Children's Cancer and Leukaemia Group (CCLG)

Incoming: A national cancer plan for England. Here’s why the UK Government’s National Cancer Plan must address all the needs of children and young people with cancer in England. From psychosocial support for things like finances, travel to treatment, education and mental health, to diagnosis and treatment. This is an opportunity for BIG change, and we hope Department of Health and Social Care grabs it with both hands. With Children's Cancer and Leukaemia Group (CCLG) we’ve even written a plan they could use, and we're ready to work together to make it happen. Swipe to find out more.  

We're proud to announce that World Duty Free - WDF staff have decided to extend their partnership with CCLG after raising over £200,000 to support CCLG's ground-breaking research and award-winning patient information🎗️🌟 Vicki Brunt, Head of Fundraising at CCLG, said: "We’re over the moon that World Duty Free staff have chosen to extend their partnership with CCLG. "Their hard work, enthusiasm and dedication to the cause has been nothing short of amazing, and the funds they’ve already raised are helping us to change the future for children with cancer. "We’re looking forward to working with the team to see what can be achieved in the next three years." Find out more about the partnership at https://bit.ly/42yHLZo Ashley | Hannah | Samuel | Claire | Phil | Felicity | Gordon | Matthew | Holly | Peter | Jodie | Lisa | Michelle | Jamie | Faisal #CCLG #ChildhoodCancer #ChildhoodCancerResearch #CorporatePartner

Did you know that doctors can repurpose existing medicines for new uses? When a medicine is approved for use in the UK, after extensive safety testing, it is often for a specific purpose. But that doesn’t mean its potential ends there. With new research, these medicines can be used for other conditions - offering quick and effective treatments for patients. Dr Robin Rumney, in collaboration with Prof Dariusz Gorecki, is leading an exciting project funded by The Little Princess Trust. They’re exploring whether a diabetes medicine could help treat childhood bone cancer 🎗️ Robin explained: "It takes roughly 10 years to make a new drug from scratch, and the necessary clinical trials cost hundreds of millions of pounds. I think that drug repurposing is a better option. Not just because of cost, but time as well. New drugs spend a long time in clinical trials to test their safety, but repurposing uses drugs we already know are safe." Find out more about this project in our #ResearchRoundup blog at https://bit.ly/4axRvFe #CCLG #ChildhoodCancer #ChildhoodCancerResearch

Isobel was 20 months old when she was diagnosed with Langerhans cell histiocytosis (LCH), a cancer-like condition, and she passed away at only 22 months old. Isobel's parents shared: "We set up The Isobel Parmenter Memorial Fund in 2015 with CCLG as a way to channel our grief into something positive. In her memory and by talking about Isobel's experiences, we want to stop other families walking this awful road we have no choice but to tread. "Over the years, through many charity events and with the support of loyal friends, family and our local community, we've raised thousands of pounds towards funding research into the causes of LCH so that better and quicker treatments can be made available." Recently, friends and the fitness company Move2Lose organised several fundraisers to raise money in honour of what would have been Isobel's 12th birthday. These included craft sales, cake sales and second-hand sales, which raised over £1,000 in just two months, bringing The Isobel Parmenter Memorial Fund's total to nearly £50,000 to support research into the causes, diagnosis, and treatment of LCH. #CCLG #ChildhoodCancer #SpecialNamedFund

When you are told your child has cancer, life turns upside down in an instant. You can be left feeling shock, fear and confusion and questions can run through your mind day and night. For most people, searching the internet is usually the first choice to find quick and easy answers. But the huge amount of information online can be overwhelming, and sometimes conflicting, causing even more worry and stress. From a Patient Information Forum (PIF) survey of 20,003 UK adults, it was found that 50% of adults in the UK are struggling to access trusted health information. At CCLG, all our information resources are PIF TICK accredited, meaning they are trusted, evidence-based and accessible. When you see the PIF TICK logo, you know information has been produced by a certified trusted information creator. As a parent or caregiver of a newly diagnosed child, navigating cancer information can be stressful. To help you feel more confident, we’ve put together some key points to keep in mind for finding trustworthy and accurate information online. View our full range of expert and trusted information resources, including 'Searching for information and support online', at https://bit.ly/3MBY9i8 #HealthInformationWeek #CCLG #ChildhoodCancer

At CCLG, we're dedicated to improving care and support for children affected by cancer 🎗️ That’s why we fund research into all types of childhood cancer and explore everything from the long-term effects of treatments to innovative therapies for conditions like brain tumours. But have you ever wondered how much research actually costs? It varies! We’ve funded early-stage projects for under £10,000 and administered major The Little Princess Trust projects costing over £1 million. No matter the scale, our mission stays the same: to change the future for children with cancer. CCLG Head of Research Sarah Evans says: "Helping children with cancer is something that really matters. Childhood cancer is devastating, and through research, we ultimately want to get to a point where we can prevent children developing cancer. But for now, the research is focusing on developing more effective treatments so more children are cured, and making the treatments kinder, so there are fewer side effects." Learn more about how much research costs and why it’s vital in our #ResearchRoundup blog at https://bit.ly/40mOiDJ #CCLG #ChildhoodCancer #ChildhoodCancerResearch

In 2024, we introduced The North Star, our shared vision for the future with partner charities Young Lives vs Cancer, Ellen MacArthur Cancer Trust and Teenage Cancer Trust to make sure children and young people with cancer receive the care and support they deserve 🌟 Research that shaped The North Star revealed 48% of young people, parents, and carers want more help understanding their or their child’s diagnosis. At Children's Cancer and Leukaemia Group (CCLG), we’re committed to providing parents with trusted support and expert information, to help lessen the anxiety and isolation they may be feeling after their child’s diagnosis. Our free, PIF TICK-accredited publications, written by experts, help patients and their families navigate their diagnosis, treatment, and what to expect moving forward. Our information resources are available free of charge from hospitals treating children with cancer, or can be downloaded or ordered from our website at https://lnkd.in/eWXXiCUK #HealthInformationWeek #CCLG #ChildhoodCancer

"They took us to a private room and told us that our baby girl had a type of blood cancer. Our lives stopped. She was just a baby." Izzy was diagnosed with acute lymphoblastic leukaemia (ALL) in February 2023 when she was just 10 months old. To help raise awareness and support other families, Izzy's dad, Adam, shared: "At the start of Izzy's diagnosis, she had several symptoms that we never thought could be signs of something bad. She’d been having night sweats and was unusually irritable when we tried to settle her for sleep. Small bruises also appeared, but we didn't think much of them, assuming they were normal for her age as she was learning to crawl. "We thought we had a perfectly healthy baby until one day we noticed a tiny bruise-like rash on her feet. At first, we didn't worry, but by the third day, the rash had spread to her legs, back and belly. "After keeping a close eye on it, we called the doctor and demanded an appointment. After explaining Izzy's symptoms, they told us no appointments were available, but I refused to accept this and managed to secure an appointment that evening. The doctor checked Izzy thoroughly and told us straight away to take her to the hospital, where she quickly deteriorated. "Izzy underwent numerous procedures, and the doctors confirmed the diagnosis as acute lymphoblastic leukaemia. "Izzy spent several months as an inpatient at Royal Stoke University Hospital and Birmingham Children's Hospital. During this time, there were moments when she was severely poorly. Despite this, she’s responded well to treatment and is now in the maintenance phase." Adam also highlighted the importance of early diagnosis, sharing: "If your child shows even the slightest symptoms, please get them checked by your GP. Early diagnosis can save lives." Read Izzy's full story and learn the signs and symptoms of childhood cancer at https://bit.ly/3OTk9Xn #CCLG #ChildhoodCancer #ChildhoodCancerAwareness

Going to school is vital for children with cancer, as it helps them to feel 'normal' and reduces isolation and loneliness. As the new term begins, teachers play a key role in encouraging a child's integration into a school routine. However, the word 'cancer' can be scary, and it's normal for school staff to feel upset or anxious about supporting a child returning to school. Our guide, 'Supporting a pupil with cancer', aims to lessen some of the worries teachers may have by giving simple, practical information and advice on a variety of issues faced by the child and their family, and some ideas on how to help them within a school setting. To help ease those worries, we encourage parents to share this booklet with their child's school and teachers 💛 Download or order a physical copy free of charge at https://bit.ly/3RGlL9w #CCLG #ChildhoodCancer #ChildhoodCancerSupport

Support childhood cancer research and join #TeamCCLG for the London Landmarks Half Marathon! 🏃♂️🌟 We have limited charity places left, so grab yours before they're gone! 📅 Sunday 6 April 2025 Find out more and apply at https://bit.ly/40wLKo1 #LLHM #LLHM2025