Patients Know Best

As an SME, we believe in the strength of collaboration and collective power. Every day, we work with partners who are sometimes also our competitors, yet we share many common challenges that are best addressed together. No one embodies this belief more than our Chief Commercial Officer, Sally Rennison, who has proudly served on the techUK Health and Social Care Council for the past three years. With a new government and significant changes on the horizon, she can use this experience to advocate for the vital role SMEs should play in shaping the future of our country, particularly within the NHS. If you are a member of TechUK and haven’t voted yet, please consider supporting someone who cares deeply about the HealthTech sector’s future. #VoteSally #WomenInTech #TechUK #SME

As we fast approach the end of the year, it’s motivating to reflect that a lot can be achieved in a month!     We kicked off October with the exciting news that Calderdale and Huddersfield NHS Foundation Trust is now live with our PHR functionality.  The Trust has started sharing allergy information, a core pillar to enhancing awareness and safety, and we’re looking forward to rolling out more features soon.   In the south,  Queen Victoria Hospital NHS Foundation Trust followed with their appointment feed going live on October 7th - marking another significant advancement in providing patients with digital access in the Sussex region. Meanwhile, in London, Barts Health NHS Trust is rapidly expanding PKB.  Most recently, consent forms are now being added as documents to patients’ records.  Additionally, they have introduced an SMS feed designed to prompt unregistered patients about new data in their PKB record with follow up texts to encourage registration. Clinical teams across the UK continue to harness PHR features to improve patient care.  For example at Barking, Havering and Redbridge University Hospitals NHS Trust, the IBD has introduced care plans and Advance Questionnaries for patients with Crohn’s and Colitis.  And we’re particularly thrilled that Maternity service users at London North West Healthcare NHS Trust can now complete their personalised care support plans digitally.  Having access to information in one place empowers them to make informed decisions throughout their pregnancy journey. The UK Kidney Association has been instrumental in supporting patient access to their test results.  So we are thrilled to conclude the month by reaching over 40,000 registered kidney patients within the national UKKA team and achieving a 43% registration rate. Congratulations and thank to our customers and teams for the work to make this progress a reality. Ultimately, what matters most are the personal stories from patients who tell us how access to their health records has made a difference in their lives.  A big thank you to Kerry for brightening our week by sharing her experience here 👇 #PersonalHealthRecord #PatientEmpowerment

Congratulations to everyone at North London NHS Foundation Trust on a momentous day for mental health services in North London. We wish the newly combined organisation all the best for the years ahead.  It is a fantastic opportunity to unite your strengths in support of service users in the region, and we're both proud and excited to help enable this important mission Sarah Wilkins Flevin M. Emily Burch Lauren Foster Ashadul Haque (RITTECH) Lynn Blinkhorn #NorthLondon #BetterMentalHealth #PersonalHealthRecord

Great to join Foysol Ahmed and the team from Barts Health NHS Trust down at Tower Hamlets Town hall today. Here to introduce PKB to patients having their health checks and booster vaccinations. #PersonalHealthRecord #PatientEmpowerment

Last week the government launched its public consultation process to shape the 10 year plan for the NHS and announced its commitment to delivering a national Digital Health Record system.  For almost two decades, Mohammad Al-Ubaydli has been at the forefront of solving what is a complex area. With heightened media interest, he has been helping to explain what this means to the general public - the value of patients accessing their medical records, why it’s  been complicated to deliver and why, with proven NHS examples already in practice, now is the time to scale it.   Here's a few snippets from one of his recent interviews on LBC which succinctly summarised why we do what we do. #PersonalHealthRecord #PatientEngagement #DigitalHealthRecord

Yesterday, we joined the wonderful paediatric epilepsy team from Cambridgeshire Community Services NHS Trust for an awareness day in Luton introducing young adults, parents/carers and professionals to online support with PKB. It’s a sobering reminder that around 1 in 100 people live with epilepsy in the UK. Managing this condition can be challenging, often requiring coordination among multiple teams to provide effective support.  So it was truly inspiring to be on the ground sharing and hearing feedback on how access to a personal health record can help: ✅ Care plans with information and emergency care guidance for patients to manage at home.  For the paediatric epilepsy team this includes a CHIT CHAT care plan to support children as they approach adult services ✅ Symptom tracker and diary for patients or carers to document seizures for clinicians to review ✅ Two-way messaging for quick and efficient communications between patients and their clinical teams.  The attachment feature allows them to attach key documents to share and patients to send a video of their seizure, The team covering Luton and Bedford find this often helps alleviate the need for an in-person appointment ✅ Medical record detailing important information such as medication and care plans for patients to share with others involved in their care. Thank you for giving us the opportunity to meet and hear such positive patient feedback on your work to support them with PKB.  #epilepsyawareness #PersonalHealthRecord ##PatientEmpowerment

fantastic talk by Mohammad Al-Ubaydli on #personalhealthRecords & how important it is to put in place to effectively manage care, especially in chronic conditions. regulation plays a huge part in adoption and development. This can also be a force for good in terms of integration and interoperability. #GHE24

My CME session "Digital Programmes and the Future of Chronic Disease Management" is on Tuesday 22nd at 2:50 (no longer 2:15!). Join me at Global Health Exhibition - ملتقى الصحة العالمي at the Leaders Summit room to learn about innovations from Holly Health Chiron Health AI and others. I'm at GHE all week if you want to meet up, drop me a message on LinkedIn.

We’re looking forward to joining everyone at #GHE24 tomorrow. Message Mohammad Al-Ubaydli if you’d like to meet up. #PersonalHealthRecord #DigitalHealth #PatientEmpowerment

A pan-Arab personal health record: what would that look like for every person in every country in the Arab world? Healthcare World has published my article explaining how to make this happen. I’m off to Global Health Exhibition - ملتقى الصحة العالمي today, starting with a Ministry of Health event on investing in #saudiarabia that Patients Know Best has sponsored. I look forward to speaking alongside Dr Adil Monshi, Jacqui Rock, FCIPS l, Nick Dobrzelecki, Shehzad Jamal, and Recai Serdar Gemici. If you are in #riyadh this week, message me on LinkedIn so we can meet.