Indo US Organization for rare diseases (IndoUSrare) is an independent non-profit organization focused on helping patients with rare diseases of Indian origin in the USA, India, & globally with a vision to build collaborative highway-bridges between the west & the east to accelerate research & development of diagnostics & therapies through education, advocacy, research, & grants. IndoUSrare serves as a gateway to the highway-bridges between the USA, & the Indian subcontinent to accelerate research & development of Diagnostics, Drugs, Devices, Biologics, & Therapeutics for rare diseases. The USA is the largest funder of biomedical research with a forward-looking regulatory framework for innovative new medicines including cell & gene therapies. India is the largest democracy with a genetically diverse population of over 1.3 Billion people. Yet, India accounts for less than 1% of the global clinical research footprint. IndoUSrare will address this gap through enabling education, awareness, advocacy, fostering research collaborations & patient engagement in global clinical trials. Our Board of Directors: Anish Bhatnagar, M.D., Soleno Therapeutics Inc Frank Sasinowski, MS, MPH, JD, Regulatory Attorney, Hyman Phelps & McNamara, P.C. & Vice-chair of EveryLife Foundation for rare diseases. Harsha K Rajasimha, Ph.D. Founder and Chairman Ms. Juhi Naithani, MBA, Principal, bGlobal Consulting Narayanan Govindarajan, MS, UWorld Reena Kartha, M.S., Ph.D., Center for Orphan Drug Research, University of Minnesota Advisors: Stephen Groft, Pharm.D., Board Director of ICORD, Retired Director, NIH, Bethesda, MD Akkaraju Sarma, MD, Ph.D., FAAFP, Ellis Island Medal of Honor 2016 Recipient, Pennsylvania Resident Preveen Ramamoorthy, Ph.D., Executive Director, IAVI Rajesh Gooty, President, Lead America Inc. Ravi Mistry, M.S, MBA, Leader, Entrepreneur, Angel investor, Educator Team Members: Srinivas Seshadri, Director, Roarforrare, SFBayarea
External link for Indo US Organization for Rare Diseases (IndoUSrare)
Herndon, VA, US
Indo US Organization for Rare Diseases (IndoUSrare) reposted this
Executive Director, Rare Disease Diversity Coalition, DEIAB leader with a focus on health equity
Next week is the Congressional black caucus annual legislative conference. There is no lack of sessions,events, and activities. I’ll be on a panel on Wednesday 9/11, to help round out a conversation on health equity. Let me know if you plan to go to this session. https://lnkd.in/gX8UE_Yd
Don't miss out on the Indo US Bridging RARE Summit 2024! This is your chance to be at the forefront of pioneering research, clinical advancements, and international partnerships. Engage with world-class experts, patients, advocates, and pioneers, all dedicated to curing rare diseases. Register now to secure your place and make a difference: https://buff.ly/46DlB8g Harsha K Rajasimha Narayanan Govindarajan Reena Kartha Nisha Venugopal Ramya T karur Saundarya M S Indo US Organization for Rare Diseases (IndoUSrare) #BridgingRARE #IndoUSRARE #RareDisease #GlobalHealth #RARESummit2024 #registernow
We’re honored to announce that we’ve been selected as a 2024 #RAREis Global Advocate Grant recipient by Amgen’s #RAREis program. This recognition underscores our unwavering commitment to the rare disease community at large, who inspire us every day with their strength and resilience amid care and research barriers. With this #RAREisGrant, we’re motivated to continue raising awareness and expanding our efforts in education and advocacy for all those living with rare diseases and their loved ones. Learn more here: https://buff.ly/4gc5UJK Dhanya K Harsha K Rajasimha Narayanan Govindarajan Reena Kartha Nisha Venugopal Ramya T karur Saundarya M S Indo US Organization for Rare Diseases (IndoUSrare) #RareDiseaseAdvocacy #RAREisSupport #CommunityImpact #AdvocatingForRare #InspiringChange #RareDiseaseAwareness
Team Indo US Organization for Rare Diseases (IndoUSrare) had the privilege of attending the Genomics Summit 2024, hosted by Illumina and Premas Life Sciences Pvt Ltd. The summit was an inspiring event filled with valuable insights from leading experts and scientists, shaping the future of genomics. Samir K Brahmachari Mitali Mukerji SRINATH Thiruneelakantan Leela, PhD Harsha K Rajasimha Narayanan Govindarajan Reena Kartha Nisha Venugopal Ramya T karur Saundarya M S #GenomicsSummit2024 #IndoUSrare #RareDisease #Genomics #PatientAdvocacy #rarediseases
Indo US Organization for Rare Diseases (IndoUSrare) reposted this
Join us at EPPICon this year for an extraordinary panel discussion on policy innovation which is vital to sustainable healthcare advancements and fostering effective US-India collaboration. This session will focus on developing and implementing policies that support diverse partnership models. It will examine successful public-private partnerships and discuss evidence-based policy frameworks for transparent collaboration. Participants will gain insights into creating a collaborative ecosystem by exploring lessons from global experiences and showcasing successes in innovative company collaborations across the US-India corridor. People: Vidyani Suryadevara, PhD, Harsha K Rajasimha, Helen Nadel, Eran Bendavid Register now: https://lnkd.in/dc-y5F5X Contact Us: admin@eppicglobal.org #EPPICon2024 #HealthcareInnovation #HealthTech #USIndiaPartnership #Entrepreneurship #Innovation
Join the Indo US Organization for Rare Diseases (IndoUSrare) Patients Alliance Member Program and be a driving force in accelerating the discovery of diagnoses and cures for rare diseases. Together, we can provide patients with renewed hope and more treatment options. Ready to make a difference? Sign up today: https://lnkd.in/gdHn5-6D Harsha K Rajasimha Narayanan Govindarajan Reena Kartha Nisha Venugopal Ramya T karur Saundarya M S #IndoUSrare #PatientsFirst #RareDiseaseAdvocacy #JoinTheAlliance #HopeForRareDiseases
Hurry Up! Register your presence before the Early Bird Registration ends! Join the global conversation on rare disease research at the Indo US Bridging RARE Summit 2024. Use code "EARLYBIRD50" to save 50% on your registration—don’t miss out! Reserve your spot here: https://buff.ly/46DlB8g Centre for Cellular and Molecular Biology Centre for DNA Fingerprinting and Diagnostics (CDFD) AIIMS (All India Institute of Medical Sciences, New Delhi) Virginia Bio George Mason University BioHealth Innovation, Inc. BioHealth Capital Region Sir Ganga Ram Hospital #SocietyforIndianAcademyofMedicalGenetics Harsha K Rajasimha Narayanan Govindarajan Reena Kartha Nisha Venugopal Ramya T karur Saundarya M S Indo US Organization for Rare Diseases (IndoUSrare) #bridgingrare #bridge4rare #indousrare #globalcollaboration #summitregistration
Indo US Organization for Rare Diseases (IndoUSrare) reposted this
Don't miss our July-August 2024 Platform issue of BioProcess International - available in print and digital! This issue features fascinating articles from talented professionals. Read on for a preview of the articles linked below: Increasing Access Through Continuous Biomanufacturing by Himanshu Gadgil. LC-MS Detection of Host Cell Proteins: Antibody Affinity Extraction Sample Preparation Outperforms Native Digestion by Alla Zilberman, Darren Bertin, Stephen Stahlschmidt, Johanna Barnhill, Timothy Licknack, Jared Isaac, PhD MBA. Write Your Success Story with Tailored Development Platforms by Yeukyung Yoon, Jang Ick Lee. Rare-Disease Research: Its Importance for Orphan-Drug Development Success by Deepti Dubey, Harsha K Rajasimha. Matching Patients with Treatments: Developing Clinically Meaningful Diagnostics To Inform Cancer-Immunotherapy Selection by Brian Gazaille, Ofer Sharon. Smart, Good Manufacturing Practice Production of Cell and Gene Therapies: A Vision for the Future by Sridhar Venkatesan, Jim Beltzer, @Frank Maggiore, Joe Rininger. The Role of Innovation Organizations in the Advanced-Therapies Space by Matthew Durdy. Vocational Schools Build Careers in Bioprocessing Biotechnology by Jared Auclair. Navigating the Commercial Cycle of Biologics Manufacturing by Filippo Pendin. Supply-Chain Challenges in Biotechnology by Sunderesh Heragu. Fostering Digital Transformation in Biomanufacturing: A Conversation About Industry 4.0 Acceptance and Implementation by Brian Gazaille, Yvonne Duckworth, PE, Ryan Thompson. End-to-End Services for Biologics Manufacturing: From Gene to Product by Dr. Thilo Kamphausen, Kai Pohlmeyer. Ensuring Biopharmaceutical Continuity and Sustainability: Tosoh Bioscience’s Strategic Initiatives by Balu Guduri. This issue also features all of our interviews, presentations, and panel discussions with Dan Stanton and Millie Nelson, from the June BPI Theater at BIO 2024 in San Diego, CA. Follow the link below to read the full issue and watch the BPI Theater encore now. https://lnkd.in/gbxG2Duc
Join us for an unforgettable evening at the Bridging RARE Gala and Reception during the Indo US Bridging RARE Summit 2024! Be part of an inspiring celebration where science, advocacy, and community come together to create lasting change. Don't wait—reserve your spot now and make an impact alongside us! Register today: https://buff.ly/46DlB8g #GalaNight #CulturalFusion #bridgingrare #bridge4rare #indousrare
Indo US Organization for Rare Diseases (IndoUSrare) reposted this
The focus of BioE3 policy, recently released by Government of India, on Precision Biotheraputics is very much in line with the future of medical practice. New age clinicians as well as Researchers need to be aware of these developments so as to translate the fruits of high end research into clinical practice #DBT #Dbtcdfd #BioE3policy