LMNA Cardiac

We’re thrilled to announce an exciting collaboration between the LMNA Cardiac Foundation and the Netherlands Heart Institute for a 3 hour, hybrid indoor cycling (spinning) event! Set to take place the 10th of November in ‘the workout’ Utrecht, or via stream from your own home or gym, this event aims to raise funds for critical LMNA research. For more information and to register please visit : https://lnkd.in/dvKCp3Rj

Cardiovascular disease is the leading cause of death worldwide. Sign the first global petition demanding a cardiovascular health plan: worldheartday.org/petition @worldheartfederation #UseHeart #WorldHeartDay #HeartYes

Join the fight against cardiovascular disease on #WorldHeartDay, 29 September! Sign @worldheartfederation’s global petition to put a cardiovascular health plan in place and defeat the world’s biggest killer: worldheartday.org/petition 

Create your own fundraising campaign for the LMNA Cardiac Diseases Network and make a difference in the fight against LMNA-related diseases! Celebrate a birthday 🎂, honor a loved one ❤️, get started on https://lnkd.in/dJGsKNpf. It only takes a few minutes. #Fundraiser #Research #MakeADifference #LMNA #cardiac #LMNAcardiac 

Learn more about gene 🧬 therapies. Gene therapy holds the potential to treat the root cause of cardiomyopathy by targeting the genes that can lead to the condition. The future of gene therapy offers hope for those affected by cardiomyopathy, beyond just symptom management. 𝗚𝗲𝗻𝗲 𝘁𝗵𝗲𝗿𝗮𝗽𝘆 𝗶𝘀 𝗮 𝘄𝗮𝘆 𝗼𝗳 𝘁𝗿𝗲𝗮𝘁𝗶𝗻𝗴 𝗼𝗿 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗻𝗴 𝗰𝗼𝗻𝗱𝗶𝘁𝗶𝗼𝗻𝘀 𝗰𝗮𝘂𝘀𝗲𝗱 𝗯𝘆 𝗴𝗲𝗻𝗲𝘁𝗶𝗰 𝗺𝘂𝘁𝗮𝘁𝗶𝗼𝗻𝘀. https://lnkd.in/dc9sUPwe #genetherapy #dcm #lmna #genetherapies #cardiovascular #lmnacardiac

Have you signed up to stay informed about research studies and clinical trials yet? Don’t miss out—stay updated today! https://lnkd.in/dbyjKkY9 #LMNA #laminopathies #cardiomyopathy #research #clinicaltrials #cardiovascular #lmnaresearch #lmnacardiomyopathy

𝐒𝐮𝐩𝐩𝐨𝐫𝐭 𝐍𝐞𝐞𝐝𝐞𝐝 𝐟𝐨𝐫 𝐒𝐞𝐚𝐧 Sean is one of our valued team members here at the LMNA Cardiac Diseases Network, and we want to take a moment to recognize his important contributions. He has been a key part of our community, volunteering his time and expertise to help advance our mission. His work has made a real difference for many who are navigating life with LMNA-related conditions. Now, Sean needs our support. Due to his own LMNA mutation, Sean has been facing significant heart challenges and is currently in the hospital in need of a heart transplant. LMNA mutations can lead to issues such as arrhythmias, conduction disorders, and dilated cardiomyopathy, and Sean has been dealing with these serious complications. Despite everything, he has remained a dedicated advocate for others in the LMNA community. We’re asking our community to come together in support of Sean. Whether it’s offering words of encouragement, sharing his story, or providing financial support, every gesture makes a difference. If you’d like to contribute, you can do so through the crowdfunding page set up by his brother-in-law here: https://lnkd.in/dqvkbUQN We hope Sean will be back soon to continue his important work with us. For now, please keep him in your thoughts. To learn more about LMNA-related heart conditions or how you can support, visit LMNAcardiac.org. Thank you for standing with Sean and supporting our LMNA community. Sean Pinegar Adam Cassidy

Hybrid Cycling Fundraising Event for LMNA cardiac Diseases. Will you join us (live or online)?🚴❤️ #LMNA #fundraising #cycling #fundraiser #spinning #marathon #lmnacardiac #event #cardiacdiseases

Hybrid Cycling Fundraising Event for LMNA cardiac Diseases. Will you join us (live or online)?🚴❤️ See https://lnkd.in/dvKCp3Rj for more information and signup. #LMNA #fundraising #cycling #fundraiser #spinning #marathon #lmnacardiac #event #cardiacdiseases

𝐎𝐮𝐫 𝐂𝐨-𝐅𝐨𝐮𝐧𝐝𝐞𝐫’𝐬 𝐔𝐩𝐜𝐨𝐦𝐢𝐧𝐠 𝐔.𝐒. 𝐓𝐨𝐮𝐫 - 𝐄𝐱𝐩𝐚𝐧𝐝𝐢𝐧𝐠 𝐎𝐮𝐫 𝐍𝐞𝐭𝐰𝐨𝐫𝐤! To further strengthen our network and raise awareness in the U.S., our Co-founder Stefan will be traveling for 2 to 3 months to meet with LMNA patients, experts, and researchers. This visit aims to foster connections, build a stronger network, and increase awareness about LMNA cardiac diseases. If you are an LMNA patient or researcher based in the U.S. and would like to connect with Stefan, please let us know by contacting us. Read more on: https://lnkd.in/d3dscXfZ #LMNA #laminopathies #cardiacdisease #UStrip #US #patients #researchers #USA #LMNAcardiac