Rett UK

Your amazing Daryl 💜 💜 !! https://lnkd.in/d9sMz7zv

Will you be joining our next "Communication Partner Drop-In Clinic"? 👥 A chance for anyone supporting an individual with Rett syndrome to get their communication questions, big or small, answered! The next session is taking place: 🗓 Thursday 2nd May ⏰ 12:00 - 13:00 🔗 On Zoom (link below) If you support someone with Rett syndrome and have any questions about their communication – big or small – this is an opportunity for you to get answers. It's also a time to share any communication highs/lows. No need to register or stay for the full time, just drop in during the clinic hour and ask our RCCs for help. It doesn’t matter what stage of communication the person with Rett syndrome is at – there may be nothing in place yet or you may be a bit further on and feeling stuck. No question is too silly or scary! To join our session on Thursday (02.05), simply click on the following link: 🔗 https://lnkd.in/epPV-UVU These sessions run twice monthly so if you can't attend this clinic the next one is taking place on Tuesday 20.05 at 20:00. If you have any questions or issues please get in touch 💜💚 #RettUK #RettSyndrome #CommunicationPartnerDropInClinic

We’re supporting Newlife the Charity for Disabled Children’s new report, Fight For Our Future, which reveals the bleak situation facing disabled children and their families. Did you know? Over the last year, 60% of local authorities have seen assessment waiting lists grow, while nearly half have reduced their equipment budgets. They are urging government to #ACTNow Please read and share the report: 🔗 https://lnkd.in/eSRgyKdi #RettUK #RettSyndrome

🗞️ The Rett UK newsletter is out now, packed full of information and news: 🔗 https://lnkd.in/eKGvdcPU Subscribe to the newsletter here if you haven't already: 🔗 https://lnkd.in/ermiPK3p #rett #rettsyndrome #syndrome

💜 What's Happening at Rett UK This Week? 💚 Let's take a look at what we've got coming up this week! Make sure to mark this in your calendars so you don't miss out 🗓️ Communication Partner Drop-In 👥 🗓️ Thursday 2nd May ⏰ 12:00 - 13:00 🔗 Zoom: https://lnkd.in/epPV-UVU -- You can find links to all our events here too: 🔗 linktr.ee/rettuk Any questions please get in touch! We hope you have a lovely week 💜 💚 #RettUK #RettSyndrome #WeeklySchedule #CommunicationPartnerDropIn

Don't miss our next "Online Peer Session" 👥 An opportunity for people with Rett syndrome of any age, to come together, connect, have fun and communicate! The next session is taking place: 🗓 Saturday 27th April ⏰ 10:00 - 11:00 🔗 On Zoom (link below) These sessions will be facilitated by our RCCs, with activities and topics steered by the interests of the group! There is no need for a formal communication system to be in place, any form of communication can be used (e.g. no tech, paper-based, eye gaze device). And there is absolutely no pressure or requirement to speak up - you can just come along and listen. This is open to people with Rett syndrome of ALL ages, so you could even join in from school. Each person with Rett syndrome needs to be accompanied by a supporter. To join our session THIS SATURDAY (27.04), simply click on the following link: 🔗 https://lnkd.in/ewMPVgTc These sessions run twice a month so if you can't attend this group the next one is taking place on Monday 13.05 at 13:30. If you have any questions or issues please get in touch 💜💚 #RettUK #RettSyndrome #OnlinePeerGroup

📢 Calling all families in Central Scotland 📢 As fresh spring air begins to fill our skies, why not join our Regional Communication Champions for a grand day out with all the family?! 🌸🌤 🗓 Sunday 28th April ⏰ 10:00-14:00 📍 Meet Tracey at Craighalbert Centre, 1 Craighalbert Way, Cumbernauld G68 0LS Book your place here: 🔗 https://lnkd.in/erfKbC7s 🚨 Sign-up form closes at 17:00 (5pm) on Thursday 25th April 🚨 There are changing facilities and a kitchen if you want to bring a picnic lunch/need to heat something up. Mums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking. #RettUK #RettSyndrome #OutandAboutGroups #Spring #FamilyActivities #CentralScotland

Feeling inspired by the London Marathon and our wonderful team of runners this weekend?! Why not sign up for the 2025 London Marathon for #RettUK 🏃 🗳️ Official Ballot and Own Place Runners 🗳️ We highly recommend everyone apply for the London Marathon public ballot if they would like to run for us. If you are successful in the public ballot, you can still run for Rett UK! 🚨 The ballot for the 2025 TCS London Marathon closes on Friday 26th April 2024 🚨 Enter the ballot here: 🔗 https://lnkd.in/eMArNiVH 💜 Charity Place Runners 💚 Rett UK have a limited number of London Marathon places each year! Applications for our 2025 London Marathon charity places can be made here: 🔗 https://lnkd.in/evhdzesd We will be reviewing all applications and inform everyone if they have been successful before the end of October 2024 🚨 Are you ready to take on the challenge for #TeamRett? Good luck 🍀 🍀 #RettUK #RettSyndrome #TeamRett #LondonMarathon2025 #TCSLondonMarathon #LondonMarathonBallot

🖥️ Literacy Webinar: Making Words 🖥️ Join us on Zoom to watch a webinar presented by Tracey Campbell, where she discusses mental health, behaviour and Rett syndrome. Webinar: Mental Health, Behaviour & Rett Syndrome 💻 🗓️ Wednesday 24th April ⏰ 20:00 - 21:00 🔗 Zoom: https://lnkd.in/edgqig2h 🚨 There is no need to register for this webinar, simply join via the link above 🚨 Please note: *Members of our team will be available to answer any questions via live chat! **There will be a replay of this webinar announced at a future date. Any questions please get in touch 💜 💚 #RettUK #RettSyndrome #Webinar #MentalHealthBehaviourandRettSyndrome

💜 What's Happening at Rett UK This Week? 💚 Let's take a look at the different events we've got coming up this week! Make sure to mark them in your calendars 🗓️ Webinar: Mental Health, Behaviour & Rett Syndrome 💻 🗓️ Wednesday 24th April ⏰ 20:00 - 21:00 🔗 Zoom: https://lnkd.in/edgqig2h Online Peer Session 👥 🗓️ Saturday 27th April ⏰ 10:00 - 11:00 🔗 Zoom: https://lnkd.in/ewMPVgTc Central Scottish Spring Out & About Group 💐 🗓️ Sunday 28th April ⏰ 10:00 - 14:00 📍 Craighalbert Centre, Cumbernauld, G68 0LS 🚨 Sign-up closes on Thursday 25th April at 17:00 🚨 🔗 https://lnkd.in/erfKbC7s 🔗 -- You can find links to all our events here too: 🔗 linktr.ee/rettuk Any questions please get in touch! We hope you have a lovely week 💜 💚 #RettUK #RettSyndrome #WeeklySchedule #Webinar #MentalHealthBehaviourandRettSyndrome #OnlinePeerSession #OutandAboutGroup #Scotland