Cerebral Palsy Research Network (CPRN)

🚀 We are pleased to announce that the Cerebral Palsy Research Network is partnering with Hope for HIE (Hypoxic Ischemic Encephalopathy) and the Newborn Brain Society to expand our research efforts into the Neonatal Intensive Care Unit (NICU). This new collaboration focuses on early causes of cerebral palsy and other co-morbidities through a dedicated registry for Hypoxic Ischemic Encephalopathy (HIE). Under the scientific leadership of Dr. Danielle Guez Barber, MD, PhD, and Dr. Zach Vesoulis, CP Research Network will collect critical data on HIE patient care across NICUs, helping advance our understanding of treatment outcomes and interventions. This initiative, funded with a $100,000 grant, will also support a parallel registry, allowing families to share their experiences and track long-term outcomes. We invite you to join us on Tuesday, November 19, at 8 pm ET for a free MyCP webinar. Dr. Barber, CP Research Network CEO Paul Gross, and Hope for HIE’s Executive Director Betsy Pilon will look at these exciting research initiatives in-depth. Read the announcement: https://lnkd.in/eJG6S-em Image Description: A newborn baby viewed through the hand access hole in an isolette.

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Congratulations to Dr. Rose Gelineau-Morel who was awarded a $300,000 grant to create an imaging registry for the CP Research Network. This new infrastructure will open many doors of new research and discoveries about #cerebralpalsy for studying the brain and other body structures affected by CP. Her study team is pictured below with docs from Children's Hospital Colorado Foundation, Nationwide Children's Hospital, and St. Louis Children's Hospital in addition to her home hospital Children's Mercy. There is a link to the full story below. https://lnkd.in/gkucKHkk Image Description: tiled professional headshots of the four docs who will build the infrastructure for the network.

We're #hiring a new Director - Registries in United States. Apply today or share this post with your network.

📢United Cerebral Palsy and the Cerebral Palsy Research Network have formed a strategic partnership to enhance research, care, and engagement for individuals with cerebral palsy. This collaboration will drive advancements in health outcomes, support community engagement, and promote best practices in care. Exciting plans include the "Family Engagement in Research" course launching in September 2024 and the Eighth Annual CP Research Network Investigators’ Meeting in 2025. Read to learn more here ➡️ https://lnkd.in/dM4MquDi #cpresearchnetwork #cerebralpalsyawareness #CPpartnerships #partnerships #CP #CerebralPalsy 📷 Image Description: Large text showing United Cerebral Palsy and the CP Research Network have announced a strategic partnership and three supporting images of people with CP.

The Cerebral Palsy Research Network is excited to announce this month’s webinar will be on Monday, June 24 at 8 pm ET and focused on adults with cerebral palsy (CP) and research findings about functional changes and pain. The webinar will be presented by the CP Research Network adult study co-chairs Drs. Ed Hurvitz and Mary Gannotti along with researcher and CP Research Network Community Action Committee member Ms. Jodi Kreschmer. ➡️ You can read more about this webinar, in our latest blog post here - https://lnkd.in/e2rtd9Ye Why is this webinar important? There is a lack of information about what happens to adults with cerebral palsy as they get older. Many adults with cerebral palsy and clinicians are not aware of how and why their abilities to use their arms, legs, and to communicate may change with age. We will describe some of the reasons for these changes and what questions you should ask your providers. ... Image description: A graphic with pictures of the three presenters of the webinar, smiling and ready to share their insight. #mycp #cerebralpalsy #CPRN #CPresearchnetwork #webinar #CPwebinar Cerebral Palsy Alliance Research Foundation Michele Shusterman Paul Gross

Dr. Mary Gannotti a physical therapist and researcher who co-leads our adult study group, has published a new article explaining the co-production process used to develop our adult study of wellbeing and pain that is hosted in our Community Registry. ➡️ See our blog post for more details and a link to the article - https://lnkd.in/eqbWtcmC #cerebralpalsyresearch #cerebralpalsycommunity #adultswithcerebralpalsy Image Description: Dr. Gannotti with long dark hair, a red wine colored sweater and glasses smiles while explaining her work to a mom and her adult son with CP in a wheelchair at the network's recent Annual Investigators' Meeting.

✨ Honored to see Co-Founder Michele Shusterman recognized among South Carolina's most impactful women! Thank you for paving the way for future generations. Let's celebrate her achievements and the countless other women making a difference in the state of South Carolina! ➡️ Read the article here: https://lnkd.in/es_Xd_7E #womeninbusiness #southcarolinawomen #whosonthemove #cprn #femalefounder Paul Gross

Today begins CP Awareness Month! This is a time during which we run our annual photo contest, share facts and information about cerebral palsy and invite the public to better understand our diverse community. Join us and don't forget to purchase your merch from our online store 💚💚💚 https://lnkd.in/gp7-4jAk Michele, Co-founder of the CP Research Network #cp #mycp #cpawarenessmonth #cprn #cpresearchnetwork #cparf

Today marks the opening of our Annual Photo Contest for 2024 📸 We’ve ran this for a few years now and today is the first day we open submissions. Submissions will be open until March 15th, 2024. So why is this important? And what does it mean to our community? We are so excited to give individuals of the CP community an opportunity to share their lived experiences in preparation for CP Awareness Month in March. It’s a chance to celebrate our community and shine a spotlight as well. Participants have the opportunity to win in total $1,300 of prizes and be featured in our communications and resources, to help provide our community with more information about CP 🙌 We are also specifically looking for photos of young CP teens and adults and landscape horizontal photos, so be sure to share these. To submit your photos 👉 https://lnkd.in/eBEwHrbM It’s really easy to submit your photo (or photos) and we can’t wait to celebrate our wonderful community and people. Image Description: One of the photo entries from 2023 - a young person with CP with sunglasses on smiling. #photocontest #cprnphotocontest #cpresearchnetwork #cerebralpalsycommunity #cpresearch #cerebralpalsyresearch #cerebralpalsyresearchnetwork #cerebralpalsyawareness #cerebralpalsyadvocate #cpadvocate Cerebral Palsy Alliance Research Foundation Paul Gross Michele Shusterman