Iraqi Lipid Clinics Network (ILCN)

FCS Awareness Day 2024 is just two weeks away! Mark your calendars for Friday, November 1 as we unite to raise awareness for Familial Chylomicronaemia Syndrome (FCS), a rare and challenging familial lipid disorder. For the second year, we’re proud to partner with Action FCS to highlight the under-recognized impact of #FCS on patients, their families, and communities. 🧬 What is FCS? FCS is a genetic disorder affecting between 1 in 100,000 to 1 in 1,000,000 people worldwide. Those living with FCS can't break down fats properly, leading to dangerously high #triglyceride levels and severe health risks, including #pancreatitis, #CVD, #diabetes and more. Managing FCS means following an extremely low-fat diet—less than 10-20 grams of fat per day! 😮 NO healthy avocado 🥑 , nuts 🥜 nor olive oil allowed! On FCS Awareness Day, we will be releasing a special pre-recorded webinar featuring insights from FCS Patient Ambassadors Helga Davidson and Michelle Sibley and Professor Antonio Gallo, covering the latest in FCS research and therapies. 💡 👊 Want to truly understand what living with FCS feels like? Take the #FCS10gFatChallenge! For one day, try eating only 10g of fat (yes, that means no olive oil, no avocados, and no nuts), just like FCS patients do every single day. Here’s how to participate: 1️⃣ Start checking food labels now to get ready. You might be shocked at the fat content of everyday items! 2️⃣ Document your experience with photos or videos and tag us @FHEuropeFoundation and @ActionFCS using #FCS10gFatChallenge and #FCSAware2024. 3️⃣ Nominate others to take the challenge too, and help raise awareness for this rare condition. 🌟 What’s special this year? 💊 New therapies are offering hope for FCS patients! 🙌 📢 Our FCS advocacy community has grown stronger, with more voices amplifying awareness globally. 📊 We’re presenting findings from the FCS Burden of Disease Study at International Atherosclerosis Society (IAS), shedding light on the patient experience. Plus, we’re hosting an FCS Patient Advisory Board to keep strengthening awareness and advocacy efforts with one of our industry partners Arrowhead Pharmaceuticals. Stay tuned for more updates, FCS-friendly recipes, and challenge tips in the days ahead. If you're committed and want a custom social media visual, comment below "I want to take the #FCS10grFatChallenge!" Let’s make FCS Awareness Day 2024 the most impactful one yet! 💙 #FCSAwarenessDay2024 #FCS10gFatChallenge #FCSAware2024 #raredisease #Eurordis #RDI EURORDIS-Rare Diseases Europe National Organization for Rare Disorders RARE DISEASES INTERNATIONAL

We love to see the support for the FH Awareness Day coming from around the world! Thank you for joining the international community raising awareness about familial high cholesterol, whether a patient, a doctor, a researcher, or an organisation, young or adult…. This is what a ambassadors look like! Have you updated your frame, yet? Share to show support! Visit https://lnkd.in/eHCaDABW and look for the frame link. Need help? Ping us and we will help you!

What if the European Cardiovascular Health Plan had a chance to inspire other parts of the world to shift from CVD to CVH, where heath and quality of life are the ultimate goal, and where CVD prevention is prioritised and equitable care is a reality. Listen to Prof. Mutaz Al-Sabah from Iraqi Lipid Clinics Network (ILCN), a great advocate anpioneer in familial lipid disorders education, screening, detection and management in the ME and Africa, advocating for the Cardiovascular Health Plan implementation in Europe as a blueprint for other countries..

The prevailing perception is that high cholesterol is caused by unhealthy, high in fat diet, lack of physical activity and lifestyle choices. Most people don't know, including doctors, that high cholesterol levels can be caused by specific genes, which we inherit from our parents. Learn more: https://lnkd.in/ePmrrj5c LIKE👍🏼, SHARE 🔁, COMMENT💬 and help us RAISE AWARENESS! #FHAwarenessDay #FHAware2024 #PreventThePreventable #FindFH #PerfectoFH #PerMedFH

International Lipid Expert Panel (ILEP) meeting today in London presided by Prof Maciej Banach It was really fruitful discussion and great meeting