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Yesterday was #WorldKidneyDay – a moment to raise awareness of the impact that kidney disease has on millions of lives across the globe. While chronic kidney disease (CKD) rightfully receives widespread attention, Rare Kidney Diseases (RKD) often go overlooked – leaving many people struggling to access the care, treatment and support they need. We spoke to Prof. Daniel Gale, Professor of Nephrology at the Royal Free Hospital in London to hear his perspective on why these barriers to care exist, and the disproportionate burden that RKDs have on kidney failure in adults and children. Watch the video, where Prof. Gale will explore the human impact of RKDs, and the role that policy, innovation and investment must play in shaping a better future for people living with these diseases. #WorldKidneyDay2025 #AreYourKidneysOK #KidneyHealthMatters

This #WorldKidneyDay, let's shine a light on rare kidney diseases like primary idiopathic immune complex-mediated membranoproliferative glomerulonephritis (primary IC-MPGN) & C3 glomerulopathy (C3G). These conditions are caused by a dysregulation of the immune system and can lead to kidney damage, but early detection and management can make a difference.¹ Meet Jose and Lucia as they share what World Kidney Day means to them living with rare kidney disease. Although their characters are fictionalised, their stories are inspired by the real experiences of people living with primary IC-MPGN and C3G: "World Kidney Day is crucial for raising awareness about the importance of kidney health, which is something we all need to take seriously, even if we don’t live with kidney disease." - Jose "Exactly. It’s a chance for people to learn more about rare kidney diseases like C3G and primary IC-MPGN and push for more research, better treatments and earlier diagnosis." - Lucia Know your kidneys for better kidney health. Let’s raise awareness together! Want to know more? Find the links in the comments. [This story is an AI-generated fictional situation, inspired by insights from the primary IC-MPGN and C3G patient community] #Worldkidneyday #Areyourkidneysok #C3G #ICMPGN #RareStrength 1. Bomback, A.S., Charu, V., and Fakhouri, F. (2025) Challenges in the Diagnosis and Management of Immune Complex-Mediated Membranoproliferative Glomerulonephritis and Complement 3 Glomerulopathy. Kidney International Reports, 10(1), pp. 17-28. 

From Brewing Roots to Global Biopharmaceutical Leadership Our history is a story of challenges overcome. From our Swedish origins, we have grown into an international biopharmaceutical leader, present in 30 countries and delivering medicines worldwide. Our rich heritage of collaborative expertise has empowered us to identify and develop innovative medicines consistently. We are dedicated to addressing significant unmet medical needs and transforming the lives of people living with rare and debilitating diseases. Explore our history and learn more about our journey. https://lnkd.in/dwcwATGv #SobiLegacy #Biopharmaceuticals #RareDiseases #HealthcareInnovation #PharmaLeadership

Rare Disease Day was last week, but our commitment remains. At Sobi, rare diseases are at the core of what we do, and our work continues beyond this dedicated day. With more than 300 million people worldwide living with a rare disease, raising awareness and driving change is a continuous effort. Through Unite4Rare, we collaborate with patient communities, advocacy groups, and healthcare professionals to support research collaborations, advocate for expanded patient access, and empower those affected by rare diseases. Learn more about our work and how we can make a lasting impact together: https://lnkd.in/d6pZFmi7 #RareDisease #Unite4Rare #RareDiseaseAwareness #PatientAdvocacy #HealthcareInnovation

At Sobi, our dedication to the rare disease community goes beyond #RareDiseaseDay. Unite4Rare is our long-standing commitment to the rare disease community, outlining all our responsibilities, what has been done so far and how we measure progress into the future. Unite4Rare exemplifies our dedication to making a positive impact in the rare disease community, ensuring a patient-partnered culture across the company, and that the voices of patients and caregivers are heard. Learn more by watching the Unite4Rare video. Every rare disease journey is unique, but nobody should walk it alone. Today and every day, Sobi reaffirms our commitment to making a meaningful impact – because every person living with a rare disease matters. #RareStrength #Unite4Rare

Today is #RareDiseaseDay, a day aiming to spotlight the scale of rare diseases globally. This Rare Disease Day Sobi acknowledges that the experience of those living with a rare disease is simply ‘more than we can imagine.’ While rare diseases are uncommon individually, together they impact 1 in 17 people, meaning someone you know could have a rare disease. Despite this, access to rare disease treatment is limited, and time to a rare disease diagnosis is often lengthy. At Sobi, we strive to provide equitable access to care for rare disease patients. Watch our video which highlights the global reach of rare diseases:

This Friday, on the rarest day of the year, we recognise #RareDiseaseDay – a moment to highlight the realities faced by 300 million people living with a rare disease globally. This year’s theme, More Than You Can Imagine, reflects that a rare disease diagnosis affects far more than just health. It impacts education, employment, and relationships, while many navigate systems that are not built to support them. Access to treatment remains a significant challenge. At Sobi, we are committed to partnering with the rare disease community to ensure equitable access to diagnosis and treatment. Through Unite4Rare, we work alongside patient communities, advocacy groups, and healthcare professionals to drive real change. #Unite4Rare #MoreThanYouCanImagine #RareDiseaseDay2025

Did you know that 300 million people worldwide live with a rare disease? If all people with a rare disease lived in one country, it would be the third largest in the world. Yet, awareness and access to research and treatment vary across different regions. This Friday, February 28, is Rare Disease Day, a global initiative to highlight the impact of rare diseases and the need for continued collaboration. Leading up to the day, we want to emphasize the importance of innovation, partnerships, and support for those affected. Swipe through to learn more about rare diseases and why this matters. What steps can we take to better support people living with rare diseases? Share your thoughts in the comments.

Rare diseases impact over 300 million people worldwide—far more than most can imagine. With one week to go until Rare Disease Day 2025, we take this moment to recognize the resilience, hope, and strength of the rare disease community.   This year’s theme, "More Than You Can Imagine," reminds us that behind every diagnosis is a personal journey shaped by challenges, advocacy, and progress. Watch the official Rare Disease Day 2025 video to hear real voices and see why awareness matters. Together, we can amplify their stories and drive change. Join us in supporting the rare disease community. Like, share, and spread awareness ahead of Rare Disease Day. #RareDiseaseDay #RareDiseases #PatientAdvocacy #Unite4Rare #GlobalHealth https://lnkd.in/dE56sfWf

As we approach Rare Disease Day, Lydia Abad-Franch, Chief Medical Officer and Head of R&D at Sobi, shares her thoughts: "Having a rare disease often still means having no treatment options, or even a proper diagnosis. And since these are rare conditions, it is difficult to find others to share this experience with. Around the world, Sobi supports raising awareness on Rare Disease Day by holding events with patient advocates, contributing to publications, and sponsoring the EURORDIS Black Pearl Awards. Rare Disease Day reminds us at Sobi of our mission to transform the lives of people with rare diseases through new medicines. Patients need them sooner rather than later, which drives the urgency behind our R&D and Medical Affairs activities". I have worked in hospitals for many years and have seen what patients and their families go through. Seeing the Sobi team’s unwavering dedication and passion to serve these patients makes me exceedingly proud to work here. #RareDiseaseDay #RareDiseases #PatientAdvocacy #Healthcare #Pharma