Hypersomnia Foundation

Working with Your Doctors Pt 2. How can I get the most out of my doctor’s appointments? To learn more go to: https://lnkd.in/e22kkyfm #ThisIsIH #forthesleepyones #BeyondSleepy #advocateforyourself #hypersomnia #sleep

Shoutout to Kristen for sharing this gem. Just keep going. 🫡 #BeyondSleepy #idiopathichypersomnia #thisisih #hypersomnia #sleep #forthesleepyones

We are delighted to have partnered with Project Sleep on the Jack & Julie Scholarship again this year. FIVE students of the 37 recipients have IH. @HypersomniaFoundation was able to fund their scholarships. Join us in congratulating Trinity. 🎓 Trinity, Watertown, WI: Trinity started having symptoms of idiopathic hypersomnia at the end of her sophomore year, and was diagnosed in January of her junior year. She attended a project-based charter school, where she was involved with National Honor Society, received high honors, started an eSports team and a banner printing business, and participated in many clubs and volunteer opportunities. Trinity will attend Carroll University to double major in animal behavior and business administration. To learn more about all the Jack & Julie Narcolepsy Scholarship recipients, go to: https://lnkd.in/eSF4u3AW

This is how we feel about our community. 💙 #BeyondSleepy #idiopathichypersomnia #sleepdisorder #hypersomnia #sleep #forthesleepyones

Working with Your Doctors Pt 1. How can I prepare for my doctor's appointments? To learn more go to: https://lnkd.in/e22kkyfm #ThisIsIH #forthesleepyones #BeyondSleepy #advocateforyourself #hypersomnia

This past June, nearly 800 individuals attended #BeyondSleepy Houston in person and virtually. Now YOU can access all the presentations from the #BeyondSleepy Conference main room and break out room!⁠ They are now available on our YouTube channel. Be sure to check out these presentations and subscribe as we continue to share informative videos with our community! https://lnkd.in/gzw-GNxB #ThisIsIH #forthesleepyones #hypersomniaawareness #idiopathichypersomnia #sleepdisorder #FakeAwake

What are you grateful for today? Let us know in the comments below.

Summer has been summering. It always reminds us how helpful a routine is for managing IH symptoms. It also reminds us when we do activities outside of the routine it can have a greater effect on our sleepiness. As Haley (@thesleepy_ot) says — When it comes to trying to do something outside of those routines, which could be absolutely anything from weekly grocery shopping on a weekend, going out to socialize with friends or family- really anything- it can completely wipe me out for the following days on end. It may be fun, it also sometimes is absolutely worth it for me personally because in a situation such as socializing- it’s something extremely meaningful in my life. Will it mean I’ll “go to bed for a couple days”? Most likely. But on those days I will take it easy and give myself grace. As I’ve noted in other videos- bringing a little humor into educating others and advocating for more awareness is NOT intended to be taken that IH is a joke. IH is very real. It’s extremely challenging to navigate. We may not understand what causes this, “but our sleepiness is real”. Every symptom that comes along with IH is REAL!!

Do you ever wish sharing your story would create change in treatments, relationships, symptom management, and more? Do you have uneasiness about sharing your reality? ⁠ Join us Monday, July 29th via Zoom at 7:00 PM (Eastern) / 4:00 PM (Pacific) for a discussion with Josh Andrews on “Using Your Voice For Change.”⁠ ⁠ ⁠ UNIGHT is a free virtual get-together for people with sleep disorders, family, and friends.⁠ ⁠ Josh Andrews became NFL Superbowl Champion while playing for the Philadelphia Eagles as an offensive lineman in 2017. Josh started playing football at a young age. After high school, he went on to play college football at Oregon State University. After college, his athletic talents landed him positions on NFL teams including the Minnesota Vikings, Indianapolis Colts, New York Jets, Atlanta Falcons, and New Orleans Saints. Josh and his lovely wife Amber have 3 children and Josh is also a person living with narcolepsy. ⁠ Click here to register- https://lnkd.in/eaJVZcuY Let’s get #BeyondSleepy!⁠ ⁠ UNIGHT is not a focus group and is not part of a research study and there is no compensation for attending.⁠

Project Sleep cordially invites you to attend - Awakening America: A Congressional Briefing on Sleep and Public Health On Tuesday, July 16th, 2024 at 12:00 noon ET, please join the sleep community for a briefing on recent advancements and emerging opportunities to improve sleep via public health. This event will cover new resources and tools now available to constituents nationwide. This briefing will also discuss gaps in early detection and diagnosis for the one in five Americans living with sleep disorders, along with legislative recommendations and updates on federal programs. Speakers Include: Dr. Michael Grandner, University of Arizona Dr. Kali Cyrus, Patient Advocate Julie Flygare, JD, President & CEO, Project Sleep Following the briefing, Project Sleep will invite Capitol staff to participate in a free sleep screening event to discuss potential concerns about their own sleep or wakefulness. These one-on-one educational consults with sleep specialists will take place in the same room, Rayburn Room 2075 from 1:30 – 3:30 PM ET. This screening event is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. To attend the briefing, please RSVP to Lindsay Scola: lindsay@lindsayscola.com Graphics by: Project Sleep #sleepadvocacy #sleepawareness #BeyondSleepy #idiopathichypersomnia #sleepdisorder