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That’s a wrap on a fantastic, two-day Kick-Off meeting for ERDERA, the new rare disease research alliance! With representatives from all 25 work streams present both in-person and online, conversations have been very productive, discussing progress since the official launch in September and setting up for success over the next seven years! Day 1️⃣ commenced with a public Opening Ceremony, with speakers focusing on the consortium’s vision, mission, and goals. Nacer Boubenna, Scientific Director at the Ministère de l'Enseignement supérieur et de la Recherche, opened the plenary by highlighting the vital importance of both national plans and European cooperation in the field of rare diseases, both of which ERDERA will help to foster. Anne-Sophie Lapointe (PhD) reaffirmed this message, stating, “With coordinated action at every level - local, national, European and global, we can finally prevent people from suffering in silence.” The session closed with our CEO Virginie Bros-Facer, driving home ERDERA’s core vision - to bring hope to people living with a rare disease - and a deeper exploration of how the consortium's structure will bring the 25 work streams together to achieve this, lead by ERDERA's coordinator, Daria Julkowska. ✊ 🗣️ “ERDERA will present a new chapter in our collective journey, promising to accelerate research and translate scientific discovery into tangible benefits for rare disease patients.” - Virginie Bros-Facer Day 2️⃣ saw breakout thematic and work stream sessions. EURORDIS representatives focused on bringing the patient voice to these vital discussions to ensure that we are constantly working to address the unmet needs of people living with rare disease. Want to learn more about the ways in which we are involved in ERDERA? ➡️ https://lnkd.in/eBNgDci3 Our thanks go to the entire team involved in organising the event and everyone who attended and contributed to these important conversations! #RareDiseases #Europe #Global #research #alliance #innovation #ERDERA Roseline Favresse, Gemma Rodríguez Fabià, Rachel Butcher