Young Epilepsy

"I got my epilepsy diagnosis when I had just turned eight years old. I did Young Epilepsy's 26 miles in 26 days challenge [because] I wanted to show everyone that having epilepsy doesn't have to stop you doing things you love.” Nearly every hour, a child or young person is diagnosed with epilepsy in the UK. No child should face this alone. That’s why Tate, now nine, took on 26 miles his way—running, walking, cycling, climbing, and swimming to raise awareness. His whole school joined in too, dressing in purple to show their support. Now, he’s ready to do it all over again for 2025! 💜 "This year will be my second anniversary and I want to do even more fundraising." Tate’s story is a powerful reminder of what’s possible when people come together to raise awareness and support children and young people with epilepsy. Businesses, organisations, and teams can all play a role in making a difference this Purple Day. Whether it’s organising a fundraising event, wearing purple in the office, or choosing Young Epilepsy as your charity partner—there are 26 ways to get involved. It’s not too late to take part! 🔗 Explore ways to join #TeamPossible this Purple Day: https://ow.ly/BqaP50Vk6oe [Alt text: First slide shares a quote from Tate explaining why he took part in last year's 26 miles in 26 days challenge and why he's back this year to do even more fundraising on Purple Day. The following 5 slides show photos of Tate presenting at an assembly, wearing Purple Day clothing and marking his one year anniversary.]

More faces. More voices. More stories to hear. Nearly every hour, a child or young person in the UK is diagnosed with epilepsy. For many, that means navigating challenges not just in their personal lives, but in education and employment too. Misunderstanding, lack of support, and stigma can create barriers—but we can change that. As part of our '23 faces' campaign, we're sharing the experiences of seven more young people currently living with epilepsy. Read them below 👇 Every story matters. Share this post to help more people understand epilepsy. Check back next week for another spotlight on young people living with epilepsy. 💜 [Alt text: PDF spotlights 7 young people on individual pages with a photo and quote from them sharing their experiences of living with epilepsy. The young people featured as follows: Annie, Zac, Ivy, Meadow, Daisie, Spencer and Clodagh.]

Halfway there—#TeamPossible is making an incredible impact! 💜 The 26 Miles in 26 Days challenge is in full swing, and together, our fundraisers have already raised over £30,000 to support children and young people living with epilepsy. Every step taken is helping to raise awareness and vital funds for better support, research, and understanding of epilepsy. As we reach the halfway point, this challenge is a powerful reminder of how collective action can drive meaningful change. Could your workplace get involved in Purple Day 2025? Whether through fundraising, awareness initiatives, or corporate support, there are so many ways to make a difference. Find out more: https://ow.ly/aG6k50Vgh5S [Alt text: A collage of fundraisers currently taking part in the 26 miles in 26 days challenge across 5 slides. They are wearing Purple Day t-shirts in their photos.]

Introducing the first seven faces of our 23 Faces Campaign 💜 Nearly every hour, a child or young person in the UK is diagnosed with epilepsy. No child should face this alone. Yet, for so many, epilepsy is still misunderstood. These seven young people share when they were diagnosed and the impact epilepsy has had on their lives. By listening, learning, and raising awareness, we can help create a future where no young person feels alone in their diagnosis. 👉 Swipe to read their stories. Share this post to amplify their voices. We’ll be sharing more faces next week - stay tuned for their stories 👀 [Alt text: PDF spotlights 7 young people on individual pages with a photo and quote from them sharing their experiences of living with epilepsy. The young people featured as as follows: Hattie, Osiris, Layla, Rachel, Stanley, Darla and Bea.]

This International Women’s Day, we’re reflecting on a powerful moment – our first-ever event dedicated to the voices of girls, young women, and mothers navigating epilepsy. Hear Her Voice was more than just a gathering – it was a statement. A packed room at Cromwell Place, honest conversations, and stories that are often overlooked and need to be heard. Hosted by acclaimed broadcaster Edith Bowman. Because for too long, the voices of women and girls living with epilepsy have not been heard. This event changed that. Today we will Hear Her Voice. #HearHerVoice #InternationalWomensDay #YoungEpilepsy #Epilepsy #Epilepsygirls #Epilepsywomen #Epilepsygirl #Epilepsyawarness #Epilepsyher

This International Women’s Week, we’re celebrating a milestone: Young Epilepsy’s first-ever Hear Her Voice event which focused on exploring the impact of epilepsy on girls, young women, and mothers of children with the condition. Click the link below to read all about the event 👇

Childhood epilepsy is more common than many people realise, yet it’s still widely misunderstood. That’s why today, in the lead-up to Purple Day, we’re launching the 23 Faces Campaign. Every week, we'll be spotlighting young people living with epilepsy. Through their voices, we’ll highlight the realities, challenges, and incredible strength of those facing epilepsy so keep an eye out! By raising more awareness, we can create a world where no child diagnosed with epilepsy feels alone. 💜 Join #TeamPossible this Purple Day and help make this vision a reality. Together, we can make a difference. 🔗 https://ow.ly/yFJ250V9pxB

You might know Jake Lambert from Live At the Apollo or from his many sell-out Edinburgh Fringe runs or even from arena tours with Michael McIntyre, Jack Dee and Romesh Ranganathan. Now we are offering you the chance to learn the secrets of stand-up from Jake in person at our next FREE comedy workshop. This unique comedy workshop is open to anyone over 16 living with epilepsy or family / friends that support a young person living with epilepsy in the UK. Saturday 15 March, 11am-1pm, London If you've ever had dreams of trying stand-up why not join us? 👉 Places are limited so sign up here - https://lnkd.in/e3iUdB-5

⏰ Last chance for your team to get involved! The 26 Miles in 26 Days Challenge kicks off in just a few days—what better way to bring your colleagues together and support a great cause? Every mile your team takes will help raise vital funds for children and young people living with epilepsy. Sign up now and get your workplace moving for Purple Day: https://ow.ly/LXUp50V59hE Not a fan of miles? No problem! Follow our map and find the perfect way for your team to get involved. 👇 No matter how you choose to get involved, make it purple, make it fun, and make a difference! [Alt text: 1 - PDF with 2 graphic slides with yes/no decision paths suggesting ways to mark Purple Day, like the 26 Miles in 26 Days Challenge, a Purple Party, or dressing up for 26 days, set on a purple background with icons. It features the Purple Day logo and #TeamPossible.]