Vitaccess

📢New blog alert 📢 In this “ISOQOL shorts”, we provide a summary of Sam Llewellyn's oral presentation on the “Development of two conceptual models to describe the patient and caregiver reported impacts of living with X-linked myotubular myopathy (XLMTM)”. https://bit.ly/4egZqXS

We’re excited to announce that our colleague Akosua Ofori will be attending the ESPE 2024 Meeting, where she will be presenting a poster on “Caregiver-reported quality of life of patients with MCT8 deficiency: Results from a cross-sectional survey” in collaboration with Egetis Therapeutics AB. The ESPE 2024 theme, “Lifelong endocrine care through collaboration, discovery and innovation,” aligns perfectly with our commitment to improving patient outcomes through research and collaboration. We look forward to connecting with others in the field to advance our shared mission of improving endocrine care. #ESPE2024 #MCT8Deficiency #RareDisease #EndocrineCare #PatientOutcomes

📢 New blog alert! 📢 Jack Lawrence, a Research Associate at Vitaccess, discusses maximizing the potential of electronic data capture platforms using Vitaccess Real, our proprietary digital data capture platform, as a case study: https://hubs.ly/Q02WqHlG0

This happy lot are heading to #ISPOREU in 3 weeks! Are you heading there too? If you'd like to meet up - just reach out to any of the team, or drop a message to info@vitaccess.com

Missed the ISOQOL conference this year? In this “ISOQOL shorts”, we provide a summary of Sam Llewellyn's oral presentation on “Leveraging SMS for patient-reported data collection”. https://hubs.ly/Q02VZ44t0

This morning, Sam Llewellyn our Director of Patient-Centered Research, will be presenting a second oral session at the 31st Annual ISOQOL Conference, titled "Development of two conceptual models to describe the patient and caregiver reported impacts of living with X-linked myotubular myopathy (XLMTM)". Find him at the Oral Session 302: Caregivers and Patient Support II, at 10:42 AM-10:59 AM CEST. Contact us today at https://bit.ly/4eqlnol if you will be attending the conference and would like to meet with a member of our team.

This afternoon, Sam Llewellyn, our Director of Patient-Centered Research, will be presenting an oral brief session on "Leveraging SMS for patient-reported data collection" at the 31st Annual ISOQOL Conference in Cologne, Germany. Find him at the Oral Brief Session 202: Implementation and Quality Improvement, at 2.38-2.46 PM CEST. Contact us today at https://bit.ly/3XUaXpV if you will be attending the conference and would like to meet with a member of our team.

It's almost time! Mark Larkin PhD and Anna Richards are heading down to Savannah, Georgia for the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) conference starting next week. Looking forward to connecting and discussing our syndicated patient registries in #MG and #CIDP. Get in touch if you’d like to meet up!

Next week, Sam Llewellyn our Director of Patient-Centered Research, will be presenting two oral sessions at the 31st Annual ISOQOL Conference. Will you be there? Session 1: Leveraging SMS for patient-reported data collection (B202.7) Session date: Tuesday, October 15; 2.38-2.46 PM CEST Session 2: Development of two conceptual models to describe the patient and caregiver reported impacts of living with X-linked myotubular myopathy (XLMTM) (302.2) Session date: Wednesday, October 16; 10:42 AM-10:59 AM CEST Contact us today at https://bit.ly/3Mzj7P1 if you will be attending the conference and would like to meet with a member of our team.

🚀 Exciting News! RUTISS and RUTIIQ now available as eCOA at Vitaccess 🚀 We’re thrilled to announce that Vitaccess, in partnership with InSpired Health Outcomes Limited, is the first eCOA provider to offer the patient-reported outcome measures RUTISS and RUTIIQ, developed by PARED Insights Ltd. Vitaccess will use the measures to gather crucial patient data of those living with recurrent urinary tract infection (rUTI) on behalf of clients. Applying our Vitaccess Real™ platform, we offer comprehensive real-world evidence (RWE) study design and delivery to support regulatory and health technology assessment submissions, inform product positioning or characterize the impact of diseases and treatments. With this partnership, RUTISS and RUTIIQ can now be rapidly deployed in sponsor studies to provide meaningful insights. David Churchman, Founder of InSpired Health Outcomes Limited adds: “The rapidly growing recognition and adoption of the RUTISS and RUTIIQ for use in rUTI studies has driven the demand to have the instruments in Vitaccess' eCOA library. With this partnership the RUTISS and RUTIIQ rUTI PRO instruments are now readily available for rapid (“off the shelf”) deployment into sponsor studies.” #eCOA #RWE #rUTI #PatientReportedOutcomes #HealthcareInnovation