Engage Health, Inc.

We will be at the NORD Summit next week! Will we see you? We look forward to connecting with you there! #NORD2024

We are thrilled to share that John Mauro, one of Engage Health’s Rare Disease Difference Makers®, has been honored with a “Lifetime Achievement Award” from the National Ataxia Foundation! This well-deserved recognition celebrates John's exceptional contributions to the rare disease community. Congratulations, John, and thank you for your dedication! Do you know someone who has made a significant impact on groups and individual patients/families affected by rare diseases? Nominate them as a Rare Disease Difference Maker® https://lnkd.in/gkX_Pm4M #RareDisease #NAF #LifetimeAchievementAward #RareDiseaseDifferenceMaker #Ataxia

The NNPDF Family Support & Medical Conference agenda is now available. It will be in Salt Lake City, UT on July 11-13, 2024. It's not too late to register if you haven't yet: https://lnkd.in/gRSARA-q NATIONAL NIEMANN-PICK DISEASE FOUNDATION #RareDisease #FamilySupoort #MedicalSupport #NNPDF

#RAREis Scholarship Fund is accepting applications! Apply by April 22, 2024 here: https://lnkd.in/eejYKsm EveryLife Foundation for Rare Diseases #RareDisease #RareDiseaseScholarship

Join us at the MDA conference this week and meet Skyler Jackson, our Senior Director of Qualitative Research! Visit poster #M153 to learn about our research conducted in collaboration with the Jett Foundation, focusing on 'Moving from patient voice to patient-centric outcomes in Duchenne muscular dystrophy'. To schedule a direct meeting with Skyler, please reach out to her at sjackson@engagehealth.com or call 651-994-0510. #mdacconference

RSVP here: https://lnkd.in/g9FUQbzx #KrabbeDisease #RareDisease #krabbe KrabbeConnect

March 1st marks the beginning of National Colorectal Cancer Awareness Month. Dress in Blue to show your support! #ColorectalCancerAwareness Colorectal Cancer Alliance

Scan the QR Code to participate or click here: https://lnkd.in/g9FUQbzx #KrabbeDisease #RareDisease #YourVoiceMatters KrabbeConnect

Skyler Jackson, our Senior Director of Qualitative Research will be at the MDA conference in Orlando, FL from March 3rd-6th to present "Moving from patient voice to patient-centric outcomes in Duchenne muscular dystrophy". Please stop by to learn more about this exciting research, or to schedule a time directly with Skyler, reach out to her at sjackson@engagehealth.com or call 651-994-0510. We look forward to seeing you there! #MDAConference #MDA #Neuromuscular #MuscularDystrophy #ALS #Research #RareDisease Muscular Dystrophy Association

February 29 is #RareDiseaseDay, marking the rarest day of the year! At Engage Health, Inc., we're passionate about supporting the 30 million people worldwide affected by rare diseases. Join us in taking action: 1. Spread the word by sharing this post and using the hashtag #RareDiseaseDay. 2. Attend one of the events planned in our home state of Minnesota. MN Rare Advocacy Day, March 5: https://lnkd.in/ggGc2ngD MN Rare Disease Day, March 7: https://lnkd.in/guWWG65N Every action counts in making a meaningful impact. Together, let's stand with those living with rare diseases. #RareDiseaseDay #RarestDayoftheYear #RDD2024 #RareDisease National Organization for Rare Disorders