ERN ReCONNET

ERN ReCONNET will organize its 2nd International Congress that will be held on April 9th - 11th, 2025 in the stunning Prague (Czech Republic). Save the date and join us for this unique event where knowledge, awareness and a patient-centred approach will be at the cornerstones of our event as it has been been since the beginning of the ERN ReCONNET activity more than five years ago. The program reflects the ERN mission as it covers important topics in the diagnosis and management of rare and complex diseases such epidemiology, diagnosis and clinical management, biobanking and registries, quality. The program has been developed to integrate the perspective of different stakeholders involved in rare diseases management. For this reason we expect that the congress will be of interest not only for specialists but also for people living with a rare disease, caregivers, clinicians, policy makers, industry, and will represent an opportunity for rare and complex connective tissue diseases community to meet, work together and find new inspirations for research, diagnosis and therapy. Registration is OPEN and special fees are available. Abstract submission is also open, the deadline is Nov. 25th! We look forward to welcoming you all in Prague! Check the link for all info and details: bit.ly/3Rdb3Xf

Here is a picture from Agata Matusiewicz working at the National Institute of Geriatrics, Rheumatology and Rehabilitation in Warsaw Poland (ERN ReCONNET Full Member), who visited the team of Prof. Ricard Cervera in Barcelona (ERN ReCONNET Full Member) as part of our ERN ReCONNET Exchange Programme. The Exchange Programme is organised by Prof. Hachulla and his team in Lille and is aims at sharing knowledge and encouraging collaboration among healthcare professionals in European Reference Networks. Find out more info on our Exchange Programme on our website: https://lnkd.in/d4iBj9Np

🎓 Register now for the next ERN RECONNET webinar “Treatment of systemic sclerosis-associated interstitial lung disease (SSc-ILD): where do we stand in 2024?” It will take place on the 06th of November 2024, at 16 CET ✍️ Register now at this link: bit.ly/3zhob7L The speakers for this webinar will be Prof David Launay and ePAG Ilaria Galetti, moderated by Prof Madelon Vonk and Prof. Marco Matucci Cerinic. 💡 This webinar is dedicated to Systemic Sclerosis. 🎯 The target audience will be healthcare professionals. ⚙️ ERN ReCONNET resources on Systemic Sclerosis are freely available and can be seen here: https://lnkd.in/d--hc_RD

🎓 The latest ERN ReCONNET webinar “Screening and treatment of systemic sclerosis-associated PAH: where do we stand in 2024?” is now available on our YouTube channel!   🔗 You can access the webinar here: https://lnkd.in/dB6rx3uf   Guest speakers were Prof. Eric Hachulla from Lille University Hospital, France and Prof. Olivier Sitbon from Hôpital Bicêtre in Le Kremlin - Bicêtre, France, moderated by Prof. Smith from Ghent University.   This ERN ReCONNET webinar brings together 2 European experts familiar with the subject of Pulmonary Arterial Hypertension (PAH) and systemic sclerosis, Prof. Eric Hachulla and Prof. Olivier Sitbon. Professor Eric Hachulla provides an update on the current classification and definition of Pulmonary Arterial Hypertension (PAH) and a critical analysis of the various screening methods (benefits and limitations) based on international recommendations. Professor Olivier Sitbon discusses the various current and future therapeutic strategies. ⚙️ SSc resources, info, and links: https://bit.ly/486iyX8 🎥 ALL webinars can be found here: https://bit.ly/3saCUOg 📰 Subscribe to our newsletter: bit.ly/44wk7La 🌐 More info: reconnet.ern-net.eu/

🎓 Today at 18 CET we will host the next ERN RECONNET webinar “Exploring the Impact of Relapsing Polychondritis on Quality of Life” ✍️ Make sure you’re registered following this link: bit.ly/RP_QoL_Arnaud The speakers for this webinar will be Prof. Laurent Arnaud, moderated by Prof Marta Mosca. 💡 This webinar is dedicated to Relapsing Polychondritis. 🎯 Target audiences are patients, caregivers, and healthcare professionals. ⚙️ You can find ERN ReCONNET resources on Relapsing Polychondritis here: https://lnkd.in/dNFvZS_U 🗞 Newsletter subscription: bit.ly/44wk7La 💻 All webinars can be seen here: bit.ly/3DxXDhi #ERNReCONNET #rheumatology #YouTubeChannel #ERNs #rarediseases #healthcare #europeanreferencenetwork #experts #webinar #educationandtraining #ERNReCONNETWebinar #healthcareprofessionals #ernreconneteducation #RelapsingPolychondritis

Are you or a loved one affected by Relapsing Polychondritis (RP)? Join us TOMORROW at 18 CET for an insightful webinar by Prof Laurent Arnaud that focuses on the health-related quality of life (QoL) challenges faced by RP patients. Register now at this link: https://lnkd.in/dMy-CRbP

🎓Register now for the new ERN ReCONNET webinar: "Exploring the Impact of Relapsing Polychondritis on Quality of Life" on 22nd October at 18 CET Are you or a loved one affected by Relapsing Polychondritis (RP)? Join us for an insightful webinar that focuses into the health-related quality of life (QoL) challenges faced by RP patients. Based on the ERN ReCONNET RP-QoL study, this event will highlight key findings and provide a platform for understanding the profound impact of this rare inflammatory disease upon daily life. ✍️ Register now at this link: https://lnkd.in/dMy-CRbP The speakers for this webinar will be Prof. Laurent Arnaud, moderated by Prof Marta Mosca. 💡 This webinar is dedicated to Relapsing Polychondritis. 🎯 The target audience will be patients, caregivers, and healthcare professionals. ⚙️ ERN ReCONNET resources on Relapsing Polychondritis are freely available and can be seen here: https://lnkd.in/dNFvZS_U 🗞 Newsletter subscription: bit.ly/44wk7La 💻 All webinars can be seen here: bit.ly/3DxXDhi #ERNReCONNET #rheumatology #YouTubeChannel #ERNs #rarediseases #healthcare #europeanreferencenetwork #experts #webinar #educationandtraining #ERNReCONNETWebinar #healthcareprofessionals #ernreconneteducation #RelapsingPolychondritis

🎓 Don’t miss our @ERNReCONNET webinar TODAY at 4 pm on “Screening and treatment of systemic sclerosis-associated PAH: where do we stand in 2024?” with Prof Hachulla and Prof. Sitbon, moderated by Prof Smith ✍️Make sure you're registered at this link: bit.ly/4cWKv4x 💡 This webinar is dedicated to systemic sclerosis. 🎯 Target audience will be healthcare professionals. ⚙️ ERN ReCONNET resources on Systemic Sclerosis are freely available and can be seen here: https://lnkd.in/d--hc_RD 🗞 Newsletter subscription: bit.ly/44wk7La 💻 All webinars can be seen here: bit.ly/3DxXDhi #ERNReCONNET #rheumatology #YouTubeChannel #ERNs #rarediseases #healthcare #europeanreferencenetwork #experts #webinar #educationandtraining #ERNReCONNETWebinar #healthcareprofessionals #ernreconneteducation #SystemicSclerosis

🎓 Register now for the next ERN RECONNET webinar “Screening and treatment of systemic sclerosis-associated PAH: where do we stand in 2024?” It will take place on the 16th October 2024, at 16 CET   ✍️ Register now at this link: bit.ly/4cWKv4x   The speakers for this webinar will be Prof. Eric Hachulla and Prof. Olivier Sitbon, moderated by Prof. Vanessa Smith. 💡 This webinar is dedicated to systemic sclerosis. 🎯 Target audience will be healthcare professionals. ⚙️ ERN ReCONNET resources on Systemic Sclerosis are freely available and can be seen here: https://lnkd.in/d--hc_RD   🗞 Newsletter subscription: bit.ly/44wk7La 💻 All webinars can be seen here: bit.ly/3DxXDhi   #ERNReCONNET #rheumatology #YouTubeChannel #ERNs #rarediseases #healthcare #europeanreferencenetwork #experts #webinar #educationandtraining #ERNReCONNETWebinar #healthcareprofessionals #ernreconneteducation #SystemicSclerosis

🎓 The latest ERN ReCONNET webinar “Multidisciplinary diagnosis and multidisciplinary team treatment in Idiopathic Inflammatory Myopathies” is now available on our YouTube channel!   🔗 Direct Link: https://bit.ly/IIM_webinar   Guest speakers were Louise Pyndt Diederichsen from Copenhagen University Hospital and Rigshospitalet; Olga Drapalova ePAG Advocate, ERN ReCONNET and Silke Schlüter, ePAG Advocate, ERN ReCONNET.   This webinar focuses on the importance of early diagnosis and the reason behind it. It addresses the importance of the multidisciplinary teams regarding treatment and diagnosis, as well as the role of the patient organisations. Target audience of this webinar are both healthcare professionals and patients, caregivers and family members living with Idiopathic Inflammatory Myopathies.     ⚙️ IIM resources, info, and links: https://lnkd.in/eHR3AuBZ 🎥 ALL webinars can be found here: https://bit.ly/3saCUOg 📰 Subscribe to our newsletter: bit.ly/44wk7La 🌐 More info: reconnet.ern-net.eu/