The International Alliance of ALS/MND Associations

What technology could help improve daily life for those living with ALS/MND? We're supporting our member association, LifeArc to better understand the daily challenges of living with ALS/MND to guide the development of new technologies. Share your thoughts in their short survey: https://lnkd.in/g_7PpXJa The survey is open to anyone affected by ALS/MND, including: ▪ Those living with ALS/MND ▪ Caregivers or supporters of someone with ALS/MND ▪ People who have lost someone close to ALS/MND ▪ Those with a gene that puts them at a high risk of developing ALS/MND, or those who have a family history of the condition People affected by ALS/MND are experts in daily life with the condition – so we need to hear from you! Insights from this survey will inform investment into future LifeArc research aimed at creating technologies to improve the lives of those affected by ALS/MND. Thanks for your support, and for taking the time to complete the survey.

🎉 We're launching our Poster Hall on October 29, where you can browse posters from all over the world in dynamic online galleries with videos from the authors. 🌍✨ Then on November 14, join us to talk with the poster authors and your peers. To meet the time zone needs of our diverse community, these discussions will be at 7:00 AM ET and 7:00 PM ET. 📅 The virtual Poster Hall will then remain open until the close of the Allied Professionals Forum on December 4-5. (Registration for the Forum is open and you can attend in person or virtually!) The Poster Hall is free! If you've already registered for the Allied Professionals Forum, you're Poster Hall ticket is included. 🌎🕖 Register for the Poster Hall: https://ow.ly/xwsT50TT9Cg

🌟 Experience Assistive Technology at the Allied Professionals Forum in Montreal! 🌟 Assistive tech like motorized wheelchairs, voice banking tools, and even eye-gaze technology make living with ALS/MND more manageable. This year, we’re bringing something new to the Allied Professionals Forum in December — an interactive “A Day in the Life” experience room! Explore devices like mechanical eating assistants, smart-home tech, virtual reality travel, and more. Meet exhibitors and get hands-on with these life-changing innovations. Sign-ups for in-person groups will be shared with registrants. For our online participants, a virtual walk-through will also be available. Learn more: https://lnkd.in/geqi2Xz9 😊

What technology could help improve daily life for those living with ALS/MND? We're supporting our member association, LifeArc to better understand the daily challenges of living with ALS/MND to guide the development of new technologies. Share your thoughts in their short survey: https://lnkd.in/g_7PpXJa The survey is open to anyone affected by ALS/MND, including: ▪ Those living with ALS/MND ▪ Caregivers or supporters of someone with ALS/MND ▪ People who have lost someone close to ALS/MND ▪ Those with a gene that puts them at a high risk of developing ALS/MND, or those who have a family history of the condition People affected by ALS/MND are experts in daily life with the condition – so we need to hear from you! Insights from this survey will inform investment into future LifeArc research aimed at creating technologies to improve the lives of those affected by ALS/MND. Thanks for your support, and for taking the time to complete the survey.

🧬 Nguyen Minh Duc came to our 2023 conference to learn more about strategies to share information and help people living with ALS/MND and their caregivers. His experience with that lack of accessibility for Vietnamese families is an example of the challenge faced by others when the information is not available in their language. 📺 Watch the video now to hear about his journey. Then we hope you’ll join us in Montreal, Canada, this December 4-5, 2024: https://ow.ly/VHcb50RL2xw

🏥 The World Rehabilitation Alliance has a new Rehabilitation in Emergencies factsheet. 🏥 In any emergency, and particularly now with hurricane season upon us, people continue to require rehabilitation for health conditions unrelated to the emergency. Use and share this resource to support our ALS/MND communities and healthcare providers in emergency settings. Let's ensure rehabilitation is integrated into disaster responses and recovery efforts. 🔗 https://lnkd.in/gB7Wm24t #RehabInEmergencies #WorldRehabilitationAlliance #Rehab2030

This webinar will provide information on ALS/MND treatments currently in Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered and who to contact if more information is needed.

🌍 If your company has a matching program for donations, please look for The International Alliance of ALS/MND Associations as a recipient on your giving portal. Support our global work towards a world free of ALS! 💪💙 #ALSMNDWithoutBorders

If you are coming to Montreal for the meetings in December, stay an extra few days in Canada and tour Quebec City as well. Here are some recomendations for things to do from our friends at Quebec Tourism. https://lnkd.in/gpqRemPU

🧬 For Bruce Virgo, a person living with ALS/MND, events like our Allied Professionals Forum are important because they give him the chance to ask his questions to real people and share knowledge that cannot be obtained through online research. In the video, you will hear his enthusiasm! 📺Watch it now. Then we hope you’ll join us in Montreal, Canada, this December 4-5, 2024: https://ow.ly/MqYW50RL2x6