Dysautonomia International

Recent research has found that COVID-19 infects and significantly damages autonomic nerves before the virus infects the blood. This may explain why a majority of people with Long COVID develop #POTS and other forms of #dysautonomia, and why people with pre-existing POTS and other dysautonomias may experience a worsening of their autonomic symptoms during and after a COVID infection. Read the article here: https://lnkd.in/gEmBGpMc Dysautonomia International is funding research on POTS, other forms of dysautonomia, and Long COVID associated dysautonomia to identify more effective treatments for millions of people suffering from autonomic disorders as soon as possible. You can help support our innovative research program by making a contribution at www.CureDys.org or creating a Facebook fundraiser at http://bit.ly/DysChallenge #DysautonomiaAwarenessMonth #31DaysofDys

Rebecca Lobo, a volunteer for Dysautonomia International from Davis, CA shares why #DysautonomiaAwareness matters. "By strengthening awareness we dispel the myths of living with dysautonomia and show the invisible hurdles we face in our daily lives." Join the #DysautonomiaAwarenessMonth Challenge! Raise awareness and funds to earn cool merch or 2 free registrations for #DysConf2025! Join the challenge at https://lnkd.in/eWNRXVB2

A majority of #POTS and other #dysautonomia patients experience years of diagnostic delay, and have difficulty finding physicians to treat their dysautonomia once they are diagnosed, because most doctors have not received training on how to diagnose and treat autonomic nervous system disorders. Dysautonomia International has been working to reduce diagnostic delays and improve the quality of care patients receive after diagnosis by training thousands of medical professionals on how to diagnose and treat autonomic disorders. You can help us reach even more medical professionals by making a contribution at CureDys.org or hosting a Facebook fundraiser at bit.ly/DysChallenge #DysautonomiaAwarenessMonth

Orthostatic symptoms are common in nearly all dysautonomia patients. These are symptoms caused by reduced blood flow to the heart and brain that worsen with standing and improve upon laying down. Orthostatic symptoms can be present laying down too, but they are worse upon standing. #DysautonomiaAwarenessMonth #31DaysofDys

Brain fog, also known as cognitive impairment, is a very common symptom in people who have various forms of dysautonomia. It can cause problems with word recall, memory, attention and concentration, making work or school activities difficult. There are likely several mechanisms that contribute to this, including reduced blood flow in the brain during upright or even seated posture, inflammation, autoantibodies, poor sleep and potentially other mechanisms. #DysautonomiaAwarenessMonth #31DaysofDys

Zack Orban, a volunteer for Dysautonomia International from Chicago, IL, shares why #DysautonomiaAwareness matters. "Raising awareness will spark more research, new treatments, and better outcomes for people with dysautonomia." Join the #DysautonomiaAwarenessMonth Challenge! Raise awareness and funds to earn cool merch or 2 free registrations for #DysConf2025! Join the challenge at https://lnkd.in/eWNRXVB2

Autonomic dysreflexia #AD s a form of autonomic dysfunction associated with spinal cord injuries. Usually, when an AD attack occurs, there is an irritant impacting the person below the level of their spinal cord injury, and because their autonomic nervous system cannot process messages properly, this results in a severe spike in blood pressure, flushing above the spinal injury, nasal stuffiness and other symptoms. AD is serious and can lead to a stroke if not treated properly during an attack. Learn more at https://lnkd.in/dfStfEFF #DysautonomiaAwarenessMonth

Did you know your gastrointestinal tract is regulated by your autonomic nerves, which is why so many people with dysautonomia have GI symptoms? #DysautonomiaAwarenessMonth #31DaysofDys

Thanks to all of the amazing people who came out to show their support for the 2024 Boston POTS Walk! The event raised over $37,000 for Dysautonomia International's POTS Research Fund, which supports high-quality research grants aimed at finding more effective treatments for POTS as soon as possible. It's not too late to donate at potswalk.org/boston. Special thanks to Boston POTS Walk event organizers and co-chairs Lindsay Spada, Mary Artacho, Sammie Herrick, Emily Birch and Jackie Rutter Gully. Great job everyone! #DysautonomiaAwarenessMonth

This week, we invite you to Dine for Dysautonomia at Piada Italian Street Food locations across the US. 20% of proceeds will be donated back to Dysautonomia International. To participate, you will need to order online from mypiada.com anytime from 10/21 - 10/27. Enter our custom fundraising promo code during check-out for your order to count towards the fundraiser: 83A233. More details below. #DysautonomiaAwarenessMonth