Vasculitis UK

'I still can’t forget those words': mixed methods study of the persisting impact on patients reporting psychosomatic and psychiatric misdiagnoses A research team in Cambridge conducted a study to better understand the lasting effects of patient-reported psychosomatic and psychiatric misdiagnoses on individuals with systemic autoimmune rheumatic diseases (SARDs). Vasculitis is a rare condition that can be challenging to diagnose. Its symptoms often overlap with those of other autoimmune diseases or even cancer, yet many patients are frequently told their symptoms are psychosomatic. This misattribution can lead to delayed diagnosis and treatment, affecting a patient’s prognosis. But what impact does it have on their mental health and their trust in healthcare professionals? This study sought to explore these critical questions. We extend our gratitude to Dr. Melanie Sloan, Prof. David D'Cruz and their team for their ongoing efforts to investigate mental health and healthcare inequalities in systemic autoimmune rheumatic diseases like vasculitis. Follow the link for the published paper: 'I still can’t forget those words': mixed methods study of the persisting impact on patients reporting psychosomatic and psychiatric misdiagnoses. https://lnkd.in/ei3HmpzJ

#RareDiseaseDay2025 is TODAY! Vasculitis, is rare, vasculitis is (usually) chronic, vasculitis can be severe even fatal. Living with a rare disease like #vasculitis is challenging physically, emotionally and mentally. Today is a special day to create awareness! Spread the word! For more information about vasculitis visit Vasculitis UK's website: https://lnkd.in/eHXwipY #rarediseaseday #raredisease #vasculitisawareness Genetic Alliance UK ERN-RITA EURORDIS-Rare Diseases Europe

Rare Disease Day 2025 countdown, one week to go! Equity in a rare disease like vasculitis is not only about fair and equal access to diagnosis, treatment and healthcare; it is also about the equal opportunity to achieve the highest possible level of physical, emotional and mental wellbeing! #vasculitis #vasculitisawareness #RareDiseaseDay2025 #RareDiseaseDay #raredisease #equity ERN-RITAGenetic Alliance UK EURORDIS-Rare Diseases Europe

Rare Disease Day 2025 countdown, two weeks to go! 300 million people may sound a lot, but it is only 3.6% of the population and we are talking about more than 7,000 different rare diseases. Vasculitis is a group of rare conditions and it is a challenging illness to live with. It is not only challenging physically, but mentally and emotionally too. Having good support is essential, if you have a person with vasculitis in your life, be understang, be supportive. #vasculitis #vasculitisawareness #RareDiseaseDay2025 #RareDiseaseDay #RareDiseases

The countdown is on, 3 weeks until Rare Disease Day 2025 Vasculitis, more common than you think, more serious than you know. There are 20 different forms of vasculitis give or take. While they all account for blood vessel inflammation, they affect different organs, present with different symptoms, and require different types of medication. Learn about the different types of vasculitis: https://lnkd.in/ev2bX-yF

#RareDiseaseDay2025 countdown has begun. #Vasculitis is a group of rare conditions and can affect any gender or age. Vasculitis can be severe, even fatal if not diagnosed early and treated correctly. Learn more about vasculitis at https://lnkd.in/eHXwipY #RareDisease #Awareness #RareDiseaseDay

Register to the next Tuesday Lunch with RITA and learn about the VEXAS syndrome! #VEXAS #vasculitis #raredisease ERN-RITA European Reference Network

Vasculitis UK has places available for runners who would like to take part in the Great North Run on Sunday 7th September. We can offer a free place on the run, and a tee-shirt or vest for those fundraising for Vasculitis UK. If you are interested, please click on the link: https://lnkd.in/enJZCrab

We, from Vasculitis UK are wishing you Happy Holidays!

Vasculitis UK is pleased to announce its 2024 grant call for research proposals. The call launches on 16th September with a deadline for applications of 18th October 2024. More information here: https://lnkd.in/ekKNcDpZ #vasculitis #research #grants