TREAT-NMD

Happy St Patricks Day! 🍀 TREAT-NMD® are delighted to be attending Muscular Dystrophy Association #MDA2025 in Dallas over the next few days! The team are looking forward to engaging with the global neuromuscular community and gain insights into the latest advancements in research and care for individuals living with neuromuscular diseases.  If you're at the conference, and see us around, don't hesitate to say hello - we'd love to connect!   #MDA76 #musculardystrophy #neuromuscular

🏥 How DMD Standards of Care Shape Clinical Trials. Understanding standards of care is crucial when designing effective clinical trials for Duchenne therapies. DMD Industry Day Symposium will cover these internationally recognised standards.  🗣 Learn from top experts and network with leaders!  📍 Prague | 11th July 2025 🎟 Register now: https://lnkd.in/e87JCh9J  #Duchenne #DMD #ClinicalTrials #Biotech #Pharma

📢 TREAT-NMD at MDA 2025! We’re thrilled to be attending the Muscular Dystrophy Association Clinical & Scientific Conference next week! This is an incredible opportunity to connect with global leaders and advance the conversation on neuromuscular disease research and care. If you’re attending, we’d love to meet you! Drop us a message or stop by to learn more about our work and explore potential collaborations. #MDA2025 #NeuromuscularResearch #TREATNMD #Collaboration #Innovation

🚨 Big news for the Duchenne community! 🚨 CureDuchenne and CHOC Children's are teaming up to open the CureDuchenne Clinic within CHOC’s Neuromuscular Programme, making it easier for families to access expert care and the latest treatments for Duchenne muscular dystrophy (DMD). Here’s what this means: ✅ More expert-led care, all in one place ✅ Faster access to new treatments and clinical trials ✅ Better support for patients as they transition to adult care ✅ More help for low-income families to access care Thanks to $1.5 million in funding from CureDuchenne, this partnership is set to change the future of Duchenne care. 🔗 Learn more: https://lnkd.in/gHvapcZB #Duchenne #DMD #CureDuchenne #GeneTherapy #RareDisease #NeuromuscularCare

Q: How is TACT different from a scientific advisory board?  A: TACT is not a standard advisory board—it offers something unique: Multidisciplinary Expertise: Panels consist of experts across diverse fields tailored to your needs. Bespoke Panels: Each panel is assembled based on the specific questions and challenges you present. Independent and Unbiased: Reviewers are not paid by the applicant, ensuring impartial advice Broad Scope: The advice covers scientific, regulatory, clinical, and other relevant areas. TACT is designed to provide strategic, actionable recommendations—not just discussion. Upcoming Meetings: Athens, Greece – May 2025 Atlanta, USA – November 2025 (slots available) Virtual meetings available on request Apply to be considered now: https://lnkd.in/eww88JPA Read more FAQs: https://lnkd.in/ePcgQDs7 committee-for-therapeutics-faqs/ #TACT #NeuromuscularResearch #ClinicalTrials #DrugDevelopment #TREATNMD

⏳ Early Bird Tickets – Time is Running Out! The early bird ticket deadline is 31st March! Don’t miss your chance to attend DMD Industry Day Symposium at a discounted price.  Why Attend? ✅ Learn from key opinion leaders ✅ Gain a comprehensive understanding of DMD ✅ Ask questions in an interactive environment ✅ Connect with like-minded professionals 🎟 Register now before prices go up! 🔗 https://lnkd.in/e87JCh9J #TREATNMD #Duchenne #Pharma #Biotech #ClinicalResearch

💜 Celebrating the Women of TREAT-NMD® this #IWD2025 💜 Ahead of International Women’s Day, we recognise and celebrate the incredible women who make TREAT-NMD® what it is. We’re proud to work alongside such talented and passionate women who are helping to accelerate treatments and improve patient care worldwide. 🌍✨ #InspiringInclusion #WomenInScience #IWD2025

Q: How do I receive advice from TACT  A: Unlike a traditional advisory board, TACT doesn’t provide immediate feedback during the meeting. Instead, you’ll receive a detailed, confidential report six weeks later, covering general recommendations from the expert panel and also answers to specific questions asked. This ensures you get structured, well-considered guidance to support your next steps. Upcoming Meetings: Athens, Greece – May 2025  Atlanta, USA – November 2025 (slots available) Virtual meetings on request Apply to be considered now: https://lnkd.in/eww88JPA Read more FAQs: https://lnkd.in/ePcgQDs7 committee-for-therapeutics-faqs/ #TACT #NeuromuscularResearch #ClinicalTrials #DrugDevelopment #TREATNMD

🚨 There’s still time to apply for the TREAT-NMD® LGMD Masterclass! 🚨 Are you a healthcare professional looking to deepen your expertise in LGMD? Join us in Montreal, Canada, on April 24-25, 2025, for a two-day immersive Masterclass featuring expert-led sessions, case studies, and networking opportunities.  📅 Apply now before it’s too late!  🔗 https://wkf.ms/49ojKWo #TREATNMD #LGMDMasterclass #Neuromuscular #MedicalEducation

As always, a truly inspiring start to the Parent Project aps conference in Rome bringing a holistic perspective to living with Duchenne and Becker disease #TREAT-NMD