Aplastic Anemia & MDS International Foundation

What makes a community? ✅Shared experiences. ✅Shared needs. ✅ Shared dreams. Aplastic Anemia, MDS, and PNH Awareness Week kicks off on March 1st, and we can’t wait to celebrate the community we have built together. ❤️Your donations are vital in sustaining this community❤️. Help us kick off Aplastic Anemia, MDS, and PNH Awareness Week strong by donating today at aamds.org/donate. Together, we can make a real difference in our community! #buildingcommunitytogether#aplasticanemia #MDS #PNH #BoneMarrowFailureDisease #RareDiseases

Did you miss your chance to honor your doctor? Yesterday was National Doctors’ Day—it’s not too late! Earlier this week, I shared how Dr. Scheinberg (pictured above with my family and I) has been integral to my journey with aplastic anemia. I understand firsthand the critical role our doctors play in our journeys with rare diseases like aplastic anemia, MDS, or PNH. It's important to honor them and express our gratitude. ❤️Join the Aplastic Anemia and MDS International Foundation (AAMDSIF) in celebrating your doctor. To participate, simply donate by clicking the link in the bio and then dedicate your donation “In Honor Of” your doctor by providing their name and email address or mailing address, and we will ensure they know you appreciate them. Donate now at aamds.org/donate. #NationalDoctorsDay #aplasticanemia #MDS #PNH #BoneMarrowFailureDisease #RareDiseases

“Appreciate each little victory,” Jenny says. Even though Jenny had to have a second transplant, years after the first, she challenged herself and celebrated each day. Now she's studying medicine! Read her story: https://lnkd.in/eSpQpCDX #aplasticanemia #transplant

Do you have a doctor that has made a difference in your life? 👩⚕️ Today, National Doctors’ Day, is the day to let them know what they mean to you. ❤️ Join the Aplastic Anemia and MDS International Foundation (AAMDSIF) in celebrating your doctor. When you make a donation in honor of your doctor, AAMDSIF will send them a note of appreciation. To honor your doctor, simply make a donation at aamds.org/donate and then dedicate your donation “In Honor Of” your doctor by providing their name and email address or mailing address, and we will ensure they know you appreciate them. #NationalDoctorsDay #aplasticanemia #MDS #PNH #BoneMarrowFailureDisease #RareDiseases

Eid Mubarak, to all who observe!

MDS Patients, Families, and Caregivers: This Session is for You! Dr. Shiraz explains what you need to know about having a bone marrow transplant to treat #MDS, or Myelodysplastic Syndromes. Watch this session from the Rockville Patient and Family Conference: https://lnkd.in/eb_8MA38

Two New Webinars are coming in April! Register here for Low Risk MDS with Dr. Yacoub: https://lnkd.in/e2tZyBcd Register here for MDS/MPN Overlap with Dr. Sallman: https://lnkd.in/eJQ99rZn To see these speakers in person, come to the Kansas City Conference: https://lnkd.in/exZGgMWc

"For the year leading up to the transplant, I was constantly tired." Sarah looks back at the past 8 years, through diagnosis, transplant, and survivorship, along with all the emotions that come with these phases, in her latest update: https://lnkd.in/eRz7nFJa #aplasticanemia #BMT

I am incredibly grateful to Dr. Scheinberg (pictured below with me and my family) and Dr. Young. Without their expertise, compassion, and exceptional care, I truly don’t know where I would be. That’s why I encourage anyone who, like me, has had their life positively impacted by an extraordinary doctor to express their gratitude and celebrate National Doctors' Day with AAMDSIF! National Doctors' Day is on March 30th, but you can show your appreciation right now. To honor your doctor, simply make a donation and then dedicate your donation “In Honor Of” your doctor by providing their name and email address or mailing address, and we will ensure they know you appreciate them❤️. Donate now at aamds.org/donate. #NationalDoctorsDay #aplasticanemia #MDS #PNH #BoneMarrowFailureDisease #RareDiseases

From Medivac ride back to the soccer field, Webb's journey with Aplastic Anemia saw the lowest lows and the highest highs. Read how he was diagnosed, found a match and a successful transplant, and recovered enough to play soccer again and attend college in his story here: https://lnkd.in/eMQ5NwsS