Muscular Dystrophy UK

Muscular Dystrophy UK

Non-profit Organizations

London, England 3,736 followers

We’re here for everyone living with and affected by muscle wasting and weakening conditions.

About us

We connect a community of over 110,000 people living with one of 60 muscle wasting and weakening conditions, and all the people around them. Living with a muscle wasting and weakening condition can be exhausting, stressful and lonely. With endless medical appointments, physiotherapy, treatments and respiratory support. We share expert advice so people can live well now; fund groundbreaking research to understand the different conditions better and to lead us to new treatments; work with the NHS towards universal access to specialist health, and together, campaign for people's rights. Together we are stronger. Join us. Our #MusclesMatter.

Industry
Non-profit Organizations
Company size
51-200 employees
Headquarters
London, England
Type
Nonprofit
Founded
1959
Specialties
Research, Advocacy, Campaigning, Care, and Fundraising

Locations

Employees at Muscular Dystrophy UK

Updates

  • View organization page for Muscular Dystrophy UK, graphic

    3,736 followers

    Today we’re delighted to publish our 2023/2024 Impact Report. This past year, we came together as a community to ensure that everyone living with a muscle wasting or weakening condition receives the healthcare, support, and treatments they need to grow stronger—both mentally and physically. Our Interim Chief Executive, Wojtek Trzcinski, reflects on the accomplishments, successes and significant milestones we've achieved together over the last year. Read Wojtek's blog: https://loom.ly/ow5j8Us

  • View organization page for Muscular Dystrophy UK, graphic

    3,736 followers

    We welcome the UK Government’s prioritisation of the #NHS in today’s Autumn Statement. ⏰ The investment aimed at reducing waiting times, repairing hospitals, and boosting productivity is a positive step forward. However, it is essential that individuals with muscle-wasting and weakening conditions, who already face gaps in health service provision, see this investment extend to specialist services as well. 💼 While we appreciate the challenging financial context, we are disappointed that the Government plans to continue the damaging reforms to the Work Capability Assessment proposed by the previous administration. Our community is also anxiously awaiting clarity on other reforms to the benefits system, which will now only be shared in early 2025. 🧡 We’re pleased to see more support for the cost-of-living crisis, especially for carers. However, more targeted assistance is needed for disabled people and the long-term sick who face additional costs. #Budget2024 #CostOfLiving #Support #CommunityCare

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  • View organization page for Muscular Dystrophy UK, graphic

    3,736 followers

    On Friday night, 400 guests attended a Gala Dinner at The Brewery organised by the Junior Board of Barratt London. Together, we raised an amazing £110,000 to help change the future of muscle wasting conditions. The evening featured inspiring speeches from our Trustee, Michelle Anthony, Vice President Jerry Champion, and Martin Hywood. A big thank you to Harry Woodhouse and the entire team for their hard work in making this event a success. A huge thank you to everyone who donated. 🧡

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  • View organization page for Muscular Dystrophy UK, graphic

    3,736 followers

    "Almost a year into married life, I still don’t want it to be my husband doing this medical routine for me, so I need to think about who can do my regular chest checks as I don’t see medical staff that often." 🎗️ In honour of Breast Cancer Awareness Month, we want to share the experiences of Chloe Docker and Becca, who live with muscle wasting conditions. Chloe has visited a Breast Care Centre twice and has had to adapt her way of checking her breasts as her condition has progressed. 📅 Meanwhile, Becca has never been able to check her own breasts. She recently had an important conversation with her mum and offers valuable advice on how to approach carers for support. 💬 Read more in collaboration with CoppaFeel!: https://loom.ly/EC6gzNI #BreastCancerAwareness

    • In the image, two women are sitting outdoors in their wheelchairs, both wearing vibrant floral dresses. On the left, the woman is on a paved path lined with greenery, smiling and relaxed. On the right, the other woman is seated in a lush garden surrounded by trees, also smiling warmly. The image includes the logo for "CoppaFeel!" in the top left corner with the text "breast cancer awareness" below it.
  • View organization page for Muscular Dystrophy UK, graphic

    3,736 followers

    Today is the launch of The Remarkable Life of Ibelin on Netflix and in cinemas! This film tells the amazing story of Mats Steen, a young gamer who lived with Duchenne muscular dystrophy. 🧡 Mats found a whole new world through his character Ibelin in World of Warcraft, allowing him to break free from his physical limitations and connect with people from all over the globe. 🌏 The film highlights the power of gaming to bring people together and show that even in tough times, we can find joy and connection. 🤝 Please note: This film is an inspiring story about friendship, strength, and how gaming brings people together. It follows a young boy with muscular dystrophy and shows how his journey affects his friends and family. While the story is uplifting and filled with hope, it also deals with the topic of loss. We hope this movie gives comfort and inspiration to viewers, but be prepared — it might bring up some strong feelings. #TheRemarkableLifeOfIbelin

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  • View organization page for Muscular Dystrophy UK, graphic

    3,736 followers

    Last week, an amazing team of 15 adventurers successfully scaled Africa’s highest free-standing mountain, Kilimanjaro, raising an impressive £86,078 so far (including £11,597 in GiftAid). ⛰️ These funds will enable groundbreaking research and provide life-changing support to our community affected by muscle wasting conditions. Thank you to this amazing team for your hard work, and to all those who contributed — their efforts are helping us take real steps toward a future with better treatments, and more support.

    • A group of individuals stands proudly on a mountain peak, holding a banner that has Muscular Dystrophy UK on.
    • A group of individuals stands triumphantly on a mountain peak beside a sign, celebrating their achievement in nature.
  • View organization page for Muscular Dystrophy UK, graphic

    3,736 followers

    What happens when the commercial property sector hits the football field? 🤷 We found out at the annual Marchmont Investment Management 5-a-side tournament, where over £24,000 was raised to change the future of muscle wasting conditions. This month, 210 members gathered at Powerleague Battersea, where 30 teams competed fiercely for the trophy, generously sponsored by Helme + Partners . The money raised will support the 110,000 people affected by muscle wasting conditions. Congratulations to our finalists— Knight Frank, INVESCO, Curo Construction ltd, and CBRE Investment Management, with CBRE Investment Management taking home the title! Thank you to everyone involved, and we hope to see you next year. If your company wants to host a supportive event, we’d love to help. Please get in touch—together, we’re stronger. #StrongerTogether

    • A group of men and one woman smiling and posing together, holding a soccer ball in a cheerful outdoor setting.
  • View organization page for Muscular Dystrophy UK, graphic

    3,736 followers

    Today, one of our longest-standing corporate partners, CeX Webuy.com, announced they have raised an incredible £200,000 for us through donations and their customer trade-in scheme. We are beyond grateful for their ongoing support!   To mark this milestone, CeX has released a special video interview featuring actor and voiceover artist Ralph Ineson. 🎬🎮   In this interview, our Corporate New Business Officer, Martin Hywood, talks to Ralph about everything from video games and technology to his unforgettable moments in Star Wars and Harry Potter.   Watch the interview and read the full story here: https://lnkd.in/gA-EFayu   #CorporateSocialResponsibility

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  • View organization page for Muscular Dystrophy UK, graphic

    3,736 followers

    Earlier this month, the "Jon Richardson and Friends" comedy show returned to Aylesbury Waterside Theatre for a night of non-stop laughs— and raised over £43,000! Huge thanks to the amazing comedians Suzi Ruffell, Kojo Anim, Ivo Graham, Tim Vine, Louise Young, and Matt Forde for keeping us laughing all night! 🙌 And a special shoutout to Martin Hywood and Jon Richardson for making it all happen. Thank you to everyone who came, donated, and supported us. Together, we're helping the 110,000 people in the UK living with muscle wasting and weakening conditions. Read more: https://loom.ly/QhpUv5c

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