patrocinado por HRA Pharma Rare Diseases (is now part of Esteve), durante el 65 Congreso Nacional de la Sociedad Española de Endocrinología y Nutrición (SEEN2024), un encuentro presencial en Oviedo! Si Usted es un profesional sanitario inscrito al congreso, le invitamos a participar en el simposio titulado «Juntando las piezas del puzzle: manejo de las alteraciones del funcionamiento del eje HPA», donde un panel de expertos nacional e internacional discutirá los desafíos del funcionamiento del eje hipotálamo-hipofisario-adrenal (HPA).   Fecha: miércoles, 16 de octubre de 2024 Hora: 18:30-20:00         Lugar: Palacio de Exposiciones y Congresos de Oviedo, Sala 6.   El evento estará moderado por la reconocida Dra. Elena Valassi (España), y contará con las ponencias de los expertos:   -         Dr. Linus Haberbosch (Alemania). -         Dra. Concepción Blanco (España)   Un espacio ineludible para ampliar conocimientos sobre el manejo de las alteraciones del eje HPA e intercambiar experiencias con reconocidos expertos de la endocrinología. ¡Nos vemos en Oviedo!   #HRAPharmaRareDiseases #Esteve #Devotedtotherare #SEEN2024 #CarcinomaAdrenocortical #Endocrinología #WereNowESTEVE   We are looking forward to your participation in the satellite symposium on rare diseases in endocrinology, sponsored by HRA Pharma Rare Diseases (is now part of Esteve), during the 65th National Congress of the Spanish Society for Endocrinology and Nutrition (SEEN2024), a face-to-face meeting in Oviedo!   If you are a health professional registered for the congress, we invite you to participate in the symposium entitled ‘Putting the pieces of the puzzle together: management of the alterations of HPA functioning’, where a panel of national and international experts will discuss the challenges of the hypothalamic-pituitary-adrenal (HPA) axis.   Date: Wednesday, 16th October 2024 Time: 18:30-20:00        Place: Oviedo Congress and Exhibitions Center, Room 6.   The event will be moderated by the renowned Dr Elena Valassi (Spain), and will feature presentations by the following experts:   -      Dr Linus Haberbosch (Germany) -      Dr Concepción Blanco (Spain)   An unmissable to broaden knowledge on the management of HPA axis disorders and exchange experiences with recognized experts in endocrinology. See you in Oviedo!   #HRAPharmaRareDiseases #Esteve #Devotedtotherare #SEEN2024 #CarcinomaAdrenocortical #Endocrinología #WereNowESTEVE

On World Mental Health Day, we’re shining a light on the mental health challenges faced by individuals living with rare conditions like Cushing’s syndrome. Beyond the physical symptoms, Cushing’s syndrome can bring emotional struggles such as anxiety, depression, and feelings of isolation, which are often just as difficult to manage. This year’s theme focuses on prioritising mental health in the workplace. We encourage you to make small, mindful changes to your daily routine to help support your well-being. Incorporating gentle yoga or other exercises can be particularly beneficial for managing stress, especially for those with Cushing’s syndrome. To help you get started, check out this exercise guide created specifically for patients with Cushing’s syndrome. https://lnkd.in/eBJN6RCN Let’s make mental health a priority, today and every day. #WorldMentalHealthDay #MentalHealthMatters #CushingsSyndrome #HRAPharmaRareDiseases #ESTEVE #WereNowESTEVE

On World Mental Health Day, we’re shining a light on the mental health challenges faced by individuals living with rare conditions like Cushing’s syndrome. Beyond the physical symptoms, Cushing’s syndrome can bring emotional struggles such as anxiety, depression, and feelings of isolation, which are often just as difficult to manage. This year’s theme focuses on prioritising mental health in the workplace. We encourage you to make small, mindful changes to your daily routine to help support your well-being. Incorporating gentle yoga or other exercises can be particularly beneficial for managing stress, especially for those with Cushing’s syndrome. To help you get started, check out this exercise guide created specifically for patients with Cushing’s syndrome. https://lnkd.in/eBJN6RCN Let’s make mental health a priority, today and every day. We’re pleased to share that we are now part of ESTEVE. For more information, follow us on the profile below ESTEVE. #WorldMentalHealthDay #MentalHealthMatters #CushingsSyndrome #HRAPharmaRareDiseases #ESTEVE #WereNowESTEVE

Join us next week for two insightful symposiums where we delve into adrenocortical carcinoma (ACC) and Cushing’s syndrome at the #SFECongress! These sessions will focus on the latest research, treatment options, and a multidisciplinary approach to care. We’re looking forward to connecting with healthcare professionals, researchers, and patient advocacy groups to continue driving progress in these challenging disease areas. Stay tuned for updates from the congress! Rejoignez-nous la semaine prochaine pour nos deux symposiums où nous approfindissons la thématique du le carcinome corticosurrénalien et du syndrome de Cushing au #SFECongress ! Ces sessions se concentreront sur les dernières recherches, les traitements innovants et une approche multidisciplinaire des soins. Nous sommes impatients d'échanger avec des professionnels de santé, les chercheurs et des associations de patients pour continuer à faire contribuer au progrès dans ces domaines thérapeutiques compliqués. Restez à l'écoute des nouvelles du congrès ! We’re pleased to share that we are now part of ESTEVE. For more information, follow us on the profile below ESTEVE. #EndocrineDisorders #AdrenocorticalCarcinoma #RareDiseases #CushingsSyndrome #HRAPharmaRareDiseases #ESTEVE #WereNowESTEVE

Each Cushing's syndrome patient’s journey is unique, but many face a long and challenging road to diagnosis. Misunderstood symptoms often lead to multiple doctor visits and delayed treatment. As part of Pituitary Awareness Month, we're shedding light on how disruptions in cortisol circadian rhythm often triggered by pituitary tumours, can seriously impact health. In part two of our four-part video series for #PituitaryAwarenessMonth, Prof. Ashley Grossman delves into the impact of disrupted cortisol circadian rhythm on health, with a focus on Cushing’s syndrome, and how hormone imbalances can throw off the body’s natural rhythms. Watch the full video here: https://lnkd.in/ejBWzCmK Are you curious to learn more about #CushingsSyndrome? Visit our website and complete our Cushing’s syndrome word search to boost your knowledge and learn more! https://lnkd.in/eCBQ489x Stay tuned for part three next week, where Prof. Iacopo Chiodini will answer the fundamental question: “What is Cushing’s Syndrome?” You won’t want to miss it! We’re pleased to share that we are now part of ESTEVE. For more information, follow us on the profile below ESTEVE #RareDiseases #CushingsCommunity #HRAPharmaRareDiseases #ESTEVE #WereNowESTEVE