Cystic Fibrosis Trust

Catch up with a day in the life of our supporter Josh and his son Spencer, who has #cysticfibrosis 👶 Read our magazine online for Spencer's full routine! #CFLife ➡️ https://ow.ly/hqxt50TUt19 If you would like to share your story, please get in touch at magazine@cysticfibrosis.org.uk

Get festive, fundraise for the future! 🎄🎃🎉    🎨 Get crafting  👩🍳 Get baking  ⚽ Get moving  🎮 Get gaming    This festive season, we’re inviting you to make a difference and have some fun along the way! Your support will help fund vital research and support for those living with cystic fibrosis. 💛    🌟 Sign up today and receive everything you need to make your event a success! #getfestive 🌟 ➡️ https://lnkd.in/erjiFa2j

In recent years, changes in treatments for #cysticfibrosis mean that more and more adults with CF are planning for their long-term financial future, and have questions around retirement and pensions. Join us for a session with financial expert Miss Lolly (aka Lisa Conway-Hughes) as we explore the options available for the CF community, answer some of your questions and find out how it's never too late to start saving for your pension. ✨ 📅 Date: Thursday 28 November ⏰ Time: 12:30pm - 1:30pm Head to our website to register now! ➡️ https://ow.ly/B91v50TRIXE

This World Gaming Day 🎮 play for a good cause... Sign up today and get a free #Game4CF skin for your controller! And receive more free merch as you reach your fundraising milestones! Visit our website to sign up or find out more 👇 https://lnkd.in/dPV5PWwj

Join us at this CF Live where we look at the latest highlights from the UK CF Registry and our patient experience survey. 🗣️ At this event we will share key insights on health outcomes and how things are changing for adults with CF, using data from the UK CF Registry. 💡 Over a thousand adults with CF completed a survey, and the data we will be exploring was generated using this feedback on their experiences of adult CF care in the UK and recommendations for improvements. Click the link to sign up. ➡️ https://ow.ly/MaCS50TPzQ6 #CFLive #cysticfibrosis #cfnews

✨Fundraiser Friday✨ We want to say a huge thank you to Marc Hodgson, who has been hosting charity quiz nights for the past year in aid of Cystic Fibrosis Trust. The latest one in September raised a fantastic £1,535! Thank you to all who have supported 'The Quizness' 💛

✨Thanking Thursday✨ SHS are over halfway through their fundraising for Cystic Fibrosis Trust as their charity of the year. They've raised a staggering £10,600 with still more plans for events in the future! So far they've held jelly bean and chocolate truffle sales, annual leave draws, a canoe trip and a Christmas raffle, took part in the CF Mamas and Papas Skipping Challenge, created an SHS recipe book, and walked and run many miles! Plus they've Custard-and-Creamed the Leadership Team. What an incredible group of fundraisers – thank you so much! If your company or colleagues would like to fundraise or nominate Cystic Fibrosis Trust as their charity of the year, email us at events@cysticfibrosis.org.uk to discuss the support you'll get every step of the way.

As the weather gets colder and the nights draw in, many of us might find our motivation to exercise outside waning. 💪 Fitness instructor and nutritionist Kieron, who has #cysticfibrosis, shares some of his top tips to help you stay fit and active at home. Click the link to read Kieron's home workout example! ➡️ https://ow.ly/aWJK50TNlhr

In our latest blog, we spoke to Esther, whose son Joshua has CF, about why they’re interested in clinical trials. 🗣️ Esther talks about their experiences of CF, Joshua’s understanding of clinical trials, and what they would consider before deciding to take part. Click the link below to read the blog. ➡️ https://ow.ly/fgKV50TIBqf Find out more about CF clinical trials for children. ➡️ https://ow.ly/n6cB50TIBqg #ResearchWednesdays #cysticfibrosis #clinicaltrials

"I want to inspire other kids with CF and people with other disabilities. I also want people to know that you can achieve anything you set your mind to." We chatted to Morgan about his goal to become the first person with CF to be a professional footballer and his experiences of school and ADHD. ➡️ https://ow.ly/Obkl50TLnts #ADHDAwarenessMonth #CF #cysticfibrosis #CFcommunity