The GenPAN Network provides peer support, networking and CPD opportunities for Genomic Associates and Practitioners. It is a space where we share best practice and seek advice from each other regarding shared challenges, in this relatively newly established role.
We were delighted to contribute to these wonderful resources and hope they can help families navigating rare conditions in the NHS!
Our new Seeking a Rare Diagnosis resources offer info, support and top tips to those looking for a genetic/rare diagnosis via the NHS. Shaped by people with lived experience and clinicians, the resources support every step of the way 👉 https://lnkd.in/etVY6DbM 👉 https://lnkd.in/e5dqkxKK
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TODAY IS RARE DISEASE DAY! 🦓 🥳 To mark Rare Disease Day 2025, we are proud to present 'More than you can imagine: an anthology of rare experiences' - a powerful collection of creative works that bring to life the experiences of individuals within the genetic, rare, and undiagnosed communities through poetry, personal stories, photography, and artwork. 👉 https://ow.ly/4SGm50V7I4R And 'More than you can imagine: Opportunities for improving the lives of people living with rare conditions' - Genetic Alliance UK’s Rare Disease Day policy report that reflects on the impact of the UK Rare Disease Framework and highlights the significant unmet need that continues to exist in the rare condition community. 👉 https://ow.ly/VJ6x50V8ir2 You can view both anthology and report NOW. If you'd like to support future work like these publications then please consider donating today. Every donation goes towards helping us continue our vital work to support the 3.5 million people living with a rare condition in the UK.
Looking forward to this!
🚨 REMINDER🚨‼️‼️ We are pleased to announce that the annual AGNC 2025 conference is due to be held on the 2nd of April 2025 in Birmingham! Abstract submission is now open. You can submit your abstracts here. https://lnkd.in/epv9EpZr
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Wishing all in the Genetic Counselling community a ‘Happy International Woman and Girls in Science day’. #womeninscience
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⭐️ Calling all AGNC Members! ⭐️ Please consider voting in the AGNC Elections!! We are looking for 2 new members!
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Genomic Associate at NWTRGS. Co-chair of the GenPAN Network. Currently studying for a MSc in Genetic and Genomic Counselling at Cardiff University.
Delighted that our poster is up at the Festival of Genomics today and tomorrow!
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Thank you to all the organisers for the first GenPan conference yesterday! It was a truly wonderful day meeting fellow Genomic Associates and engaging in some really interesting talks. 🧬🎉 Thank you!
Fantastic first GenPAN conference today! Thanks to all those who came! More to come but for now we’re celebrating 🎉
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A heartfelt thank you to the organisers of the first GenPan Conference. It was truly a pleasure to connect with fellow genomic professionals and Practitioners , exchanging thoughts and ideas. The variety of talks was inspiring, and I’m already looking forward to future events! 😊
Fantastic first GenPAN conference today! Thanks to all those who came! More to come but for now we’re celebrating 🎉
A big thank you to The Association of Genetic Nurses and Counsellors (AGNC) for funding our GenPAN Conference last week! We are very grateful for all of their support! #GenPAN2024
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Experienced cardiovascular and thoracic nurse with a special interest in inherited cardiac conditions
A productive and engaging day outside the office to attend the very first conference organised by the GenPAN Network. This really helps in building valuable connections and gaining insights from relevant talks but also serves as a great opportunity to showcase the work and impact of the OxGEM team.