The Corneal Dystrophy Foundation

The Corneal Dystrophy Foundation

Non-profit Organizations

San Jose, California 99 followers

Patient Advocacy & Support thru Fuchs Friends® since 1998

About us

Who we are The Corneal Dystrophy Foundation is a 501c3 organization made up of caring, giving people whose lives have been impacted by a corneal disease, with the potential to render us blind without the medical intervention of wonderful people who have chosen this as their life's work. We are so grateful for the opportunity to restore our vision and improve our own lives that we must tell others about the work that has been done and allow others the same opportunity. What we do Research by finding the latest technological advances and then share it via social media. Provide a secure support group website for those hoping to learn about all aspects of corneal dystrophies. Compose written educational materials, Newsletters, Webinars Organize and deliver a regularly a scheduled symposium with experts in the field of Corneal Dystrophies which is open to all interested parties. Provide DVD's, for a small donation, of the presentations of experts. Sponsor regular geographical meetings for local groups to share and learn from each other. Assist those less fortunate in finding ways to access needed services Provide a website with extensive information and materials about Corneal Dystrophies and always have a group of responsible, educated laypersons to answer questions. Our reach is worldwide. We do not charge a fee for information.

Industry
Non-profit Organizations
Company size
2-10 employees
Headquarters
San Jose, California
Type
Nonprofit
Founded
2004

Locations

Employees at The Corneal Dystrophy Foundation

Updates

  • Our dedicated support groups serve as vital resources, facilitating the exchange of insights, advice, and emotional support. These groups are tailored to meet various needs, from seeking knowledgeable guidance to expressing your own experiences or assisting others in their journey. Engage with our community to discover effective coping strategies and strengthen your support network. #fuchs' #community #joinfuchsfriends

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  • 🔍 General Treatment For patients with Macular Corneal Dystrophy (MCD), treatment becomes necessary as the disease typically leads to significant visual impairment, interfering with daily activities. The treatment approach focuses on symptomatic relief and corneal transplantation when vision deteriorates. 💊 Medical Therapy Initial management of Macular Corneal Dystrophy (MCD) symptoms often includes the use of nighttime lubricants, and NSAIDs to alleviate pain. 🔪 Surgery Corneal transplantation remains the primary surgical treatment once Macular Corneal Dystrophy (MCD) becomes visually significant. #treatment #surgery #assistance #corneal

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  • Macular Corneal Dystrophy (MCD) can be diagnosed through slit-lamp biomicroscopy combined with a detailed family history. Additional testing and imaging can further aid in diagnosis. Notably, Macular Corneal Dystrophy (MCD) is often diagnosed earlier than other corneal dystrophies, likely due to the earlier onset of symptoms and the rapid progression of the condition. Various diagnostic tools can be used to assess Macular Corneal Dystrophy (MCD): 👁️Anterior Segment OCT: Visualizes the anterior and deeper layers of the cornea, revealing a wide spectrum of presentations and deposit locations. 👁️Confocal Microscopy: Shows hyperreflective material with ill-defined borders and a loss of normal keratocytes. 👁️Corneal Topography: Highlights increased corneal density at the apex and central corneal thinning. 👁️Ultrasound Biomicroscopy: Demonstrates deep opacities and focal protrusions of the posterior cornea. These procedures are vital for a comprehensive evaluation of the disease. #diagnosis #corneal #dystrophy

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  • World Sight Day as an annual event focused on preventing blindness and vision impairment. Highlighted on the October 10, 2024,which is tomorrow, as a day for global awareness and action. We’re aware of how Corneal Dystrophy affects one’s vision - making it really difficult due to the distorted and blurriness so let’s use this day to spread the awareness and inform others of the gift of vision. #worldsightday #vision #eyeawareness

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  • 📝 Signs and Symptoms The primary symptom of Macular Corneal Dystrophy (MCD) is decreased visual acuity, which can vary widely depending on the location of the corneal opacities.As the disease progresses, patients may experience additional symptoms such as 👁️Eye irritation 👁️Pain 👁️Photophobia 👁️Reduced corneal sensitivity, often due to recurrent corneal erosions. Early signs include ill-defined corneal opacities in a hazy stroma, which expand and merge over time, potentially leading to central corneal thinning and deposits in the Descemet’s membrane and endothelium. #cornealdystrophy #signs #symptoms

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  • 🔍 Physical Examination It is crucial to perform a thorough eye examination for any patient suspected of having Macular Corneal Dystrophy (MCD). Beyond a general health evaluation, specific assessments should include corneal curvature, astigmatism, and thickness. Monitoring best potential vision over time is essential, as tracking visual acuity helps in understanding the progression of the disease and determining the optimal timing for surgical intervention. Early in the disease, a slit-lamp exam may reveal stromal haze, which eventually progresses to irregular white deposits. #eyehealth #cornealdystrophy #ophthalmology 👁️

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