Ern-Skin

📚 AIBD and ToxiTEN e-training 💻 Autoimmune bullous skin diseases and severe toxic drug reactions e-training course for residents 📆 27th November from 16:15 to 17:45 CET 📖 For this online session, 4 didactic clinical cases of AIBD and toxic drug reaction will be presented by Prof. Mathias Goebeler, Dr. Vivien Hebert, Prof. Saskia Oro and Dr. Marie Tauber. These cases will allow to discuss the different aspects of the diagnosis and management of AIBD and Severe drug induced reaction. ✍🏻 Registration is now open: https://lnkd.in/eBirDm4F #ernskin #elearning #dermatology #Rare #Skin #Diseases

💻 We are pleased to announce that our 2024/2025 webinar edition has officially started! 📆 Our first ERN-Skin webinar will take place on: November 26th 2024, 1:00 pm – 2:00 p m CET It is about skin in Manifestations in EDS: what are they and how to manage them Presented by Prof. Dr. Fransiska Malfait, from Centre for Medical Genetics Ghent, Ghent, Belgium and Prof. Clair A. Francomano, Professor of Medical and Molecular Genetics at Indiana University, Indiana, USA. Chaired by: Prof. Dr. Bert Callewaert, from Centre for Medical Genetics Ghent, Ghent, Belgium. Organized by the thematic group on Mendelian connective tissue disorders (MCTD) 👉 Register here: https://lnkd.in/e3tCWRPt #ernskin #webinar #dermatology #Rare #Skin #Diseases

We would like to thank all ERN-Skin members who attended the 2024 ERN-Skin board meeting on October 24th-25th in Paris, France. We appreciate your dedication and we are excited about the impact we can achieve together in the coming months. #BoardMeeting #ernskin #dermatology #patient #dermatologist

📣 One week until 2024 ERN-Skin board meeting 📆 Our next meeting will take place on October 24th-25th 2024, in Imagine Institute, in Paris, France Have a look at the program: https://lnkd.in/eDfdRiph #boardmeeting #ernskin #savethedate #rareskin #disease

October is #BreastCancerAwarenessMonth! 💗 🎗️ This month, we come together to raise awareness for breast cancer, support those affected, and encourage early detection. 🎗️ Pink October reminds us of the importance of regular screenings and self-examinations, which can save lives. 🎗️ Let's spread the word, and show solidarity with the brave individuals battling this disease. Join us in supporting the fight against breast cancer! #OctoberPink #WomenHealth

2024 ESDR ePAGs and clinicians present at the 53rd annual meeting of European Society for Dermatological Research 🗓 September 4th, Lisbon Portugal During the patient symposium patient representatives and clinicians had a discussion about their cooperation in research. This session was presented by Debra International, Global Albinism Alliance, Pachyonychia Congenita Project and European Network Ichthyosis and their highly valued clinicians and researchers, such as Edel O'Toole and Antoni Gostynski. ePAGS Antoine Gliksohn, Mandy Aldwin and Karin Veldman were presenting alongside clinicians. #ESDR #patients #representatives #clinicians #dermatology Global Albinism Alliance Ichthyosis Support Group Debra - The Butterfly Skin Charity Vereniging voor Ichthyosis Netwerken

ERICA ERN Research Conference – Abstract submission deadline extended until 15th October 2024 The aim of the ERICA consortium is to help and stimulate ERN Research. This conference is a great opportunity to ‘meet and greet’ with the active ERN research community and to discuss the progress and future of the ERN related Research activities. More information: https://lnkd.in/ejVR3zn2 #ERICA #ERN #research #conference #callforabstracts #ernskin

📣 One month until 2024 ERN-Skin board meeting 📆 Mark your agendas our next meeting will take place on October 24th-25th 2024, in Imagine Institute, Hôpital Necker-Enfants Malades in Paris, France - Detailed program coming very soon! #boardmeeting #ernskin #savethedate #rareskin #disease

📣 ERICA ERN Research Conference – Submission deadline: 1st October 2024 📆 December 11th-13th, 2024 in Udine, Italy 🎯 The aim of the ERICA consortium, in which all 24 European Reference Networks (ERNs) take part, is to build on the strength of the individual ERNs and create a platform that integrates all ERNs research and innovation capacity. As ERN-Skin we are an ERICA stakeholder and this conference will be a great opportunity to brainstorm about the active ERN research community, to present the research projects involving ERNs and to discuss the future of the ERN related Research. 📑 Call for Abstracts related to ‘ERN Research‘. You can find all the details here: https://lnkd.in/e-cutUqz (erica-rd.eu) - Submission deadline: 1st October 2024 More information : https://lnkd.in/ejVR3zn2 #ERICA #ERN #research #conference #callforabstracts #ernskin #erns

Exciting News: Upcoming Webinars! We're thrilled to announce that the 2024/2025 webinar series is starting in October! 📅 Stay tuned, our calendar and more details are soon! We would like to thank everyone who participated in our last webinar series! Your engagement, questions, and enthusiasm made it a tremendous success. 👏 #ernskin #europeanreferencenetworks #doctors #clinicians #rareskin #webinars