Ενώνουμε τις φωνές μας για να στηρίξουμε όσους ζουν με Παροξυσμική Νυχτερινή Αιμοσφαιρινουρία (PNH) και τις οικογένειές τους. 12 Οκτωβρίου 2024 – Παγκόσμια Ημέρα Παροξυσμικής Νυχτερινής Αιμοσφαιρινουρίας (PNH). #sobigreece #PNH #rarediseases
Today, we unite to raise awareness for Paroxysmal Nocturnal Hemoglobinuria (PNH), a rare and life-threatening blood disorder. PNH affects the red blood cells, leading to severe symptoms and complications. This year, we are proud to highlight the Stories of Strength campaign, created in collaboration with people living with PNH. This campaign shines a light on the incredible resilience and courage of those facing this disease. Their stories continue to inspire us to advocate for better treatments and more support. Anna’s fictionalised story is inspired by a real person living with PNH. There were days when Anna felt a positive future was out of reach. However, she shared, “I was never alone. With the support of my doctors, friends, and family, I found an inner strength, and joy has returned to my life.” Visit https://lnkd.in/d2tVWfBh to hear Anna share her journey from diagnosis to treatment and how she reignited her strength and passions. Let’s come together to support those living with PNH and their families. Together, we can make a difference! #Sobi #RareDiseases #PNHAwareness2024 #Storiesofstrength