Huntington's Disease Association

Our AGM may have been last weekend, but the excitement isn’t over yet! 🎁✨ Our raffle is still open, and every ticket you buy brings you closer to incredible prizes—all while supporting the Huntington’s Disease community. 💙 🎟️ How to Enter: Grab your tickets here https://lnkd.in/g55JWyTt 🌟 Prizes include: A Barbour Gilet Jacket, Everton FC Signed Pennant, Lush Voucher, Name a Star Gift Box and so many more Hurry—don’t miss out on your chance to make a difference and win amazing prizes! 🙌✨

Join us on 7 November for our Creatives Group, where we’ll hear from Emma Bracegirdle of The Saltways and Clare Elman from Huntington's Disease Association about how to create authentic video content through co-creation. Find out more and book your place here: https://bit.ly/4aFAIi8 #CharityComms #Creatives #Authenticity #Charity #Communications

❄️ This festive season, why not send a card that gives back? Our Huntington's Disease Association Christmas cards are a perfect way to spread joy while supporting those impacted by Huntington's disease. ✨ Shop now and make a difference: https://loom.ly/pFeXsP4op

We caught up with Dr Nayana Lahiri, a Clinical Geneticist at St. George’s Hospital in London and a charity Trustee. In this clip, she talks about the developments in staging symptoms of Huntington’s disease and how drug companies could implement this in their trials

The Huntington’s Disease Youth Engagement Service are running an escape room event in Sheffield for those aged 14 - 25 affected by Huntington’s disease. This is a great opportunity to relax, have some fun, and meet other people who have Huntington’s in their families. The event is free, lunch will be provided, and travel costs can be reimbursed. https://loom.ly/WMXIak0

Last week was World Mental Health Day, but mental health is such an important topic for anyone living with a degenerative disease such as Huntington's. A member of the Huntington’s community came up with an idea we would like to share with you. Sarahjane’s daughter, Charly is 32 years old. After noticing that due to her symptom progression, Charly had lost contact with many friends and family. Sarahjane came up with an initiative - ‘One day a year’. If someone you know is living with a disease or illness and you haven’t seen them in a while, reach out to them and arrange a time to visit or meet up - you could really make someone’s year. Read more on our blog here: https://lnkd.in/e4sED5xX

Today we are taking a moment to say thank you to everyone who has supported our work. Whether you donated, attended a webinar, voted in our annual awards, opened a #TeamHDA email or shared one of our social media posts, your kindness and generosity helps those living with Huntington’s disease. We hope you already know how much your fundraising, volunteering and support means to us, but we just wanted to share our appreciation a little further. We achieve nothing without you our supporters and we would like to take this moment to thank you all. Here is a snapshot of what your support helped us achieve in the past financial year.

How do you help your mental health? Cara talks in this video about how she looks after her mental health and wellbeing. If you have any tips for the community, comment them below.

As part of #WorldMentalHealthDay we asked our ambassadors what they do to help their mental health. Charlotte speaks in this video about how exercise helps her mental health. What do you do to help your mental health?

This #WorldMentalHealthDay we asked our ambassadors and community why talking about their mental health is so important. Liv one of our ambassadors talks about accessing support and why she wants to talk about mental health.