Foundation For Sarcoidosis Research

LAST CHANCE to join us for our, FSR Webinar on Advanced Pulmonary and Cardiac Sarcoidosis Tomorrow, August 28, 2024 4-5pm CDT Join Mary McGowan, FSR CEO, Dr. Shambhu Aryal from Inova and Dr. Farooq Sheikh from Medstar, FSR Founding Global Sarcoidosis Clinic Alliance Members, to learn about management and treatment options for those living with advanced pulmonary and cardiac sarcoidosis. The discussion will include information on pulmonary rehab, palliative care, and transplantation. Register here: https://loom.ly/79IG1NE All registrants will receive a link to the event recording.

Take the 100-Mile Challenge This September! 🚴♀️ Take the Cycling for Sarcoidosis 100-Mile Bike Challenge and ride anywhere, anytime—on the trail, around your neighborhood, or at the gym. Every mile you pedal supports awareness and fundraising for the Foundation for Sarcoidosis Research (FSR). Why Ride? • Make a Difference: Be part of a community driven to find a cure for sarcoidosis and improve care through research, education, and support. • Ride Your Way: Complete 100 miles at your own pace throughout September. Every mile matters! • Earn Swag: Raise $100 and receive exclusive FSR swag— like a purple bike/safety light —to show your support. Sign Up for Free and help us accelerate progress toward a cure. Your participation fuels critical research and brings hope to those affected by sarcoidosis. Together, we can create a world without sarcoidosis. Start your journey today! Start now: https://loom.ly/EEyze9U

New Funding Opportunity! Are you an early-stage investigator with a passion for sarcoidosis research? The ATS/FSR Co-Funded Grant offers $50,000 per year for two years! Apply now and advance your research. 🗓️ Deadline: Dec 16, 2024 🔗 https://loom.ly/aCXw0qU

We need your help now to get your members of Congress to cosponsor the SOAR Act! Join us and our partner organizations on Tuesday, August 27 to take action by calling your Senators and Representative to request that they support the SOAR Act! You’ll receive some background information about the SOAR Act, as well as the tools to successfully speak with your elected officials. During this event, we will all make our calls to secure more support of the SOAR Act. Even if you have already contacted your legislators about the SOAR Act, we need your participation again with this timely request. We need your voice to continue this movement for better access to supplemental oxygen! Congress is back in session in September, and we need as many new cosponsors as possible to make sure that the legislation moves forward. Register now! https://loom.ly/w62qKd4

FOUNDATION FOR SARCOIDOSIS RESEARCH GLOBAL SARCOIDOSIS CLINIC ALLIANCE Sarcoidosis SUPPORT GROUP of South West Louisiana Empowerment through Education, Support, & Networking Join our Meeting: Date: Monday, September 2nd, 2024 Time: 5:30 pm CST Who: Patients and Caregivers Where: 1701 Oak Park Blvd. Lake Charles, Louisiana 70601 Bon Vie conference room; first floor near garage entrance. Register: https://lnkd.in/grpHuHXC FSR-GSCA Community Groups offer education and networking for sarcoidosis patients and their loved ones near and around MedStar Health. Access critical services, learn new management strategies from experts, and find support from peers. #Sarcoidosis #StopSarcoidosis #Community #SupportGroup

FSR Webinar on Advanced Pulmonary and Cardiac Sarcoidosis August 28, 2024 4-5pm CDT Join Mary McGowan, FSR CEO, Dr. Shambhu Aryal from Inova and Dr. Farooq Sheikh from Medstar, FSR Founding Global Sarcoidosis Clinic Alliance Members, to learn about management and treatment options for those living with advanced pulmonary and cardiac sarcoidosis. The discussion will include information on pulmonary rehab, palliative care, and transplantation. Register here: https://loom.ly/79IG1NE All registrants will receive a link to the event recording.

FOUNDATION FOR SARCOIDOSIS RESEARCH GLOBAL SARCOIDOSIS CLINIC ALLIANCE Sarcoidosis Community Group at Temple Health Empowerment through Education, Support, & Networking 📅 Date & Time: August 26, 2024, at 3:00 PM EST 📍 Location: In-person: Temple University Hospital, Basement, Classroom B 3401 North Broad Street, Philadelphia, PA 19140 And on Zoom: https://loom.ly/pW1C-ww Speakers: Carolyn Hogan, MD: Sarcoidosis and Your Liver Vincent Ferrari, RT: Sarcoidosis and Your Breathing Join us for an insightful session where you'll learn about the impact of sarcoidosis on your liver and respiratory system from two expert speakers. Don't miss this opportunity to connect with others in the sarcoidosis community and gain valuable information. FSR-GSCA Community Groups offer education and networking for sarcoidosis patients and their loved ones. Access critical services, learn new management strategies from experts, and find support from peers. To register and/or learn more about other support group meetings visit: https://loom.ly/-wJWpKc #SarcoidosisSupport #FSRGSCA

🏃♂️ Meet Calvin Harris! 🏃♂️ For Calvin, running in the 2024 TCS New York City Marathon for the Foundation for Sarcoidosis Research is more than just a race—it's a personal journey of triumph. Living with pulmonary sarcoidosis makes every breath a fight, but running, even at a slower pace, is a vital part of that fight for Calvin. As a proud member of the FSR Board of Directors, Calvin has found support and purpose. “This marathon is a chance to spotlight sarcoidosis, rallying support for research and for those impacted by the disease. Every step I take and every dollar raised brings us closer to a future where sarcoidosis can be effectively treated or even cured.” Let's cheer on Calvin as he runs to make a difference! https://loom.ly/eRsY02Y 💜 #TeamRallyForSarc #TCSNYCMarathon #FSR #SarcoidosisAwareness

On July 21, 2024, the Simple Cora Foundation hosted "Strikes for Sarc" at a lively bowling alley in Staten Island, New York. The event was a warm and heartfelt tribute to Sylvia Guerra-Cora, who passed away on October 23, 2020. Organized by her three sons, the day celebrated Sylvia's legacy of kindness and generosity. The atmosphere was filled with joy and camaraderie. Balloons adorned the venue, and the sounds of laughter and bowling pins clattering added to the excitement. It felt like a big family gathering, with relatives, friends, and new acquaintances coming together to support a great cause. Sylvia's loved ones shared stories about her, painting a picture of a woman who believed that "every little bit counts." T-shirts were on sale, and a lively raffle with four prizes kept the energy high. The bowling alley buzzed with positivity, and the Cora family's warmth made everyone feel welcome. The event wasn't just a fundraiser for the Foundation for Sarcoidosis Research; it was a celebration of a community united in love and support. FSR is honored to receive over $4,000 from the funds raised at the event. It was a beautiful day filled with smiles, memories, and a shared commitment to making a difference in Sylvia's honor. Do you have a unique passion or want to host a fundraising event in memory of a sarcoidosis patient? Learn more about how you can make a difference by organizing your own event. Visit https://lnkd.in/gJRKUBu5 to find out more and get involved.

FSR Webinar on Advanced Pulmonary and Cardiac Sarcoidosis August 28, 2024 4-5pm CDT Join Mary McGowan, FSR CEO, Dr. Shambhu Aryal from Inova and Dr. Farooq Sheikh from Medstar, FSR Founding Global Sarcoidosis Clinic Alliance Members, to learn about management and treatment options for those living with advanced pulmonary and cardiac sarcoidosis. The discussion will include information on pulmonary rehab, palliative care, and transplantation. Register here: https://loom.ly/79IG1NE All registrants will receive a link to the event recording.