Epilepsy Alliance America

We are growing! Learn more about our newly created and posted position: Community Engagement Manager. Posting and application information available in the comments.

Best wishes to member organization Epilepsy Services of New Jersey on their Walk for the One this weekend! If you're local, it's not too late to join them for a fun day that will include trick or treating, pumpkin painting, a costume contest, and raising epilepsy awareness! https://lnkd.in/gnVWxP9i

November is epilepsy awareness month and we'll be kicking it off with two live virtual seizure first aid training sessions, in both English and Spanish. You can register now using the links below! English: https://lnkd.in/g3UcHzf9 Spanish: https://lnkd.in/gXmRXcGq

After a sudden death due to epilepsy, individuals are often left with many unanswered questions. During this webinar, Partners Against Epilepsy Mortality (PAME) and moderator Alison Kukla, MPH, will discuss the death investigation process and provide information on autopsies and brain banking after a death. You'll learn about genetic testing and the recommendations from the Sudden Death in the Young Registry. Resources about bereavement resources will also be shared. Guest speakers will share their personal and professional experiences with SUDEP. You can still register to be a part of this webinar hosted today: https://lnkd.in/gguuYtbe

You have the right to life-saving information. Seizure detection devices can help keep you safe by notifying your loved ones during a seizure. Learn more about SUDEP and explore devices with resources from The Danny Did Foundation: https://lnkd.in/gA659nHp. The brochure is also available in Spanish: https://lnkd.in/gFsxHWxW. Stay informed and take steps to protect yourself and those you love. #OurRisksOurRights #SUDEPActionDay2024

The Partners Against Epilepsy Mortality (PAME) 2024 Conference is happening in Los Angeles, CA, on Thursday, Dec. 5. Join patients, families, researchers, and clinicians to explore the latest in epilepsy research, awareness, and education. Don’t miss Family Day on Wednesday, Dec. 4, dedicated to supporting and connecting bereaved members of the epilepsy community. #OurRisksOurRights #SUDEPActionDay2024 https://lnkd.in/eBbYDyuU

SUDEP Action Day on Oct. 16 is a crucial time to raise awareness about Sudden Unexpected Death in Epilepsy (SUDEP). This year’s theme, #OurRisksOurRights, focuses on your right to be informed and access life-saving information, empowering individuals and families to have crucial conversations. We’re also standing with bereaved families as they seek answers and support. Together, we’re prioritizing safety and understanding risks. Join us and our partners in continuing this important conversation. Learn more: https://lnkd.in/gW2ECK-W

Members of support groups share experiences and information, engage in advocacy, and help each other. Being a member of a group is an important reminder that you are not alone on a journey that can feel isolating. Our virtual support group is a way to connect with other adults and caregivers in a safe space. Save the date for our next group meeting on Thursday, November 7th! https://lnkd.in/g-ivZ-dx

Creating an effective epilepsy treatment plan begins with a conversation with your healthcare provider. The S.T.E.P.S. Discussion Tool from SK Life Science, Inc. can help foster more productive dialogue with your doctor, helping you reach your goals. https://lnkd.in/guBwKF4e

We are wishing a very happy 15th birthday celebration to member organization Epilepsy Support Network of Orange County! Congratulations on 15 years of service to the epilepsy community and wishing you many more!