Foundation For Sarcoidosis Research

Best of luck today to our incredible Team Rally for Sarc runners in the TCS New York City Marathon! Your dedication and passion inspire us all, and we are so proud to cheer you on as you raise awareness for sarcoidosis. Run strong, and know that the entire FSR community is behind you every step of the way. You've got this! #StopSarcoidosis #TCSNewYorkCityMarathon #RallyforSarc #2024 Picture: FSR Staff holding a sign of encouragement and support for the 2024 marathon runners.

🏃♂️ Team Rally for Sarc is gearing up to run the TCS New York City Marathon tomorrow! Our five incredible runners— Caeleigh Steier, Calvin Harris, Caton Raffensperger, Dave Land, and Sharon Stevens —are not only racing to the finish line, but also raising crucial funds for sarcoidosis research and support. Join us in backing their efforts by donating to their marathon fundraising campaigns! Your contribution fuels vital programs and brings us closer to breakthroughs that change lives. Support our runners and help make a difference today: https://loom.ly/2KKZXpo Together, we run toward hope and progress. 💜 #TeamRallyForSarc #NYCMarathon #SupportSarcoidosis #DonateForACause #TCSNewYorkCityMarathon

🏃♂️🏃♀️ This weekend, Team Rally for Sarc will take on the TCS New York City Marathon! We're proud to support our five dedicated runners— Caeleigh Steier, Calvin Harris, Caton Raffensperger, Dave Land, and Sharon Stevens —who are racing to raise awareness and funds for sarcoidosis. Each runner carries an inspiring story, and their resilience embodies the spirit of the sarcoidosis community. Let's cheer them on and show our support! Drop your messages of encouragement here: https://lnkd.in/gGFAuzYF so they can read them before the big race on Sunday. Your words will fuel their journey through the streets of NYC! 🗽💜 #TeamRallyForSarc #NYCMarathon #SupportOurRunners #SarcoidosisAwareness #TCSNewYorkCityMarathon

🌟 A Momentous Step for the Sarcoidosis Community! 🌟 On October 28, 2024, FSR hosted the Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting, bringing together nearly 350 patients and caregivers to share experiences and highlight the quality of life impacts of sarcoidosis. This unique, interactive platform emphasized patient voices to inform future treatments. Missed it? Watch the recording and share your comments by December 2, 2024! Your voice matters. Watch here and comment: https://loom.ly/JTR3Oec Read the Press Release: https://loom.ly/wjlbNFA #StopSarcoidosis #FSRPFDD #SarcoidosisAwareness #PatientVoices #FSR #Sarcoidosis

🎃 Happy Halloween from the Foundation for Sarcoidosis Research team! 🕸️ Today, we had a spook-tacular time getting together during our weekly team meeting, all dressed up to bring a little extra magic to our mission! Whether we’re in costume or in our day-to-day roles, we're here to support and bring hope to the sarcoidosis community. From all of us at FSR, wishing you a safe, fun, and boo-tiful Halloween! 👻🧡 #TeamFSR #StopSarcoidosis

FOUNDATION FOR SARCOIDOSIS RESEARCH GLOBAL SARCOIDOSIS CLINIC ALLIANCE Sarcoidosis Community Group at University of Minnesota Empowerment through Education, Support, & Networking Monday, Nov 4th, 6:30PM - 7:30PM CST Via Zoom Topic: Pulmonary Rehabilitation Presenter: Emily LaBelle, RCP, Allina - United Hospital FSR-GSCA Community Groups offer education and networking for sarcoidosis patients and their loved ones. Access critical services, learn new management strategies from experts, and find support from peers. To register and/or learn more about other support group meetings visit: https://loom.ly/-wJWpKc #SarcoidosisSupport #FSRGSCA

Happening NOW! We are almost two hours in and have heard from a varity of patients already. Join us LIVE for a Unique Opportunity to Share Your Sarcoidosis Story! We need your voice! Right now, the Foundation for Sarcoidosis Research (FSR) is hosting a virtual Externally Led Patient-Focused Drug Development (EL-PFDD) Meeting with the FDA. This is your chance to share your experience, insights, and unmet needs directly with those working to develop and regulate new therapies for sarcoidosis. Tune in until 3 PM EST to: Answer live polls Call in to share your personal journey with sarcoidosis Write in your comments and insights Listen to the experiences of others This meeting is part of the FDA's PFDD initiative and will play a critical role in shaping future sarcoidosis treatments. Don’t miss the chance to contribute to this impactful conversation and help inform drug development for sarcoidosis. 🔗 Join NOW: https://loom.ly/JTR3Oec

Happening NOW! Join us LIVE for a Unique Opportunity to Share Your Sarcoidosis Story! 📣 Are you living with sarcoidosis, or know someone who is? We need your voice! Right now, the Foundation for Sarcoidosis Research (FSR) is hosting a virtual Externally Led Patient-Focused Drug Development (EL-PFDD) Meeting with the FDA. This is your chance to share your experience, insights, and unmet needs directly with those working to develop and regulate new therapies for sarcoidosis. Tune in until 3 PM EST to: Answer live polls Call in to share your personal journey with sarcoidosis Write in your comments and insights Listen to the experiences of others This meeting is part of the FDA's PFDD initiative and will play a critical role in shaping future sarcoidosis treatments. Don’t miss the chance to contribute to this impactful conversation and help inform drug development for sarcoidosis. 🔗 Join NOW: https://loom.ly/JTR3Oec

Tomorrow is the day, please join the Foundation for Sarcoidosis Research (FSR) on Monday, October 28th from 10am-3pm EST for an interactive Externally Led Patient-Focused Drug Development (EL-PFDD) Meeting on Sarcoidosis with the FDA. This virtual, public meeting intended to provide patients and caregivers with a unique opportunity to share about their unmet needs, the quality-of-life impacts of sarcoidosis, and preferences in respect to symptom management and the development of new therapies. Participate by joining online on October 28 and: https://loom.ly/o0boBO0 Fill out live meeting polls Call-in to share your experience with sarcoidosis Write-in your thoughts and comments Listen and learn Register: https://loom.ly/JTR3Oec This EL-PFDD meeting is a complement to the FDA’s PFDD initiative. The patient input collected during this meeting and reported after this event will have a lasting impact on the lives of those with sarcoidosis as it will inform the development and regulatory review of new drugs for this rare disease. Register now and join to hear the collective voices of patients with sarcoidosis.

John Carlin and mary mcgowan in-studio prep for tomorrow's Externally Led Patient Focused Drug Development Meeting with the FDA. Foundation For Sarcoidosis Research #sarcoidosis #drugdevelopment #raredisease #rareasone Join us here 10/28 from 10am-3pm ET. There are lots of opportunities for those impacted by sarcoidosis to participate through live polls, call-in opportunities, and online comment submission form (comments will be read live in the air). https://lnkd.in/gth-7ftX