Addison's Disease Self Help Group

A 5-minute task which could save your life 🚨 When was the last time you checked your kit? 💉 It's essential to make sure your emergency hydrocortisone injection kit has all the elements you need so you are prepared should you become unwell. To get started, follow these simple reminders and visit our website for more information 🔗 https://lnkd.in/g-wJ9ze So what are you waiting for? #CheckYourKit today so you are prepared and to help others help you. ⏰ If your syringes are out of date, from 7 October we will be selling individual VanishPoint syringes as refills on our online shop. The kit box pictured is available *now*, alongside other steroid dependency resources to support you 🛒 https://lnkd.in/dDwx3HSU

Please join us in thanking Ashely and Chris for running the 2024 Manchester Half Marathon in aid of the ADSHG! They ran in honour of Leah, who has Addison's, while supporting our charity every step of the way 🏃♂️ 💬 Leah shared with us: "I was diagnosed with Addison's disease 4 years ago. Although it impacts my daily life in multiple ways, I do not let it define or restrict me." "I am so proud of them both they did so well. My husband, Ashley, ran in 1 hour 13 and my friend, Chris, ran in 1 hour 50." 🥇 There is still time to support their fundraiser! To donate, please visit 🔗 https://lnkd.in/eQ8-fuEN Thank you Ashley and Chris for taking on this challenge to raise funds for our charity! We are incredibly grateful for your dedication and support 🙌

Don’t forget ⏰ Tonight in UK and Ireland, the clocks go back an hour and Greenwich Mean Time (GMT) begins! For most this means an extra hour in bed (hopefully!) and brighter mornings. But what does it mean for those of us on time critical medication? Here are some reminders for those living with Addison's disease or adrenal insufficiency, ahead of the clocks going back by an hour. 🌙 Change your clocks before you go to bed. This way when you wake up to take your morning medication, this will match the new time of day. 💊 On Sunday morning, double check that the clocks around your house are correct to avoid getting caught out and taking future doses at the wrong time of day. 🎵 Check that any alarms you have set to remember your dosing throughout the day are still accurate. 🩺 If you're on hydrocortisone infusion pump therapy, remember to change the time on your pump as well. Looking for more support and information? Join our charity and help make our voice stronger 📩 https://lnkd.in/gTiqFmM

Please join us in supporting Izzy this #FundraiserFriday! On Sunday 3 November Izzy is racing in the New York Marathon in aid of our charity 🏃🏼♀️ Izzy's reason for fundraising? Her dad, Steve, has Addison's and is a Trustee of the ADSHG 🎉 💬 Izzy shares: "I hope to raise awareness for the condition and the charity’s great work to help others like my dad.” 🇺🇸 To donate, please visit 🔗 https://lnkd.in/eWRGNiSd Thank you Izzy for taking on this challenge to fundraise for our charity! Wishing you the best of luck 🥇

Today we're asking you to share the advice you would offer to someone who has been recently diagnosed with Addison's disease or adrenal insufficiency. We recognise that the early days of a diagnosis, and learning the management of this rare condition, are best understood by those who have gone through it themselves. This is an opportunity to share all the things that have helped you 💜 Please share your advice in the comments below 👇 For more support, please visit the Newly Diagnosed section of our website 🔗 https://lnkd.in/egfYVyQk

Thank you to Dan and FatFace for their amazing support! Dan, who has been living with Addison's for 28 years, recently nominated the Addison’s Disease Self-Help Group (ADSHG) to receive a generous £500 donation from his workplace, FatFace 🙌 💬 Dan shared "Being part of the ADSHG has been invaluable, especially the supportive member's forum." "I want to say a huge thank you to both FatFace and the ADSHG for their incredible work." We are hugely grateful to Dan for thinking of us and to FatFace for their generosity. Donations like these help us continue our vital work supporting people with Addison’s and adrenal insufficiency. Thank you! 🤝 💜 If you’re inspired by Dan’s story, why not ask your own workplace if they can support ADSHG too? Your nominations can make a big difference!

It’s getting to the time of year when there are more coughs and colds about. No one likes being unwell, but if you live with Addison’s and adrenal insufficiency and are unwell, you need more than just a duvet day💤 It is important to follow the Sick Day Rules. 🤒 Remind yourself of the Sick Day Rules by reading the page on our website, so if you do become unwell, you know what to do. Our top tips are: 🦠 Listen to your body - recognise the early symptoms of a bug or cold. 💊 Adjust your steroid replacement medication accordingly to account for the additional strain on your body. 🤝 Educate those close to you about the Sick Day Rules so they can help you if you do become unwell. Even though these may seem like "minor" ailments, it’s important to adjust your medication. These extra doses help your body to respond to illness, injury or stress. Read more ⤵ https://lnkd.in/enTAny9q

This week is Invisible Disabilities Week. Did you know that over 10 million people in the UK live daily with a condition that you cannot see? Addison’s and adrenal insufficiency is one of these invisible conditions. We live with it, but many misunderstand it, what we have to do to manage it, and there are lots of misconceptions out there. Invisible illness and disability are not actually all that invisible - if you know what to look for. ⚖️ People with invisible conditions may be struggling with symptoms and extra daily tasks their condition requires, but when you see them in the street, you wouldn’t know anything is wrong. This is why it is really important to not make assumptions and treat everyone as an individual. ❓ What are some of the questions you've been asked about your Addison’s or adrenal insufficiency? Are there any myths that you’d like to debunk? Please share your experiences of dealing with different opinions around Addison’s and adrenal insufficiency in the comments, and help show people what living with the condition is really like by sharing your story ⤵️

A big thank you to Richard and the Acre Street Runners for their continued support! 🏃 Throughout the year, they have organised fundraising events in aid of the ADSHG. Most recently, on Saturday 21 September, they held a bingo night to help raise vital awareness and funds for our charity 👏 We truly appreciate their ongoing dedication to our cause - thank you! 🤔 Could your running club or sports team organise a fundraiser to support our charity? To get started, visit: https://lnkd.in/gdtcbU3

Signed, sealed, delivered 📨 One way to raise awareness this festive season? Send our charity Christmas cards! This year they're even more special as we celebrate our 40th anniversary 🎂 As a small charity, our cards always sell out (we've already sold 50% of our stock!)🎄 So get your order in now to avoid disappointment! We also encourage you to send cards to your healthcare team, whether it's your pharmacist, GP or Endocrinologist 🩺 to say thank you and remind them of ADSHG's offerings to help them support people with Addison's and adrenal insufficiency. 🎅 To purchase our cards and make a difference, please visit: https://lnkd.in/dDwx3HSU Thank you once again for all of your continued support!