ME Association

Recognise ME – Raising Awareness in GP Practices   The ME Association is committed to improving healthcare for people with ME/CFS. This month, we have commissioned a distribution company to ensure leaflets and posters will be displayed in around 3,000 GP surgeries in the UK.   https://lnkd.in/dR-nWudR   #pwME #MECFS #MyalgicEncephalomyelitis #PrimaryCare #HealthcareProfessionals #MEAwareness #RecogniseME #MEAssociation

If you are a wheelchair user, do you have any recommendations on comfortable cushions? A member of the ME/CFS community says: "I would like to ask fellow members about wheelchair cushions. I just don't know how to choose the most comfortable well padded cushion." N.B. Please note: If you have a medical issue (i.e pressure sores)that relates to this question, you would need input from a healthcare professional to provide information, advice, and an appropriate pressure relieving cushion. #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid #Wheelchair 

Website survey: Migraines, Headaches & ME/CFS - Final Call! Myalgic encephalomyelitis/chronic fatigue syndrome has a wide range of debilitating symptoms which include chronic pain and overwhelming exhaustion that significantly impacts quality of life, and among the co-morbid conditions people may experience are migraine type headaches. If you haven't done so already, please take our survey here: https://lnkd.in/enSKjjzs N.B. The survey is mainly for people who have headaches/migraines, however, please complete the first question if you do not experience this co-morbid condition. #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid #Fibromyalgia #TMJ #Migraine #MigraineAwarenessWeek2024

Job Opportunity: Freelance Press Officer - CLOSING DATE 3rd November    The nature of ME/CFS being in the news can be unpredictable and hence the Press Officer will need to be able to be called on at short notice and work unusual hours if necessary, including evenings and weekends.    To find out more and apply, please see link: https://lnkd.in/dg3a-XEg    #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid #Freelance #PressOfficer 

ME Association 2024 charity Christmas Cards are available to buy today!    With two designs to choose from: Village Snow Scene or Red Robin.    Please see our website shop - £4.50 per pack & UK Delivery Only - to order your choice of charity cards    https://lnkd.in/e-meb52P    Information: Packs of 10. The wording inside the card reads: ‘Season’s Greetings and Best Wishes for the New Year’.    Size: 6 inches x 6 inches (15cm x 15cm)    #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid #PostCovid #CharityCards #ChristmasCards #Christmas #Christmas2024 

Updated Booklet: Flu Vaccination & ME/CFS 2024/25 As there is no simple yes/no answer as to whether people with ME/CFS should have a flu vaccine, the purpose of this information is to supply you with everything you need to know to make a personal decision that is right for you. https://lnkd.in/eXQhuNDC #pwME #MECFS #MyalgicEncephalomyelitis #Influenza #Flu #FluVaccination #AutumnWinter2024

Sir Sajid Javid writes a letter to The Times supporting the call to the government to take action to help people with ME/CFS Read the letter in response to "Streeting must act to give ME patients the care they need ” posted on Oct 9 here: https://lnkd.in/ertPEx-C #MECFS #MyalgicEncephalomyelitis #SevereME #MaeveInquest #WesStreeting 

Our Carers represent the ME Association at Westminster:   "On the 8th October, the ME Association was invited to a parliamentary drop-in event as part of Carers Week 2024.  Held at Portcullis House, Westminster, this was an opportunity to meet MPs and Peers to highlight ME/CFS and the huge contribution our carers make.    The specific aim of the event was to enable carers and supporter charities to meet with MPs so they could outline what the reality of caring unpaid for a friend or family member is like in 2024."   Read more about the event on our blog: https://lnkd.in/e35ywXyz   #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid #Carers #UnpaidCarers #CarersUK  

Medical Xpress: Study finds persistent infection could explain long COVID in some people “Brigham researchers have found that people with wide-ranging long COVID symptoms were twice as likely to have SARS-CoV-2 proteins in their blood, compared to those without long COVID symptoms. A persistent infection could explain why some people experience long COVID symptoms, according to a new study led by researchers at Brigham and Women's Hospital. The team found evidence of persistent infection in 43% of participants with multiple symptoms of long COVID.” Read the full article here:  https://lnkd.in/d8nUEzYu #pwME #MECFS #MyalgicEncephalomyelitis #LongCovid #Research #PostCovid #ImmuneDysfunction 

Kings College London: Long COVID symptoms prevalent among healthcare workers “New research from the Institute of Psychiatry, Psychology & Neuroscience (IoPPN) at King's College London, and University College London has found that 33.6% of surveyed healthcare workers in England report symptoms consistent with post-COVID syndrome (PCS), more commonly known as Long COVID. Yet only 7.4% of respondents reported that they have received a formal diagnosis.” Read the article in full:  https://lnkd.in/ezJjGMKC #pwME #MECFS #MyalgicEncephalomyelitis #LongCovid #Research #PostCovid #NHS #HealthcareWorkers #HealthcareProfessionals