The mission of the Adult Congenital Heart Association is to empower the congenital heart disease community by advancing access to resources and specialized care that improve patient-centered outcomes.
External link for Adult Congenital Heart Association
280 N Providence Rd
Suite 6
Media, Pennsylvania 19063, US
Join us this Wednesday at our next webinar. Find more info and register at https://ow.ly/1NSc50TJ5hr.
ACHA's next webinar will discuss pulmonary hypertension and pulmonary arterial hypertension. Join us to learn whether you are at risk of these conditions and what you can do to prevent them. Visit https://ow.ly/1NSc50TJ5hr to register today.
Reminder: Our most updated schedule of events is always available on our website! Check it out any time at https://lnkd.in/dWtNCV8a. If you'd like to be kept in the loop via email, you can join ACHA at our website, too.
ACHA is grateful to our corporate supporters who make our Heart to Heart Regional Conferences possible. Today we want to thank Edwards Lifesciences. In this photo, local representative Gerry Forest (at right) is pictured at our Baltimore/DC conference with ACHA’s President and CEO Mark Roeder and Director of Patient Resources & Advocacy Janine Guglielmino. Thank you to Gerry and Edwards Lifesciences for supporting our educational efforts and for spreading awareness of lifelong care for people with CHD alongside ACHA!
Adult Congenital Heart Association reposted this
The first study to use data from the Congenital Heart Initiative’s patient-powered registry as a way for clinicians, researchers and the patients themselves to gain new understanding of long-term quality of life for 1.5 million U.S. adults with congenital heart disease has been published by JAMA Network Open. “Studies like this that leverage actual patient voices and experiences help us get a better sense of how to advise, support and treat people with CHD as they age,” says Dr. Anitha John. See how our researchers are aiming to improve quality of life for those living with a congenital heart disease. https://lnkd.in/eh7UAsmj Adult Congenital Heart Association
As Hispanic Heritage Month comes to a close, we want to thank Dr. Fernando Baraona Reyes for presenting a webinar on heart failure in Spanish last week! We appreciate you talking the time to support ACHA’s Spanish speakers on crucial CHD topics. To link to this webinar and all of ACHA’s Spanish resources, please visit https://lnkd.in/eTGrQvE2.
There are two weeks left to apply for the ACHA Board of Directors! Learn more below.
The application period for the ACHA Board of Directors is open. Through October 25, we invite you to visit https://ow.ly/neNu50TqmWm to learn more about the roles and responsibilities of our Board, and apply if you feel you're a good fit!
ACHA's next webinar will discuss pulmonary hypertension and pulmonary arterial hypertension. Join us to learn whether you are at risk of these conditions and what you can do to prevent them. Visit https://ow.ly/1NSc50TJ5hr to register today.
Ve el seminario web de esta semana sobre cómo vivir con insuficiencia cardíaca debido a cardiopatía congénita a continuación. Watch this week's webinar on living with heart failure from congenital heart disease below. https://lnkd.in/gBsMCYPz
Having a congenital heart condition can feel lonely. Connect with someone who understands through ACHA’s Heart to Heart Peer Support program. Ask questions, share stories, and learn tools to sustain you from our compassionate, expert-trained Peer Mentors. When hearts connect, adults with CHD feel less alone. Visit www.achaheart.org/h2h to learn more, request support, and meet our Peer Mentors.
Adult Congenital Heart Association reposted this
Patients, providers & researchers passionate about improving the lives of adults with congenital heart defects through a patient-powered registry.
Our annual report is here! It features fresh insights on employment, insurance, and sub-studies exploring different aspects of living with CHD, including maternal health, specialized ACHD care, mental health, and more. Read here: https://bit.ly/3zxdA96 Adult Congenital Heart Association