Cerebral Palsy Alliance Research Foundation

✨ NEW EPISODE: On the latest episode of "Changing What's Possible", host Marie McNeely sits down with Dr. Cristina Sarmiento, a clinician and researcher who focuses on the transition from pediatric to adult healthcare for adults with lifelong disabilities, particularly CP, with the ultimate goal of promoting overall health, well-being, and quality of life across the lifespan. Dr. Sarmientio is also part of a team of researchers investigating research priorities for adults with CP. In this episode, Cristina discusses a CPARF-funded research project she and the team are working on through a strategic partnership with the CP Research Network. This project is critical for ensuring that future research will address the needs of the CP community. Check out the latest episode now wherever you get your podcasts. New episodes drop every Friday! Be sure to follow and subscribe to never miss an episode! 🎧 https://lnkd.in/eAvZhybU #CerebralPalsy #ResearchforCP #Adulthood

FUNDRAISER SPOTLIGHT ✨ "Hi, I'm Josh. My cousin Drew has CP and has been an inspiring force for people in the disability community with his story and company Crippling Hot Sauce. With every bottle sold, we donate 5% to CP research." Learn more about Athletes for Accessibility: https://lnkd.in/gGKfKZdJ #AthletesforAccessibility #NYCMarathon #ResearchforCP [ID: A light green background with a photo of Josh wearing hot sauce costume. The ATA logo is in the top right corner. Two bars in various shades of green read, "Hamish" and "2024 Marathon Participant."]

FUNDRAISER SPOTLIGHT ✨ "Hi, I'm Hamish and I'm running the NYC Marathon on November 2 with Athletes for Accessibility to support CPARF. For those of you who know our family, you are aware that this is a cause close to our hearts. Cerebral Palsy (CP) is the most common lifelong physical disability in the world, yet it doesn’t get the attention or funding it deserves. I saw firsthand through experiences of my older brother, who has CP and my aunt, who also lived with CP. The US-based research and technology CPARF funds will change the lives of people living with CP and other disabilities." Learn more about Athletes for Accessibility: https://ow.ly/ULst50TXBzX #AthletesforAccessibility #NYCMarathon #ResearchforCP

For families with disabilities, Halloween may look a little different. Patience and respect go a long way in making Halloween fun and safe for everyone! 🎃

FUNDRAISER SPOTLIGHT ✨ Meet Margaret Mary! "I’m Margaret Mary and I’m thrilled to lace up my shoes and support Athletes for Accessibility in the 2024 New York City Marathon! Alongside my loving husband Andrew, and our energetic puppy Bailey, I’ve called this vibrant city home for ten adventurous years. As a sales leader, I’ve grown to welcome the challenges that accompany a fast-paced and evolving world of business. Likewise, as a runner, I’ve gradually embraced new challenges of distance and pace. I’m eager to hit these iconic streets and raise money for a cause close to my heart. Please join me in this effort, as we run towards a brighter and more accessible future together!" Learn more about how you can become an athlete for accessibility: https://lnkd.in/gGKfKZdJ #ResearchforCP #AthletesforAccessibility #NYCMarathon

Recent studies have found that 15-20% of the world's population identifies as neurodivergent, yet tools are still being built as though everyone processes information the same way. Project management tools like Leantime (Techstars '23) are working to change that. You can check out the latest "Disability Tech Talk" with CEO and Founder of Leantime, Gloria Folaron on our YouTube channel now. Watch now: https://ow.ly/sqeQ50TWomU #ProjectManagement #Startups #RemarkableUS

Did you miss the 2024 Remarkable US Demo Day? The recording is now available on our YouTube channel. Featuring presentations from Big Karma, Leantime, We Hear You, and WheelPad L3C. Watch now: https://lnkd.in/eqkUnWUx #AssistiveTechnology #Startups #RemarkableUS

Attention Federal Employees! You can give to CPARF to through the Combined Federal Campaign! Support life-changing research and groundbreaking technology. Volunteer opportunities for capacity building and graphic design available. CFC #86542 #CFC #GiveHappy

#DYK that you could support CPARF through your employer's workplace giving program? Learn more: https://lnkd.in/dBc435B6 and talk to your company's HR Department. #WorkplaceGiving #ResearchforCP [ID: A light blue background with a dark blue square to the right with an outline of a hand and heart in white. Below white text on a dark grey background says "Workplace Giving". The CPARF logo is to the left in white.]

NEW EPISODE: The latest episode of "Changing What's Possible" explores the recent research aimed at better understanding the management of cerebral palsy into adulthood, including important factors for people with more involved CP to consider when transitioning from assisted to independent living, functional decline in adults with CP living in the community, and dealing with and managing falls. You can listen now on Spotify, Apple Podcasts, Audible or wherever you get your podcasts! 🎧 https://lnkd.in/eBSQcgSn #CerebralPalsy #Aging #Adulthood #Mobility #ChronicPain #ResearchforCP