Cholangiocarcinoma Foundation Australia

Reading this article is more than worth the effort - it also includes audio option Warm Regards Steve Ps Michael is living proof that an approach that dismantles the diagnosis, also dismantles the power that cancer has over you! #beatingcancer #EmpoweredPatient #Cholangiocarcinoma#Cholangio#CholangioChallenger#CholangioInspiration#BileDuctCancer#CholangiocarcinomaAustralia#CholangiocarcinomaAwareness#LightAustraliaGreen

We’re honoured to share Michael Flannery’s courageous journey with you. After being diagnosed with cholangiocarcinoma, Michael faced uncertainty with deliberate actions, creative persistence, and raw human resilience. He found ways to regain control, redefine his mindset, and focus on allowing his hope to find its reality. His story is a powerful example of overcoming adversity and thriving under extraordinary circumstances. Whether you’re navigating a personal challenge or supporting a loved one, Michael’s experience offers constructive and invaluable lessons to newly diagnosed patients who are seeking a way forward after such a paralyzing diagnosis. https://lnkd.in/gAVFhUmN Warm Regards Steve Holmes Michael Flannery #Cholangiocarcinoma #Cholangio #CholangioChallenger #CholangioInspiration #BileDuctCancer #CholangiocarcinomaAustralia #CholangiocarcinomaAwareness #LightAustraliaGreen

14,000km Cycling Update: I’m excited to share an update (Attached) on my cycling challenge and the life-saving progress we’re making together in the fight against Bile Duct and Bile-related cancers. Since starting my virtual journey around Australia on September 1st, 2023, I’ve cycled 11,200 km out of my 14,000 km goal—using the Gold Coast roads as my proxy. While I didn’t complete the full distance within one year, I’m not stopping until I hit that target! Your support has driven every kilometer, and I’m beyond grateful. Warm regards Steve https://lnkd.in/gQSbjCGB #cholangiocarcinoma hashtag #cholangiocarcinomaAustralia hashtag #Cholangio hashtag #CholangioChallanger hashtag #BileDuctCancer

This article focuses on a specific ICI – Immune Checkpoint Inhibitor Strategy: Ipilimumab and Keytruda The Checkpoint Pathway Is The Immune System’s Central Command. How will this Combination Help? https://lnkd.in/eDeRtNBc #cholangiocarcinoma #CholangiocarcinomaFoundationAustralia #CholangioChallengers #cholangio #BileDuctCancer #CheckpointPathway #Keytruda #ipilimumab

UPDATE I just want to apologise to those I have been slow in replying to or have completely missed replying to. Life as we all know throws down an eclectic range of obstacles for us to negotiate in order to keep moving forward. Claire and I really appreciate the support and messages in recent weeks, we are slowly getting back into our rhthym. I also have included an adaption of some of my most favourite lessons that have kept me on track - https://lnkd.in/g3G9JbtF Ok enough said, I am ditching this keyboard for my bike and heading out for a 75km ride - a great place for introspective and transformative thinking - You can follow my rides on Strava https://lnkd.in/gT4HN6Fp or you can put some extra wind into my Cholangio sails at https://lnkd.in/gPaVJfRS Warm Regards Steve Ps thanks to Rochelle Hanley and Lizzie Wallace I have a very great article I am pulling together on a robust treatment alternative - hopefully in the next few days - AND also another excellent patient story on Michael Flannery #cholangiocarcinoma #cholangio #cholangnioChallengers #BileDuctCancer steveholmes.net.au Overcoming the obstacle of Cholangiocarcinoma Just as science has developed immunotherapy drugs to recruit our immune system to fight and defeat cancer, we too can harness and recruit the possibilities within the obstacle of Cholangiocarcinoma to overcome it. While a cancer diagnosis is beyond our control, how we respond and think is entirely w... Creating link preview

Patient Story: Lynette Williams Beats Cholangiocarcinoma and Joins Light Australia Green. Read Lynettes Story - https://lnkd.in/gizDSeUH #cholangiocarcinoma #BileDuctCancer #Cholangio #CholangioChallengers #LightAustraliaGreen

Understand BRCA1, BRCA2, and BAP1 mutations in cholangiocarcinoma and their impact on treatment options in simple terms for patients and caregivers. NEW: See Glossary Tab. Content Explanation: This article has been written in a ‘storification’ format to help you visualize complex information. It’s designed to improve understanding and foster more effective engagement by the whole family and support network, including children. #cholangiocarcinoma #cholangioCHallengers #Cholangio #BRCA1 #BRCA2 #BAP1 https://lnkd.in/gJMM5sbv

Join Here: https://lnkd.in/gxFxk9ZP We Help Patients Help Themselves: Newly diagnosed patients do not know what they do not know, yet absolutely must – we help them and their caregivers know. We bridge the knowledge gaps between medical science, healthcare, and the patient. To effectively respond to a cholangiocarcinoma diagnosis you must understand both that cancer itself and the health system that is tasked with helping you. This support is crucial in preparing for the challenge of defeating cholangiocarcinoma. Email Updates help us deliver this. #cholangiocarcinoma #cholangio #cholangiochallengers

LET’S TAKE A LOOK AT THIS NEW CLINICAL TRIAL NCT05727176 THESIS The clinical trial NCT05727176 investigates a novel drug targeting FGFR2 mutations in cholangiocarcinoma, aiming to improve patient outcomes by addressing the genetic abnormalities driving the disease. HYPOTHESIS The hypothesis is that inhibiting the FGFR2 pathway in patients with cholangiocarcinoma harboring FGFR2 mutations or fusions will lead to significant tumor regression and improve overall survival rates. Read More https://lnkd.in/gw_2-Y3w #cholangiocarcinoma #Cholangio #CholangioChallengers #FGFR2 #TAS120205