IPOPI - International Patient Organisation for Primary Immunodeficiencies

🩺Discover the role of flow cytometry screening for earlier PID diagnosis 📅Mark your calendars for November 19th at 15:00 CET! 🕒 Join the captivating dialogue with the brilliant minds of Dr. Antonio Condino-Neto and Dr Rita Carsetti! 👨⚕️Tailored for healthcare professionals and visionary patient group leaders, this series promises more than just discussions – it's an immersive experience! Engage in interactive discussions 💬🗨️, spark lively debates, and elevate your understanding of PID diagnosis and clinical care to unprecedented heights! 🔗 Secure your spot now at: https://lnkd.in/dRB5k2xW #IPOPIHardTalks #IPOPI

From heartfelt conversations to expert insights, Bubble Care’s first conference with over 70 attendees was one to remember! 📖✨Curious to find out more? Read the full article here: e-news.ipopi.org #IPOPI #Healthcare #PatientAdvocacy

🌍 IPOPI was thrilled to join the panel at #ESGCT2024 in Rome, discussing the accessibility of #ATMPs for #RareDiseases and the crucial role of the #HospitalExemption pathway alongside our #AGORA colleagues, Prof. Claire Booth and Prof. Alessandro Auiti. Incredible insights and collaboration toward making gene therapy accessible to all! 🔗 For more information, visit: https://lnkd.in/dC_Z7xCr #GeneTherapy #HealthcareInnovation #IPOPI

Register for the event “PID Forum - Exploring The Impact of Medicine Shortages on PID Patients”, in collaboration with MEP Tomislav Sokol (EPP, Croatia) and the IPOPI - International Patient Organisation for Primary Immunodeficiencies. When: 5 November 2024, 13:00 to 15:00. Where: European Parliament ASP 3H1, Brussels Register at https://bit.ly/48nrirR

🌐 Ensuring Plasma Access Amid Global Challenges The global supply of plasma-derived medicinal products (PDMPs) is under strain. With no alternatives available for patients, trade barriers, regulatory challenges, and geopolitical shifts are placing this vital supply chain at risk. At “Life in a Drop: Addressing Blood Plasma Uniqueness and Supply Challenges” in Singapore, co-organized by the French and Singaporean-German Chambers of Commerce, key leaders tackled these urgent issues. Speakers included: - Bruce Lim – Vice-Chairman, IPOPI - Svenja Tatjana Barckhausen – Plasma Strategy Expert - Philipp Hammer – CEO, Inosolve Group Key topics included: - Plasma’s unique role in PDMPs - Regulatory barriers in plasma trade - Adaptation of healthcare systems amid shortages This gathering reinforced the need for global cooperation to secure this critical supply. #IPOPI #BloodPlasma #GlobalHealth #PatientAdvocacy #HealthcareInnovation

📷 The new Board of Directors of IPOPI - International Patient Organisation for Primary Immunodeficiencies was recently elected by IPOPI’s National Member Organisations, and the results were announced during the Annual General Assembly at the Global Patients’ Meeting on October 18, 2024, in Marseille. Congratulations to Cynthia Olotch, Roberta Anido , Tracy Shaw, and Dimas Adhi Sugiharto on their election for the 2024-2028 term. Bruce Lim was also co-opted for the 2024-2026 term. ➡️ More info: https://lnkd.in/dFZXnSpD #Board #NewMembers #Marseille #GPM2024

🌟 The IPOPI community gathered at the Global Patients' Meeting on October 17, 2024, to honor outstanding contributions to the PID field through the IPOPI PID Champion Awards 2024. 🏅 LeBien Award: Prof. Aziz Bousfiha (Morocco), a pioneer in PID care in Africa and a key member of our Medical Advisory Panel, was recognised for his exceptional contributions to improving PID diagnosis and treatment across the continent. 🏅 Luciano Vassalli Award: David Jimenez Gonzalez (Spain, AEDIP), a young PID patient and advocate, was honored for his leadership and dedication at the national level. 🏆 B.I.G. Award: Recognised bold, innovative projects from inspiring NMOs: - 1st: PIDPSB, Bangladesh, Iqbal Hossain (President) - 2nd: PID Tsubasa-no-Kai, Japan, Emi Homareda (Board Member) - 3rd: AAPPI, Algeria, Ali Nacer (President) Congratulations to all the winners! Thanks to Kedrion Biopharma for supporting this important event through an unconditional grant. Visit our website to know more: https://lnkd.in/d2qAuhaU #IPOPI #PIDChampionAwards #GlobalPatientsMeeting #PrimaryImmunodeficiency #PatientAdvocacy

📷 The new Board of Directors of IPOPI - International Patient Organisation for Primary Immunodeficiencies was recently elected by IPOPI’s National Member Organisations, and the results were announced during the Annual General Assembly at the Global Patients’ Meeting on October 18, 2024, in Marseille. Congratulations to Cynthia Olotch, Roberta Anido , Tracy Shaw, and Dimas Adhi Sugiharto on their election for the 2024-2028 term. Bruce Lim was also co-opted for the 2024-2026 term. ➡️ More info: https://lnkd.in/dFZXnSpD #Board #NewMembers #Marseille #GPM2024

🌍 What an incredible time at the Global Patients Meeting in Marseille! A huge thank you to everyone who made this event possible! 🙏 To our amazing Board, speakers, the tireless IPOPI team, and the wonderful NMOs who represent patients worldwide – we couldn’t have done it without you. 🤝 We are also deeply grateful to our sponsors, whose support has been instrumental in making this event a success! ✨ Thank you all for your commitment, passion, and dedication to improving the lives of patients with Primary Immunodeficiencies. Together, we are making a difference! #GPM2024 #IPOPI #PrimaryImmunodeficiencies #TogetherWeAreStronger #PIDCommunity #Grateful

💎 A heartfelt farewell from IPOPI President Martine PERGENT, concluding an inspiring #GPM2024. Until next time: 14-17 October 2026 in Maastricht! #IPOPI #Marseille