CMTUK

Have you checked out the latest issue of ComMenT, our magazine for the CMT community? https://lnkd.in/ed4A8BVw Whether you receive it digitally or by post, it’s packed with inspiring stories, helpful tips, and exciting updates! In this issue, we’ve got interviews with our new trustee Vicky and returning trustee Pete, the ever-popular podiatry column by Robert Isaacs, and some amazing fundraising stories. So, why not grab a cup of tea and settle in for a read ☕️ Did you know that you can listen to and watch the main feature interviews by clicking the link in the digital copy? Drop us a message to sign up for ComMenT and get the Winter edition straight to your inbox 💻📬 #cmtuk #comment #disabilitymagazine #cmtawarenessmonth #nobodyisperfect #charity #support

At CMTUK, we know living with Charcot-Marie-Tooth disease can bring unique challenges, but you don’t have to face them alone 💙 Our members have access to a range of support services designed to help at every stage of your CMT journey... Whether it’s expert advice through our helpline, connecting with others in our support groups, or accessing valuable resources and information, CMTUK is here to support you and your family every step of the way! Want to learn more about how we can help? Drop us a message or visit www.cmt.org.uk – we’re always here to chat 💬 #cmtuk #cmtawarenessmonth #support #services #nobodyisperfect #charity #disability

#NobodyIsPerfect – but you don’t have to face CMT alone 💙 Whether you’re newly diagnosed or have been living with Charcot-Marie-Tooth for years, sometimes you just need someone to talk to... Our friendly CMTUK Helpline is here for you, Monday to Friday, 9am - 2pm If you have questions, need advice, or just want a listening ear, give us a ring on 0300 323 6316. We’re here to support you, no matter where you are on your CMT journey 💬💙 #cmtuk #cmtawarenessmonth #charcotmarietoothdisease #disability #helpline

#NobodyIsPerfect – but keeping active can make a big difference 💙 For those living with CMT, staying active can be key to feeling your best and managing symptoms... Regular exercise, even in small amounts, helps control body weight, supports muscle strength, and improves balance and posture – all important when dealing with CMT’s unique challenges! Activities like walking, swimming, yoga, and cycling can be great choices - and the best part? You don’t need a gym to get moving! Even small changes, like stretching or walking a little further, can make a real difference 💪 Most importantly, listen to your body - find what feels good, stop if it hurts, and chat with your doctor or physio for more guidance At CMTUK, we’re here to support you every step of the way, drop us a message or head to our website for more tips on managing CMT through exercise https://lnkd.in/dni884my #cmtawarenessmonth #cmtuk #charcotmarietoothdisease #disability #exercise #stayactive

Did you know there are over 120 variations of CMT? This means that no two people experience CMT in exactly the same way, even if they have the same type. Some may notice muscle weakness in their hands and feet, while others might struggle with balance or sensation At CMTUK, we understand how different the journey can be for everyone living with CMT – and we’re here to help! Whether you’re newly diagnosed, supporting a loved one, or looking for advice, our team is ready to offer support, guidance, and a caring community Need someone to talk to? 💬 You can find resources, support groups, and more by visiting www.cmt.org.uk or getting in touch directly. Together we are stronger! Let’s continue to raise awareness, break down stigma, and celebrate our differences during CMT Awareness Month. Because nobody’s perfect, and that’s perfectly okay 💪 #cmtuk #charcotmarietoothdisease #raredisease #cmtawarenessmonth #nobodyisperfect

#NobodyIsPerfect – but everyone can make a difference 💙 By joining the UK CMT Registry, you can play a vital role in the future of Charcot-Marie-Tooth research and care! The register helps researchers better understand CMT, paving the way for new treatments and support for those living with the condition... It doesn’t matter if you’ve just been diagnosed or have lived with CMT for years, adult or child – every voice counts! 🙌 By sharing your experience, you’re helping to build a brighter future for the CMT community! Signing up is simple and makes a huge impact... Ready to join? Drop us a message or head https://lnkd.in/eyNz32Ni and sign up to the UK CMT research database now! Together, we can raise awareness, improve research, and support everyone with CMT – because nobody’s perfect, and that’s perfectly okay #cmtawarenessmonth #cmtuk #charcotmarietoothdisease #supportcmt #jointheregister #cmtresearch #medicalresearch #clinicaltrial

#NobodyIsPerfect – and that’s perfectly okay! During CMT Awareness Month, we’re celebrating what makes each of us unique! Whether you’re living with CMT or not, it’s important to remember that nobody is perfect We all have our challenges, differences, and strengths, and that’s what makes us who we are CMT might bring its own set of obstacles, from muscle weakness to issues with balance, but it doesn’t define anyone At CMTUK, we believe in embracing our differences, raising awareness, and supporting one another – because life isn’t about being perfect, it’s about being you! Let’s spread the word, break down stigma, and show the world that our imperfections are what make us strong We want to see your selfies and get a bigger picture of our CMT community! Join us in celebrating CMT Awareness Month and help us raise awareness by sharing your story with #nobodyisperfect #cmtuk #charcotmarietoothdisease #raredisease #cmtawarenessmonth #disability

Today marks #WorldMentalHealthDay and we want to use this opportunity to shine a light on our amazing support groups and services - looking after your mental health is just as important as looking after your physical health 💙 At CMTUK, our community is at the heart of everything we do... From in-personal regional support groups to our online network and regular calls, becoming a member means joining a supportive network of people who truly understand life with CMT Whether you need advice, resources, or just a friendly ear, we’re here for you 🙌 By becoming a member, you’ll get access to: Exclusive support and information CMT specialist helpline Access to local and national events Latest updates on research and treatments A caring community that’s always ready to help Every membership helps us continue our vital work supporting those with CMT and raising awareness of the condition. If you’re looking to make a difference and connect with others, membership matters. DM us to find out more about the benefits and how to join our community, or head to www.cmt.org.uk Let’s raise awareness together – because nobody’s perfect, and that’s perfectly okay 💪 #cmtawarenessmonth #cmtuk #mentalhealth #membership #raredisease #disability #charity

CMT is a group of genetic conditions affecting the peripheral nerves, which connect the brain and spinal cord to the rest of the body It takes its name from the three doctors who first recognised the disorder – Jean-Marie Charcot and Pierre Marie from France and Howard Henry Tooth from the United Kingdom CMTUK exists to provide essential support to individuals and families living with the condition – from advice and resources to a supportive community that understands the challenges CMTUK also funds vital research, helping to improve diagnosis and treatment Want to help? You can make a real difference by spreading awareness, donating, or getting involved in fundraising Every little bit counts towards a future with better treatments and more support for those affected by CMT Find out more about CMT and how you can support CMTUK at www.cmt.org.uk Together, we can make a difference! #cmtuk #charcotmarietoothdisease #raredisease #cmtawarenessmonth #nobodyisperfect

October marks CMT Awareness Month in the UK! Charcot Marie Tooth disease (CMT) is a genetic condition that damages the peripheral nerves, which control muscle movement and sensation. Over time, it can cause muscle weakness in the hands and feet, difficulty with balance, and reduced feeling in those areas Though there’s no cure, support and understanding can make a huge difference for those living with CMT... That’s where CMTUK comes in! We're here to provide vital resources, community support, and fund important research into managing the condition This month, let’s come together to spread the word about CMT and support the incredible work of CMTUK Every share, like, or donation helps raise awareness and brings us one step closer to a better future for people with CMT! www.cmt.org.uk #cmtuk #charcotmarietoothdisease #raredisease #cmtawarenessmonth #nobodyisperfect