Edgewise Therapeutics

Have a safe and enjoyable 4th of July!

We’re proud to sponsor The Akari Foundation’s in person event on July 6, which will be fully in Spanish! Join us for activities, lunch, and expert-led Duchenne sessions, and connect with Spanish-speaking families. Learn more about the free event at https://lnkd.in/ehSpB9tK. We hope to see you there! #TheAkariFoundation #EdgewiseTherapeutics

We’re excited to be in Orlando, FL this week at the Parent Project Muscular Dystrophy Annual Conference! Stop by our booth to learn more about our approach to tackling #Becker and #Duchenne #musculardystrophy. We hope to see you there! Find out more. https://lnkd.in/exuJZnwq #PPMDConference #patientengagement #raredisease Maria C. Amato Nicholas Mastrandrea, PhD Joanne Donovan Ericka Benson Roxana Donisa Dreghici Abby Bronson Sarah Tencer Elizabeth Thaler Katherine Krieger John Wing Drew Scruggs  

We went to camp – and loved it! Members of the Edgewise team were thrilled to attend the Muscular Dystrophy Association Camp of the Rockies this past week on “Sponsor Day.” MDA Camp allows kids living with a variety of neuromuscular diseases to attend a free camp program for a week with lots of fun activities like pool parties, talent show, camp dance – with everything accessible and tailored to those with different abilities.  Katherine Krieger Emily DiNatale Keri Selmarten Angela Peter, Ph.D. Drew Scruggs Breanne Newell-Stamper Molly Madden

As young adults with Becker move from a pediatric to an adult medical setting, the transition can be bumpy. Scheduling regular appointments with a multitude of care providers, including cardiologists, physical therapists and other specialists is necessary for optimal clinical care, but coordinating all of it can be challenging. It’s important to be proactive and talk openly with the care providers to ensure optimal care. https://lnkd.in/e54DEHAg

Registration is now open! Join the 2024 Becker Education and Engagement Day on Saturday, Sept. 28 at 6 US locations: California, Florida, Missouri, Pennsylvania, Texas and Washington. BEED is a day to bring education and connection to the Becker community. Learn more today: https://lnkd.in/e4H3d2nF

Edgewise is proud to be a Gold Sponsor for this year’s Parent Project Muscular Dystrophy Annual Conference! This meeting provides a wonderful opportunity for families, physicians, researchers, caregivers, industry partners and those living with #Becker and #Duchenne to connect, share information, and learn the latest progress. We hope to see you there! Find out more. #PPMDConference #patientengagement #raredisease  https://lnkd.in/exuJZnwq

GRAND CANYON, a pivotal clinical study to evaluate an investigational drug in individuals living with #Becker #musculardystrophy is ongoing. Visit the study website to learn more. https://lnkd.in/gkxhhf4q

Muscle in individuals living with Becker can be injured when the muscle contracts. Recognizing and acknowledging the condition, even if symptoms are not yet obvious, is important because the earlier you act, the more you may be able to minimize your symptoms and mitigate the challenges that may arise. For more information, talk to your medical team and visit https://lnkd.in/erWxMYXT.

We recently hosted a GRAND CANYON Investigator Meeting in London, focused on our global pivotal clinical study in adults with Becker muscular dystrophy. It was great to engage with Principal Investigators, study staff and partners for this important study. Learn more about Grand Canyon.  https://lnkd.in/gkxhhf4q