Cleft Lip and Palate Association (CLAPA)

📣 Vacancy – Policy and Campaigns Manager ✅ CLAPA is recruiting! This is an exciting opportunity for an enthusiastic individual to join our team. The Policy and Campaigns Manager is responsible for leading on CLAPA’s campaigning and policy work across the UK. This is a new direction for CLAPA and a key part of the role will be to develop a clear strategy and action plan to ensure a focused and targeted approach to this area of work. The post-holder is responsible for ensuring that work is delivered to the highest standard and that the wider staff team and board of trustees are kept informed on progress and development. 🚨Details: Based at: Home-based within the UK Hours: Full-time, 35 hours per week Reporting to: Chief Executive Apply now: https://buff.ly/4eS0aDj

Happy World Smile Day! CLAPA Ambassador Jennie Longdon shares why she thinks it's so important to celebrate every smile and support the UK cleft community. CLAPA works to help everyone affected by cleft lip and palate in the UK to feel positive, connected, and in control of their treatment. This World Smile Day, visit buff.ly/3Bt8niV to make a donation to support our work and you'll receive a limited edition CLAPA Smiley Face pin badge! Wear it with pride to raise awareness of cleft and remind those around you to celebrate every smile.

📢 Support our recommendations for fair payment for partnership working! As part of a coalition of health #charities we have published new guidance to stop inequity in payment for partnership activities. The guidance is designed to help charities and partners calculate Fair Market Value (FMV). It has been developed by Cancer52, Charities Research Involvement Group, HRCI - Health Research Charities Ireland, National Rheumatoid Arthritis Society (NRAS) and PIF. The guide includes 5 recommendations to support fair payment for partnership work: ⭐ Full cost-recovery to support charity sustainability. ⭐ Minimum entry point of £100/€120 per hour for the work of charities. ⭐ Equity of payment with healthcare professionals where this is higher than the Patient Focused Medicines Development rate. ⭐ Market value add-on costs which take into account the intangible ‘brand’ benefits of partnering. ⭐ Fair contracting with FMV rates set from the start and 30-day payment terms. The recommendations have been endorsed by Asthma + Lung UK, Breakthrough Cancer Research, Cleft Lip and Palate Association (CLAPA), Debra - The Butterfly Skin Charity, Irish Heart Foundation, Irish Lung Fibrosis Association, Maynooth University and the NIHR (National Institute for Health and Care Research). Read the full guidance here: https://lnkd.in/enuZty5n #HealthResearch #PatientInvolvement #PublicInvolvement

📣 Vacancy - Family Services Coordinator ✅ CLAPA is recruiting! This is an exciting opportunity for an enthusiastic individual to join our Engagement and Services team. The Family Services Coordinator is responsible for providing families (parents/carers and children up to ten years) affected by cleft with opportunities to access accurate information, connect with each other and form supportive communities. They will champion CLAPA volunteers and will lead on the development and effective delivery of our volunteering strategy. 🚨Details: Contract Type: Maternity cover Based at: Home-based within the UK Hours: Part-time, 21 hours per week Apply now: https://buff.ly/4gy8ycT

"To live a healthy life, is something we all deserve, we need every type of person represented in health research” Frustrated by the lack of diverse representation in health research? Discover why your involvement matters and how you can make a difference. #BeVisible #HealthResearch #MakingResearchInclusive #INVISIBLE

I was so honoured to attend the Press Launch of Soul Mama, the amazing new live music venue and restaurant in London. What a night it was. I met so many interesting people whilst listening to fabulous music. YolanDa Brown OBE DL and Adetokunbo T Oyelola are incredible and I am in awe of what they have achieved! Huge congratulations to you both and all of the team behind Soul Mama!

Does your team have what it takes? Tag a colleague that you think could face the challenge! Test your physical strength, mental grit, and aptitude for camaraderie in the ultimate team-building challenge: Tough Mudder! We are excited to announce we now have charity places for Tough Mudder, for you to run, crawl, and climb to the finish line with your colleagues. Tough Mudder courses are spread across the UK to ensure you can find a race local to you, with courses in South London, South West, Birmingham, North West, and Yorkshire. Registration fees are £95 for 5k and £120 for 15k mud runs.🗺️ Get your charity place to support CLAPA here: https://buff.ly/3VYwnkL [Alt text: Two women using ropes to pull themselves up a muddy slope. One is wearing a black t-shirt and leggings, the other is wearing a blue and white running vest with the CLAPA logo. Text displayed over the image reads 'Tough Mudder, places now available, registration fee: £95/£120]

On this #ThankYouDay we’re sending BIG THANKS to all who support CLAPA💙🎉 Our volunteers who give up their time to support us, our hardworking team of staff, and the NHS for working with CLAPA to constantly improve cleft services across the UK. More importantly, we want to say thank you to you! For supporting CLAPA, fundraising for our charity, and for spreading awareness of cleft lip and palate through sharing your stories with the CLAPA Community.💙

We’re celebrating 76 years of the NHS today💙🎉 At CLAPA we want to send a big THANK YOU to all those working hard in the NHS supporting people affected by cleft lip and palate. CLAPA has worked closely with the NHS throughout the years to ensure that everyone in the United Kingdom born with a cleft receives the best possible treatment and support in their care. Happy birthday NHS 💙

Last night, our Chief Executive Claire Cunniffe and Trustee Izzy Williams attended the National fundraising Awards, where our 2022 #SaveCLAPA Appeal was one of three up for ‘Fundraising Campaign of the Year’.🥇 It was an honour to be nominated alongside much larger charities, many of which are household names. The #SaveCLAPA Appeal didn’t get the award, but it did something far more important – it saved CLAPA from having to cut back on vital services after a challenging few years, which will always make it a winner in our eyes!⭐ Thank you to each and every one of you for helping to make the #SaveCLAPA Appeal such a success back in 2022. We wouldn’t be here without you! 👏